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Sleep2snore
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  • Aberdeen
  • United Kingdom
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Latest Activity

Sleep2snore replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"They have reduced it to far.  The max was 16, they should have left the machine at 18 if it is an APAP (automatic pressure) if it is a CPAP you have now same applies.  However, it might not be quite that straight forward as that as the…"
Wednesday
Sleep2snore replied to Chris Vesey's discussion Medistron batteries
"They are very costly things to have sitting around to go wrong or if you forget to charge them by their date. You could try to see if they will do it on a sale or return basis, them you could keep one or two.  However, I think most are ordering…"
Tuesday
Sleep2snore replied to Chris Vesey's discussion Medistron batteries
"I wish the ResMed was 12Vdc, it would make life a lot easier. I wonder why they need 24Vdc anyway? My APAP is not mine to and see why it has to be 24Vdc! I don't think the clinic might be to impressed if I opened it for a look. "
May 14
Sleep2snore replied to Edam's discussion Double inhaling
"I would like to see how the hospital is going to explain that your Apnoea is getting worse with an AHU of 0. That is almost incompetent. It might also be that it is not straight forward Sleep Apnoea you have and might benefit from an advanced…"
May 14
Sleep2snore replied to Edam's discussion Double inhaling
"It is a machine and if you have COPD and suffer from hay fever and asthma it will cause problems that you will have to find a work around for.  Looks like you have already found one that helps. It is very much a case of experiment and see. "
May 11
Sleep2snore replied to Edam's discussion Double inhaling
"Just wondering if your airways are drying out causing asthma attack or whatever you are having. It does not need a lot of dryness to make me wake up in a bit of a panic and struggling to breathe. I have the humidifier 2/3rds up at least and on dry…"
May 7
Sleep2snore replied to Edam's discussion Double inhaling
"Experimentation is the name of the game at times. If you find the answer let us know. I think the machine is misinterpreting how you are responding.  After all it is just a machine and is only as good as the software in it."
May 6
Sleep2snore replied to Helen Page's discussion Another newbie with a gazillion questions
"DVLA can be a bit tricky at times, but it is the wait before you get a machine and become compliant that is the biggest problem. The only way round this is to get a prescription from the clinic and buy your own machine, though these are not…"
May 3
Sleep2snore replied to Edam's discussion Double inhaling
"Why is it going up to 20 in the first place, most people do not need such a high pressure. I think you need to get the machine checked. You have a strange flow pattern, I have seen that before but for the life of me I can't get my memory to…"
May 3
Sleep2snore replied to Dave Cheeseman's discussion New diagnosis!
"If you do buy one make sure you get a good one and ask if they will look after it if you do buy one. Some clinics will supply filters and check it every year after the warranty is out.  They might even repair and give you a loan machine. …"
Apr 17
Sleep2snore replied to Ruth Furniss's discussion New to cpap
"It is quite normal, some feel it interrupts sleep due to using the machine and mask, turning over can disturb you with the mask moving and leaks.  Give it a month or two and you should start to feel a lot better.  If not contact your Sleep…"
Apr 17
Sleep2snore replied to Mathura Dutt Kalauny's discussion Pressure difference between Resmed S8 Vs Breas Z1
"It may be just responding a bit quicker or just suits you better. It amazes me that anything so small can produce enough pressure to work in the first place. I wouldn't worry about unless you start to feel it is not keeping you feeling…"
Apr 17
Sleep2snore replied to Edam's discussion Changing hospital
"Ok, that makes a difference, you might find one hospital uses ResMed and the other Philips. Some do keep a better stock of masks than others though."
Mar 21
Sleep2snore replied to Simon Carr's discussion International Travel with CPAP
"Most security know what a CPAP machine is these days, however, these are points to watch for: Let the airline know you have a CPAP machine and inform them it will have to come in the cabin as hand luggage. Do NOT put it in the hold, it might end up…"
Mar 21
Sleep2snore replied to Savannah A.'s discussion Sleep Centre in UK that measures UARS
"That is a difficult one, but if you have a Polysomnography done a good Sleep Doctor should spot the signs, however, it is often missed unless the patient mentions it or ENT (if you attended there first before referral) suspects you might have…"
Mar 16
Sleep2snore replied to ROBERT O'BRIEN's discussion c pap mask
"Yes, masks for one person do not mean they are for everyone, getting a supplier to give ou a refund if it is not suitable is good, but trying it on and lying down with your machine on for an hour or so is the only real way of trying a mask. …"
Mar 16

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea
Treatment Being Used, If Any
CPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Resmed C-flex
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Adam Nasal Pillows

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Latest Activity

John Wilkinson replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Thanks for your advice. I really appreciate your help. I wasn't aware that there different types of apnoeas. I will be seeing the sleep nurse next week. I will keep you informed. John "
Thursday
John Wilkinson replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Thanks for that Kath. I am due to see the sleep clinic next week. Hopefully they will re-adjust the pressure. I will keep you informed. John"
Thursday
Edam replied to Edam's discussion Double inhaling
"I have read that APAP machines are not suitable for people with Asthma and give the same problems that I have been having. I am now having to use twice the dose of steriods just to keep the APAP happy If I can ever get in touch with my hospital I…"
Thursday
Kath Hope replied to Chris Vesey's discussion Medistron batteries
"Thanks Chris and we certainly are doing our homework Sleep2Snore.  Our charity work hard to get the right products at the right price for our fellow sufferers, and we have lots of loyal customers who purchase from us both to support the charity…"
Thursday
Kath Hope replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Sorry to hear after a good start you've taken a step backwards, and it could well be due to the reduction in pressure.  We don't recommend adjusting pressures but you're right to contact your hospital who will probably re-adjust…"
Thursday
Sleep2snore replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"They have reduced it to far.  The max was 16, they should have left the machine at 18 if it is an APAP (automatic pressure) if it is a CPAP you have now same applies.  However, it might not be quite that straight forward as that as the…"
Wednesday
John Wilkinson posted a discussion

I've 'hit a wall' can any body help me?

I was diagnosed with severe OSA in November and I have been using a Philips Respironics CPAP machine and full face mask from early December up to now (about 5 months). My HPI's went down from 44 to about  14 in about 10 weeks and I was feeling much…See More
Wednesday
Sleep2snore replied to Chris Vesey's discussion Medistron batteries
"They are very costly things to have sitting around to go wrong or if you forget to charge them by their date. You could try to see if they will do it on a sale or return basis, them you could keep one or two.  However, I think most are ordering…"
Tuesday
Chris Vesey replied to Chris Vesey's discussion Medistron batteries
"Hi, I see from medistrom website they are looking for dealers, is it worth considering Kath"
Tuesday
Sleep2snore replied to Chris Vesey's discussion Medistron batteries
"I wish the ResMed was 12Vdc, it would make life a lot easier. I wonder why they need 24Vdc anyway? My APAP is not mine to and see why it has to be 24Vdc! I don't think the clinic might be to impressed if I opened it for a look. "
May 14
Sleep2snore replied to Edam's discussion Double inhaling
"I would like to see how the hospital is going to explain that your Apnoea is getting worse with an AHU of 0. That is almost incompetent. It might also be that it is not straight forward Sleep Apnoea you have and might benefit from an advanced…"
May 14
Chris Vesey replied to Chris Vesey's discussion Medistron batteries
"hi, just looked on internet, it seems that medistrom may not have a dealer in the uk but a company called sleep tight advertise the pilot 24 for £345, don't know about the co pilot. The very expensive one on amazon comes from Israel, good…"
May 13
Chris Vesey replied to Chris Vesey's discussion Medistron batteries
"hi, at the time amazon were selling the pilot for £285 and the co pilot for £137, gone up a lot since then chris"
May 13
Edam replied to Edam's discussion Double inhaling
"I have read that if you have Asthma a CPAP is better than a APAP  When the APAP increases the pressure it makes the asthma worse and then the APAP increases the pressure again which makes the asthma even worse ..... This is exactly whats…"
May 13
Kath Hope replied to Chris Vesey's discussion Medistron batteries
"Chris why did you purchase Medistrom as opposed to the Resmed battery?  Don't get me wrong as I've heard great things about the Medistrom and recommended it myself to people, but looking at the prices it seems just as or even more…"
May 13
Chris Vesey posted a discussion

Medistron batteries

Hi,I bought a pilot and co pilot set up a few months ago and have recently been trying them out. I have found by trial and error the following,First switch off all humidifiers etc.Switch to airplane mode, this reduces the amount of battery power…See More
May 13
Emma Bennett is now a member of Hope2SleepGuide
May 13
Chris Vesey replied to Helen Page's discussion Another newbie with a gazillion questions
"Hi, I informed the dvla by post using the relevant form they sent me. When the form arrived i was warned that i needed to return it within 14 days! As it takes a week for any dvla letter to arrive i was not amused. Even though i had started…"
May 12
Edam replied to Edam's discussion Double inhaling
"You are right about needing the extra humidity. Its been very dry lately , I measured it at 39%RH,  so I will start to us the "Warm Up" on the H5i to get the humidity up straight away On my last visit to the hospital I was told that…"
May 11
Sleep2snore replied to Edam's discussion Double inhaling
"It is a machine and if you have COPD and suffer from hay fever and asthma it will cause problems that you will have to find a work around for.  Looks like you have already found one that helps. It is very much a case of experiment and see. "
May 11

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