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grace harrison
  • Female
  • kent
  • United Kingdom
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grace harrison's Page

Profile Information

Treatment Being Used, if any?
CPAP
If Machine Being Used, What Make or Model?
res M sries
If Mask Being Used, What Type or Name?
nasel mask

Comment Wall (4 comments)

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At 0:17 on July 28, 2012, Kath Hope said…

Hi Grace

Just butting in on your conversation with Jan.  Please don't suffer alone and let us know your problems.  Also take Jan up on her offer to email - she's a great source of positiveness and you are welcome to contact me too.

3 weeks is very early in your treatment, and if you read My Story you'll know I didn't adapt straight away either.  Also check out the Blog www.sleepapnoeablog.com

Best Wishes

Kath

At 20:19 on July 27, 2012, Jan Johnson said…

Dear Grace

I was diagnosed just about a year ago, but unlike you, I was falling asleep at work and sometimes even mid sentence when talking to someone. Still wasn't bothered until I was questioned by a physician in some depth, when I was having an assessment for an operation. I went for my trial sleep over test using a mask, and that was that,  I became a CPAP user. Don't get me wrong, I hated wearing it and threw the mask across the room on more that one occassion and cried a lot, but I knew I would never be able to have the operation I so needed to have because the anaesthetist had already told me I had only a 1 in 100 chance of survival after the op, without  using the CPAP. So.. I persevered, but still ripped the mask off as soon as I awoke, even if it was 4 in the morning, which I now realize was silly of me to fall asleep again without it on. Eventually I got used to it and now call it my sleeping tablet. I have a good 8 hours sleep each night, never wake up, unless the dog jumps on me, but I can honestly say.......I DO NOT feel as refreshed as everyone says I should feel, I'm just pleased to have had a nights sleep, and even more pleased to wake up the next day, because without, you may not!  Yes I did have my operation in February this year, and took all my equipment into hospital with me. I hoped that the operation I had would have helped towards my not having Sleep Apnoea any more and could do away with the equipment, but after learning, just recently, how many apnoeas I had on average an hour [127] it will now become my lifelong friend.

I hope this might have helped you a little, and Kath is always there to give you all the benefit of her knowledge or just an email hug, whenever you need it.

Feel free to keep in touch my email if you would like it is:- lady.jan13@btinternet.com

Best wishes  Jan

At 23:00 on July 26, 2012, Jan Johnson said…

Hi Grace, welcome to the world of sleep apnoea. Where in Kent do you live. I live in East Peckham, near Tonbridge.

At 11:51 on July 14, 2012, Kath Hope said…

Welcome to the Forum Grace, and hope you find it beneficial to you.  Feel free to introduce yourself to the others on this post http://hope2sleepguide.co.uk/forum/topics/welcome-from-kath-mike

Best Wishes and Good Sleep!

Kath

 
 
 

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Latest Activity

jjimjam updated their profile
Apr 17
Kath Hope replied to Becky Murkin's discussion noisy humidifier normal?
"It sounds like you're getting rainout issues (condensation) so here's an article to help with this. www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout"
Apr 16
Becky Murkin posted a discussion

noisy humidifier normal?

Hello,I have an air sense 10 auto.When I have the humidifier and the heated tube plugged in it makes a sort of drumming noise. Like that at the gallows in films.Is this normal? It wakes me up  and I have to give up and switch off  for the night.See More
Apr 16
John posted a discussion

Dentists in Hull that know about Mewing ?

I was wondering if there are any dentists in Hull who know about John & Mike Mew, and changing jaw shape over time?I could add that I saw an ENT consultant recently and she said jaw shape, malocclusion, is genetic, which has become a debatable…See More
Apr 9
Profile IconKaren Mcleod, Fiona Watson, Teresa Hobbs and 5 more joined Hope2SleepGuide
Apr 3
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"I did replace the tank in my SleepCube, and had to regularly take the silicone sealing gasket out and give it a goof clean, but not infrequently found it standing in a pool of water in the morning.  The machine sat on a tray because of…"
Mar 26
John posted a discussion

Nasal valve collapse

Does anyone have any experience of nasal valve collapse?Wondering if I have this but I don't know what the norm is.Been trying widgets that hold the nose open and it's like night and day.See More
Mar 24
John replied to John's discussion Airsense 10 -humidifier runs dry
"Wow it's the other way round for me.I found with the Sleepcube I'd often have a good bit of water still there in the morning. Today I woke up with a dry tank on the Resmed again and it's not on full heat or flow. I got it on 6…"
Mar 24
Becky Murkin posted a discussion

F20 AirFit small marking bridge of nose

Please help or give advice all wise people on here.I have had the Resmed F20 AirFit small mask for over a month. Seals yet…See More
Mar 19
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"A very helpful reply Jonathan. I found the pressure setting for the full face mask to be too high when I changed to a nasal mask, but perhaps I should have persisted? I'll try again and I'll also discuss with the clinic whether an APAP…"
Mar 13
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Ramble alert!  My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu.  This was a very long time…"
Mar 12
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Thanks Jonathan - I had seen the YouTube video. My question is really about the experience of people who have control of their pressure settings, for example those people who have bought their machines directly and not obtained them through an NHS…"
Mar 12
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"This is NOT a recommendation http://www.youtube.com/watch?v=VNUWhd2UgQM"
Mar 11
Frances Knight posted a discussion

Air Sense 10 - changing pressure settings

I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this week and have been told there is no need for further appointments and just to contact them if I need supplies or…See More
Mar 11
Swen Greve is now a member of Hope2SleepGuide
Mar 4
Jonathan replied to Sue Reeves's discussion A few questions..
"If you have a helpful GP, I would ask them to re-refer you to the sleep clinic."
Mar 3
Sue Reeves posted a discussion

A few questions..

A quick bit of backgroundDiagnosed with OSA about 7/8 years ago by my local sleep clinic and given a F &P Icon CPAP.  After a couple of follow-up appts to sort out any issues, I was sent on my merry way. I have had no further face to face…See More
Mar 3
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"I previously had a DeVilbiss Sleepcube and the dehumidifier did sometimes run dry.  On the other hand I now have an AirSense 10 and it never runs dry, and I've had the humidity turned up high."
Feb 26
John posted a discussion

Airsense 10 -humidifier runs dry

Hi. I'm finding the Airsense 10 the hospital gave me, the humidifier chamber runs dry. It's not even on max settings, which I'm guessing would empty it a lot quicker. Seems like a big design oversight to me. Does anyone else have this trouble? The…See More
Feb 26
David Hudson posted a discussion

Decline in hearing

HiI have regular, well yearly check ups at work. One being a hearing test. Since having my cpap machine my hearing has declined rapidly in 1 ear.....could this be as a result of pressure? I believe I'm on 15cm p max h2o. I just use a nasal…See More
Feb 26

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