Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

The following are my own tips in helping with my own treatment, and are not meant as a substitute for medical advice. However, I hope they prove useful. 


CPAP/APAP/BIPAP TOLERANCE PROBLEMS

A lot of people find it hard to tolerate their equipment at first, so it's a good idea to set it up during the day whilst relaxing, such as watching tv, to practise using it, rather than waiting for bedtime when you have no other distractions. If you need daytime naps, use it during these too for shorter periods. Practise wearing the mask only, without attaching it to the CPAP, to get used to it. Remember most people take at least 2 weeks to get accustomed to using their masks and machines (some a lot longer), so this is very 'normal' and you are not alone in this!


MASK LEAKS

A good mask seal is imperative for successful treatment and there are several reasons why your mask may be losing it's seal so here's some causes and fixes:-

  • Ensure it is correctly fitted, especially if you are using an APAP (where the pressure raises automatically when apnoeas are detected).  When fitting the mask, lay down and have the mask loosely attached to your face.  Set the CPAP/APAP on the highest setting it has been set for you, and whilst the air is blowing, fasten the straps, just enough to create a seal, making sure it's not too tight.
  • Daily cleaning the mask seal is so important, as facial oils left on it will cause mask leaks.  Contrary to even manufacturers advice, cleaning the masks in detergents such as Fairy Liquid is not adequate, as the extra conditioners that 'leave hands soft' etc., eventually build up a film on the mask seal.  This is why I use the CPAP Mask Wipes and Sprays, and why most people after having tried them continue to use them.  Vinegar diluted in water is also good, but the after-smell isn't!
  • Have you got the correct size of mask?  Ordering a mask online without having tried it on is risky, but thankfully a lot of sleep clinics now carry a wide range of masks for you to try.  Bear in mind the best position for trying on a mask is laid down in your sleeping position - preferably with the CPAP switched on.
  • Another problem which causes mask leaks is the hose dragging on the mask.  Try to get the hose elevated about your head (which is also very necessary if using a humidifier to prevent 'rainout').  The best invention ever, in my opinion, for CPAP is the Hose Lift for this purpose, and often this alone stops mask leaks for numerous people.

 

NASAL + FACE ITCHING

Keep a straw or something similar by the side of your bed for those annoying itches caused through the air blowing. Use the straw to scratch the itch rather than risk losing the seal on the mask and having to start all over again.  A lot of people find that moisturising their nose with the CPAP Moisture Therapy Cream

helps with this.   DO NOT any cream containing petroleum jelly, mineral oil, paraffin or alcohol (see this blog why-not-to-use-petroleum-jelly-with-cpap-bipap-ventilator-masks/).  The CPAP Cream is safe with the masks and for inhalation.


DRY MOUTH

A CPAP Humidifier normally helps with this, but if you still have a dry mouth, keep a bottle of water by your bed (saves spilling a glass of water near your machine) and take just enough water to wet your mouth, as drinking can cause you to inhale any liquid (or food) if taken too close to your sleep time.


MASK MARKS

Assuming you have tried everything to avoid getting marks in the first place (like not over-tightening your straps and using the CPAP Strap Covers in the shop), and you still have marks on your face do not panic! At first sight after removing your mask the marks will be worse, but the majority of them will diminish fairly quickly, depending on your age and skin's elasticity. For any remaining marks, rub your skin with your fingers in circular movements to increase the blood flow and stretch the marked skin. Splash your face with cool water and pat dry with a towel. For further help it's now a good idea to moisturise your skin - perhaps even with the night cream you don't use now due to wearing the mask. You can even try skin plumping creams that are now widely available. Finally, you can use skin concealers and foundation, but choose powder based ones, as liquid ones can get into the creases and make the marks look worse!


PROBLEMS READING WITH CPAP MASK ON

If you're like me, and read to wind down in bed, then you may come against problems if you need to use glasses to read. I tried many times to read before I put the mask on, but found myself often falling asleep with the book in my hand and no mask on - not a good idea! I bought a magnifying glass, which helped, but made my arm ache holding it, as you need a fairly large one. I then discovered E-Book Readers. They're not cheap, but worth their weight in gold, but then you may have trouble choosing the right one for you. Well, I've now owned 3 different ones and my absolute favourite is the Amazon Kindle.  The font sizes can be increased so I can read without my glasses, and also the Kindle can read to you either audibly or via headphones.

Check out another blog about magnetic reading glasses, which I've yet to try, but they sound good.


 

WATER COLLECTING IN THE HOUSE - KNOWN AS 'RAINOUT'

When you use a humidifier, sometimes water collects in the hose and can run into your mask, and this is not pleasant!  The two best ways to prevent this are:-

  • Keep your hose insulated, and the easiest way to do this is with the Hose Covers.  These not only help with this problem, but they also create a soft warm feel to the outside of the tube as the plastic can feel cold against your skin - especially in the colder months
  • The Hose Lift, in my opinion, should be part of our equipment and when most people get one, they wonder how they ever managed without one!  It elevates the hose above your head, and gravity prevents any water from collecting in the tube.  The other main benefit to the Hose Lift is that you are free to toss and turn without the tube tugging on your mask.

Views: 460

Comments are closed for this blog post

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Profile Iconsharon and Penny Harrison joined Hope2SleepGuide
Saturday
jjimjam is now a member of Hope2SleepGuide
Thursday
Sleep2snore replied to Bethany's discussion Help for the hubby
"The two things that come to mind is diabetes and low blood pressure.  Though I think they would have checked for diabetes, a sudden drop in blood pressure is more difficult to catch.  Has he had his heart checked?  Also there is a…"
Jun 12
Bethany replied to Bethany's discussion Help for the hubby
"Thank you for the welcome.  It can get very frustrating, especially when we hear stories like yours with a very long fight before getting any actual diagnosis. We have feeling that we are also going to be on a very long road before we find…"
Jun 8
Bethany replied to Bethany's discussion Help for the hubby
"His CPAP machine is currently set at 7.5cmph, it was originally a little lower but after his check up they advised to increase it. He has follow ups with a sleep doctor every 3 months for the first year (unless we are having problems then we can go…"
Jun 8
Vivienne Roberts added 2 discussions to the group Buy-Sell-Swap
Jun 6
Vivienne Roberts joined The SleepGuide Crew's group
Jun 6
Sleep2snore replied to Mags's discussion What is a good oxygen Oximeter
"You should have got the manual with the Airsense 10 Autoset? If you didn't get it AIRSENSE RANGE MANUAL . pdf"
Jun 6
Sleep2snore replied to Chris Vesey's discussion What pressures?
"I hope they set the low pressure up and that it is not left 4 to 20. I find a lot of people is given machines set up like this and that is not really good. It is not recommended that you shift the pressures on an NHS machine, the clinic will not be…"
Jun 6
Sleep2snore replied to Bethany's discussion Help for the hubby
"Is it a CPAP machine with a fixed pressure he has? It might be that a fixed pressure machine is not the right one for him or he may have a complicated Sleep Apnoea, in other words there are other things going on other than just his throat…"
Jun 6
Kath Hope replied to Chris Vesey's discussion What pressures?
"Hi Chris I think you mean 'APAP' rather than 'acap' and if so, it will have automatic pressures.  It's not really recommended to alter your own pressures, and people only usually do that in desperation if they…"
Jun 6
Kath Hope replied to Bethany's discussion Help for the hubby
"Welcome to our forum Bethany, but so sorry to read of what you're both going through.  Glad your husband's severe sleep apnoea got picked up finally and at least you know he's on good treatment for that.  However, it's…"
Jun 6
Profile IconVivienne Roberts, Bethany and Andrew Woo joined Hope2SleepGuide
Jun 6
Bethany posted a discussion

Help for the hubby

Hello everyone, I am hoping that maybe someone out there has been through what my husband is currently having to deal with. Three years ago my husband randomly collapsed at his place of work (hes an engineer and works with machinery so naturally him…See More
Jun 5
Chris Vesey posted a discussion

What pressures?

Hi,I was given my resmed airsense 10 by the hospital and instructed in its use. At no time were pressures mentioned and i have read of people altering the pressures. As mine is an acap does this mean that the pressure is set automatically by the…See More
Jun 4
Mags updated their profile
Jun 4
Mags replied to Mags's discussion What is a good oxygen Oximeter
"Thanks Kath Will have a look in the morning and let you know"
Jun 4
Kath Hope replied to Mags's discussion What is a good oxygen Oximeter
"The Airsense Autoset does show the data in you look in the 'Sleep Report' section on your screen you can then scroll down to AHI and should also be able to see leakage.  If you can't see the AHI then it means the hospital have…"
Jun 4
Mags replied to Mags's discussion What is a good oxygen Oximeter
"The Machine is Res Med AirSense 10 AutoSet"
Jun 3
Kath Hope replied to Mags's discussion What is a good oxygen Oximeter
"It does sound to me like the hospital perhaps don't realise what is out there to help us all  Margaret, because some of our hospitals even supply liners, and many that don't refer people to our charity for them.  I use them…"
Jun 3

© 2018   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service