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thatbloke
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  • Hampshire
  • United Kingdom
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Having major trouble and getting very frustrated trying to use CPAP machine - help?
11 Replies

I have, for a number of years, had problems sleeping. Although I'd (most of the time) sleep for a normal amount of time (7-9 hours), I'd frequently wake up feeling like I hadn't slept at all. About 3…Continue

Started this discussion. Last reply by Sleep2snore Aug 16, 2020.

 

thatbloke's Page

Latest Activity

Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
Aug 16, 2020
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"This came to a head a couple of weeks back where, even while just sat in front of my computer at home, I felt like I wasn't breathing properly, even with none of this going on - I was having to manually breathe. I got tested for covid that day…"
Aug 16, 2020
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"With the last point in mind, because I never feel like I'm breathing "normally" with the mask on, I then end up taking over and "manually" trying to concentrate on my breathing with it on. This, of course, means that…"
Aug 16, 2020
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"Note that this feeling of not breathing properly also happens even if I put the mask on for a bit during the day, just to try to get used to it. I simply do not ever feel like I'm taking in enough air when I breathe in, and therefore have to…"
Aug 16, 2020
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"Additionally, with the mask on, within literally about 5 breaths, my mouth becomes drier than the sahara desert - You NEED a HUMIDIFIER."
Aug 16, 2020
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"While having the mask on, I don't ever feel like when I'm breathing in, that I'm actually taking in enough air. It feels like the mask pushes my lower jaw and my lips into a certain position that then prevents my normal breathing from…"
Aug 16, 2020
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"I lost my last post, but there are many types of mask. Cloth full-faced - Changing settings - http://www.youtube.com/watch?v=vHkJuuZuhfc  (Now I have to say you should not change your settings, but my mate got a new machine like this and the…"
Aug 16, 2020
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
""I tried using the machine every night, as instructed, but typically after 1-2 hours of having the mask on I'd have to take it off and then sleep without it as I previously did. This went on for about 3 weeks before I just stopped using…"
Aug 16, 2020
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"Yeah, ok, I did get your cry for help. I see you have no humidifier, I would strongly suggest you get one, most people I know can't get past 2 to 4 hours without one. They feel all dry in the airways and feel they can't breath.  If…"
Aug 16, 2020
thatbloke replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"Hi, thanks for your reply. I'm located in the Portsmouth area. In response to your questions: Type of machine - Resmad Autosense Humidifier - none Mask type - Full face Model of mask - Resmed airfit F20 medium Full faced - yes Nasal - see…"
Aug 15, 2020
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"I could suggest a lot of things to try to help, but there is a lack of information. Type of machine - Resmad Autosense OK] Humidifier - ?  Have you got one with the machine? Mask type - ? Model of mask - ? Full faced - ? Nasal - ? Nasal Pillows…"
Aug 13, 2020
thatbloke posted a discussion

Having major trouble and getting very frustrated trying to use CPAP machine - help?

I have, for a number of years, had problems sleeping. Although I'd (most of the time) sleep for a normal amount of time (7-9 hours), I'd frequently wake up feeling like I hadn't slept at all. About 3 years ago I met a woman who now would be my wife if we didn't have to postpone it, and she confirmed that I have a major snoring problem (I knew this already) and that frequently I could stop breathing entirely at points while sleeping. At the start of this year, it got markedly worse and on…See More
Aug 12, 2020
thatbloke is now a member of Hope2SleepGuide
Aug 1, 2020

Profile Information

Treatment Being Used, if any?
Auto-Adjusting CPAP
If Machine Being Used, What Make or Model?
ResMed airsense 10 autoset
If Mask Being Used, What Type or Name?
Resmed airfit f20 (size M)

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Latest Activity

Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers.  There was no remote monitoring and…"
9 minutes ago
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
23 hours ago
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi. I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs.  I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring. I am…"
23 hours ago
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi Jonathan, did you do that through PatientKnowsBest?"
23 hours ago
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic. On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276 Your machine may be under-reporting. Good…"
yesterday
John posted a discussion

Wellu O2 Ring - is it accurate enough for the medics?

Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
Tuesday
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi, Just thought I'd give an update.  So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study.  My AHI is now 6, down from over 30, so I'm…"
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John replied to Sally Gray's discussion Microplastics risks
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Oct 7
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
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