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Sleep Apnoea Forum Bringing Help + Support to the Patient
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debbi-jayne challenger
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Profile Information
- Treatment Being Used, if any?
- CPAP, Dental device
- If Machine Being Used, What Make or Model?
- CPAP
- If Mask Being Used, What Type or Name?
- Tried them all
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Sleep Apnoea Forum
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Latest Activity
"Hi Nick thanks. Does it do the job and could you camp with it?"
CPAP Total Face Mask
I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
"Hi
It sounds like you need to have more conversations with your sleep clinic. There's little point in having a high pressure if it means you cannot tolerate the machine. There's an interesting video here…"
Pressure waking me up. Belching and wind
HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep. Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
"Can't say I know about this."
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
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It's my pleasure Debbi-Jayne, and like you I was stuck in avoiding the rain even though the poor dogs were going mad I was delaying their walk
I'm just going to send you a quick email before bed......
Yep - dogs are definitely the love of my life too
and both hubby + I love collies as well and were debating whether to get one before getting our newest labrador puppy. Hope we can get you sorted, as you certainly need more energy with all those furry friends around you. Right, here goes with my reply......
Firstly, read my brief story over on the main website, and believe me if it were not for the fact of my own Mum being an untreated sufferer of sleep apnoea + dying at the young age of 49, I would have given up too http://www.hope2sleep.co.uk/page/my-story
I'm sorry to hear your hospital weren't sympathetic to you as support is the main ingredient for success. Getting the 'right' mask is the most important part of successful therapy and I wrote a blog last year to help with choosing the right one http://www.sleepapnoeablog.com/choosing-a-cpap-bipap-masks-for-sleep-apnoea/ Take a look at the other posts over on the blog too, as there may be more help on there for you.
As you're aware, apart from you feeling lousy through not getting proper sleep, untreated sleep apnoea can lead to all sorts of other conditions, and I promise you that you've come to the right place for support - we NEVER give up in helping people and I tell you, I wish there'd been this kind of support when I started out.
Hang in there Debbi-Jayne 'cos soon you'll have the energy to give them dogs the best life they can have. In fact you might even find they can't keep up with you
Welcome to the forum Debbi-Jayne
Firstly, on looking at your profile pic I want to say how jealous I am of you being surrounded by so many lovely dogs - we have 2 labradors and I'd have more if I had my way lol.
Anyway, I saw on your sign-up form you say you've tried all the masks. Does that mean you're struggling?
Best Wishes
Kath