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grace harrison
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- kent
- United Kingdom
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- Treatment Being Used, if any?
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- res M sries
- If Mask Being Used, What Type or Name?
- nasel mask
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Latest Activity
"Hi Nick thanks. Does it do the job and could you camp with it?"
CPAP Total Face Mask
I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
"Hi
It sounds like you need to have more conversations with your sleep clinic. There's little point in having a high pressure if it means you cannot tolerate the machine. There's an interesting video here…"
Pressure waking me up. Belching and wind
HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep. Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
"Can't say I know about this."
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
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Hi Grace
Just butting in on your conversation with Jan. Please don't suffer alone and let us know your problems. Also take Jan up on her offer to email - she's a great source of positiveness and you are welcome to contact me too.
3 weeks is very early in your treatment, and if you read My Story you'll know I didn't adapt straight away either. Also check out the Blog www.sleepapnoeablog.com
Best Wishes
Kath
Dear Grace
I was diagnosed just about a year ago, but unlike you, I was falling asleep at work and sometimes even mid sentence when talking to someone. Still wasn't bothered until I was questioned by a physician in some depth, when I was having an assessment for an operation. I went for my trial sleep over test using a mask, and that was that, I became a CPAP user. Don't get me wrong, I hated wearing it and threw the mask across the room on more that one occassion and cried a lot, but I knew I would never be able to have the operation I so needed to have because the anaesthetist had already told me I had only a 1 in 100 chance of survival after the op, without using the CPAP. So.. I persevered, but still ripped the mask off as soon as I awoke, even if it was 4 in the morning, which I now realize was silly of me to fall asleep again without it on. Eventually I got used to it and now call it my sleeping tablet. I have a good 8 hours sleep each night, never wake up, unless the dog jumps on me, but I can honestly say.......I DO NOT feel as refreshed as everyone says I should feel, I'm just pleased to have had a nights sleep, and even more pleased to wake up the next day, because without, you may not! Yes I did have my operation in February this year, and took all my equipment into hospital with me. I hoped that the operation I had would have helped towards my not having Sleep Apnoea any more and could do away with the equipment, but after learning, just recently, how many apnoeas I had on average an hour [127] it will now become my lifelong friend.
I hope this might have helped you a little, and Kath is always there to give you all the benefit of her knowledge or just an email hug, whenever you need it.
Feel free to keep in touch my email if you would like it is:- lady.jan13@btinternet.com
Best wishes Jan
Hi Grace, welcome to the world of sleep apnoea. Where in Kent do you live. I live in East Peckham, near Tonbridge.
Welcome to the Forum Grace, and hope you find it beneficial to you. Feel free to introduce yourself to the others on this post http://hope2sleepguide.co.uk/forum/topics/welcome-from-kath-mike
Best Wishes and Good Sleep!
Kath