Hope2SleepGuide

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Truus Gielen
  • Female
  • Venlo
  • Netherlands
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Truus Gielen's Page

Profile Information

Treatment Being Used, if any?
CPAP
If Machine Being Used, What Make or Model?
Weinmann SomnoSmart2
If Mask Being Used, What Type or Name?
Papillon Resmed

Comment Wall (1 comment)

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At 13:31 on March 13, 2012, Kath Hope said…

Hi Truus and welcome to our forum.  I hope you find it of good benefit to you and feel free to introduce yourself to the other members here http://hope2sleepguide.co.uk/forum/topics/welcome-from-kath-mike

Best Wishes and Good Sleep :)

Kath

 
 
 

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Latest Activity

Alison Mitchell posted a discussion

FOR SALE - RESMED AIRSENSE 11 AUTO

Bought after diagnosis. Used until we reached the top of the (long!) nhs waiting list and received a machine through them. Immaculate condition. Only used for 2 months. Comes with all accesories and bag. Also included is the Airtouch f20 full face…See More
May 5
0 Comments
Jonathan replied to Ruth Furniss's discussion Nosebleed
"You don't mention whether you have a humidifier on your CPAP machine.  I think that would help a lot."
Dec 26, 2025
Ruth Furniss posted a discussion

Nosebleed

Hi does anyone suffer with nosebleeds using cpap machine? How do you manage to stop them please.See More
Dec 26, 2025
1 Comment
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers.  There was no remote monitoring and…"
Oct 25, 2025
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
Oct 24, 2025
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi. I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs.  I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring. I am…"
Oct 24, 2025
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi Jonathan, did you do that through PatientKnowsBest?"
Oct 24, 2025
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic. On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276 Your machine may be under-reporting. Good…"
Oct 24, 2025
John posted a discussion

Wellu O2 Ring - is it accurate enough for the medics?

Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
Oct 21, 2025
5 Comments
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi, Just thought I'd give an update.  So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study.  My AHI is now 6, down from over 30, so I'm…"
Oct 15, 2025
John replied to Sally Gray's discussion Microplastics risks
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
Oct 7, 2025
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1, 2025
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31, 2025
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31, 2025
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30, 2025
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29, 2025
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28, 2025
6 Comments
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
Aug 3, 2025
1 Comment
Alison Mitchell is now a member of Hope2SleepGuide
Jul 2, 2025
Welcome Them!
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27, 2025
0 Comments

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