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Sleep2snore
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  • Aberdeen
  • United Kingdom
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Latest Activity

Sleep2snore replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
Mar 23, 2021
Sleep2snore replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Either they have not set your minimum pressure and the machine is slowly finding the level you require, or they have not set up a minimum pressure. I don't know how or if they set your machine up, but my mate got one and under Covid rules they…"
Mar 23, 2021
Sleep2snore replied to Amanda S's discussion Which is the best sleep apnoea test?
"He really needs the attitude that if he is given a machine or a trial "This is going to work for came hell or high water!"  though it is not easy getting started or used to a CPAP machine.  Sometimes you just need to keep…"
Aug 17, 2020
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
Aug 16, 2020
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"This came to a head a couple of weeks back where, even while just sat in front of my computer at home, I felt like I wasn't breathing properly, even with none of this going on - I was having to manually breathe. I got tested for covid that day…"
Aug 16, 2020
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"With the last point in mind, because I never feel like I'm breathing "normally" with the mask on, I then end up taking over and "manually" trying to concentrate on my breathing with it on. This, of course, means that…"
Aug 16, 2020
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"Note that this feeling of not breathing properly also happens even if I put the mask on for a bit during the day, just to try to get used to it. I simply do not ever feel like I'm taking in enough air when I breathe in, and therefore have to…"
Aug 16, 2020
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"Additionally, with the mask on, within literally about 5 breaths, my mouth becomes drier than the sahara desert - You NEED a HUMIDIFIER."
Aug 16, 2020
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"While having the mask on, I don't ever feel like when I'm breathing in, that I'm actually taking in enough air. It feels like the mask pushes my lower jaw and my lips into a certain position that then prevents my normal breathing from…"
Aug 16, 2020
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"I lost my last post, but there are many types of mask. Cloth full-faced - Changing settings - http://www.youtube.com/watch?v=vHkJuuZuhfc  (Now I have to say you should not change your settings, but my mate got a new machine like this and the…"
Aug 16, 2020
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
""I tried using the machine every night, as instructed, but typically after 1-2 hours of having the mask on I'd have to take it off and then sleep without it as I previously did. This went on for about 3 weeks before I just stopped using…"
Aug 16, 2020
Sleep2snore replied to thatbloke's discussion Having major trouble and getting very frustrated trying to use CPAP machine - help?
"Yeah, ok, I did get your cry for help. I see you have no humidifier, I would strongly suggest you get one, most people I know can't get past 2 to 4 hours without one. They feel all dry in the airways and feel they can't breath.  If…"
Aug 16, 2020
Sleep2snore replied to David's discussion Breas Z1 cpap machine error 33,
"Poor service, did they say whet the error was? I would go elsewhere."
Aug 13, 2020
Sleep2snore replied to Amanda S's discussion Which is the best sleep apnoea test?
"The best test is one you need help to get all connected up to, it can be done at home but is very expensive to hire the machine.  Best to do a study over two nights, though it costs to do this.  Kath I think does sleep studies, but then…"
Aug 13, 2020
Sleep2snore replied to Mark's discussion Help! I'm not sure where to turn anymore.
"Be careful with ENT as some jump into offering operations that are very painful and if they work at all only work for a short time.  Take a lot of time to think about it if offered one.  It is a good idea to get checked out for polyps and…"
Aug 13, 2020
Sleep2snore replied to Stuart Adrian Gillespie's discussion I'm so worried about my Health condition and putting on weight.
"Stuart, I don't know how long you have been using your machine, or what type or make of machine you have, but a lot of the modern machine have data cards in them that read the data from your sleep.  This can be read by software that is in…"
Aug 13, 2020

Profile Information

Treatment Being Used, if any?
CPAP
If Machine Being Used, What Make or Model?
Resmed C-flex
If Mask Being Used, What Type or Name?
Adam Nasal Pillows

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Latest Activity

Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"A very helpful reply Jonathan. I found the pressure setting for the full face mask to be too high when I changed to a nasal mask, but perhaps I should have persisted? I'll try again and I'll also discuss with the clinic whether an APAP…"
Wednesday
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Ramble alert!  My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu.  This was a very long time…"
Mar 12
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Thanks Jonathan - I had seen the YouTube video. My question is really about the experience of people who have control of their pressure settings, for example those people who have bought their machines directly and not obtained them through an NHS…"
Mar 12
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"This is NOT a recommendation http://www.youtube.com/watch?v=VNUWhd2UgQM"
Mar 11
Frances Knight posted a discussion

Air Sense 10 - changing pressure settings

I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this week and have been told there is no need for further appointments and just to contact them if I need supplies or…See More
Mar 11
Swen Greve is now a member of Hope2SleepGuide
Mar 4
Jonathan replied to Sue Reeves's discussion A few questions..
"If you have a helpful GP, I would ask them to re-refer you to the sleep clinic."
Mar 3
Sue Reeves posted a discussion

A few questions..

A quick bit of backgroundDiagnosed with OSA about 7/8 years ago by my local sleep clinic and given a F &P Icon CPAP.  After a couple of follow-up appts to sort out any issues, I was sent on my merry way. I have had no further face to face…See More
Mar 3
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"I previously had a DeVilbiss Sleepcube and the dehumidifier did sometimes run dry.  On the other hand I now have an AirSense 10 and it never runs dry, and I've had the humidity turned up high."
Feb 26
John posted a discussion

Airsense 10 -humidifier runs dry

Hi. I'm finding the Airsense 10 the hospital gave me, the humidifier chamber runs dry. It's not even on max settings, which I'm guessing would empty it a lot quicker. Seems like a big design oversight to me. Does anyone else have this trouble? The…See More
Feb 26
David Hudson posted a discussion

Decline in hearing

HiI have regular, well yearly check ups at work. One being a hearing test. Since having my cpap machine my hearing has declined rapidly in 1 ear.....could this be as a result of pressure? I believe I'm on 15cm p max h2o. I just use a nasal…See More
Feb 26
Profile Icontim richards, mark & les, Lesley Parks and 1 more joined Hope2SleepGuide
Feb 13
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"I've got lucky! I can collect a new machine next week. It's been really helpful to 'speak' to people here and to Kath. It alerted me to the fact that I'd slipped through the net. The clinic were very apologetic and now all…"
Feb 8
Ejog1 replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"Thanks. Good news for me today, my clinic did finally reply to me and they’re giving me a new machine. The person I spoke to was super helpful. The NHS clinics are great when you’re able to speak to them, but they seem to be…"
Feb 7
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"Yes, my machine is affected. Seems I slipped through the net. I'm now on the sleep clinic's radar again and am hopeful that this will be sorted soon. Thanks for your reply and stay well."
Feb 7
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"I'm sorry to hear that. I emailed Kath about this and she was very helpful. She advised me to get in touch with my sleep clinic and I have had a reply from them. I so hope that you get a response soon."
Feb 7
Jonathan replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"Hello It seems you can check with Philips Respironics whether your machine is affected by the recall https://www.philipssrcupdate.expertinquiry.com/?ulang=en Hopefully it's not one of the problem machines, and at least you will know that your…"
Feb 5
Jonathan replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hello, I was diagnosed about the same time as you, and also found CPAP therapy live-changing.  My original machine was an NHS issue Respironics, with no reporting or logging of data.  After a throat infection which wouldn't go away, I…"
Feb 5
Ejog1 replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"I can’t offer any advice but I sympathise with the feeling of being abandoned. I got given my current Resmed machine about 8 or 9 years ago by my clinic, and I think it’s overdue replacement, but I can’t get a reply from my clinic,…"
Feb 5
Ejog1 replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi,  thanks for approving my application to the forum. I was first diagnosed in 2007 although for many years I had been suffering from extreme tiredness, and my snoring and stunted breathing at night was often joked about amongst friends and…"
Feb 5

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