"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
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grace harrison
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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Hi Grace
Just butting in on your conversation with Jan. Please don't suffer alone and let us know your problems. Also take Jan up on her offer to email - she's a great source of positiveness and you are welcome to contact me too.
3 weeks is very early in your treatment, and if you read My Story you'll know I didn't adapt straight away either. Also check out the Blog www.sleepapnoeablog.com
Best Wishes
Kath
Dear Grace
I was diagnosed just about a year ago, but unlike you, I was falling asleep at work and sometimes even mid sentence when talking to someone. Still wasn't bothered until I was questioned by a physician in some depth, when I was having an assessment for an operation. I went for my trial sleep over test using a mask, and that was that, I became a CPAP user. Don't get me wrong, I hated wearing it and threw the mask across the room on more that one occassion and cried a lot, but I knew I would never be able to have the operation I so needed to have because the anaesthetist had already told me I had only a 1 in 100 chance of survival after the op, without using the CPAP. So.. I persevered, but still ripped the mask off as soon as I awoke, even if it was 4 in the morning, which I now realize was silly of me to fall asleep again without it on. Eventually I got used to it and now call it my sleeping tablet. I have a good 8 hours sleep each night, never wake up, unless the dog jumps on me, but I can honestly say.......I DO NOT feel as refreshed as everyone says I should feel, I'm just pleased to have had a nights sleep, and even more pleased to wake up the next day, because without, you may not! Yes I did have my operation in February this year, and took all my equipment into hospital with me. I hoped that the operation I had would have helped towards my not having Sleep Apnoea any more and could do away with the equipment, but after learning, just recently, how many apnoeas I had on average an hour [127] it will now become my lifelong friend.
I hope this might have helped you a little, and Kath is always there to give you all the benefit of her knowledge or just an email hug, whenever you need it.
Feel free to keep in touch my email if you would like it is:- lady.jan13@btinternet.com
Best wishes Jan
Hi Grace, welcome to the world of sleep apnoea. Where in Kent do you live. I live in East Peckham, near Tonbridge.
Welcome to the Forum Grace, and hope you find it beneficial to you. Feel free to introduce yourself to the others on this post http://hope2sleepguide.co.uk/forum/topics/welcome-from-kath-mike
Best Wishes and Good Sleep!
Kath