Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this week and have been told there is no need for further appointments and just to contact them if I need supplies or there is any problem with the machine.

I have used both full face and nasal masks and established which pressure settings are required for each.

I would like the flexibility of switching between masks as required. For example, I usually use the full face mask (and this is good when I have a cold etc), but I used the nasal mask when I had recent mouth surgery.

I know from experience that if I phone the clinic to ask them to change the pressure it can take ages for them to respond.

When I asked if it was possible to have control of the pressure settings, they advised that this is done centrally. Though they also said some people have found out how to do it themselves!

Has anyone had experience of having control of the pressure settings?

I understand that central control is important when titrating the pressures in the early stages of treatment, but I know what suits me and would love to have the ability to change the setting.

Alternatively would an APAP machine solve the problem?

Any advice?

Views: 87

Reply to This

Replies to This Discussion

This is NOT a recommendation

https://www.youtube.com/watch?v=VNUWhd2UgQM

Thanks Jonathan - I had seen the YouTube video. My question is really about the experience of people who have control of their pressure settings, for example those people who have bought their machines directly and not obtained them through an NHS respiratory clinic. Presumably they set the pressures themselves?

Ramble alert!  My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu.  This was a very long time ago.  The NHS discharged me as self-managing, and in time I bought a DeVilbiss APAP and set my own min and max pressures, and monitored the data just fine.  For example I increased the minimum pressure from 4 to 6 (max was 13) as on 4 I didn't feel I was getting enough air if I had a cold.  Recently following unrelated surgery, they wanted me back under the sleep clinic, who issued me with a ResMed APAP which they control remotely.  At one point I tried changing the ramp up setting, but decided to put it back to the original setting.  The machine checks in with ResMed daily.  I don't know whether it reports any changes I have made, or conversely whether it overrides any settings I have changed.  In the early days of the new machine I had regular contact with the clinic to check the settings were working for me.  (In truth, the DeVilbiss ran at a much lower pressure and ramped up occasionally, whereas the ResMed with the same parameters runs at a much higher baseline.)  I am comfortable using some software called Oscar which lets me download data from both machines and gives much more detail than ResMed's MyAir.  (I power off the machine, take out the SD card, operate the write-protect switch on the card, and read the data using Oscar on my laptop.  I then un-write-protect the card, put it back in the machine, and power it up, and the machine is happy.)  So in summary, my situation is different as the masks I switch between (Sleepweaver and DreamWear) are similar, and my NHS machine is an APAP.  I wonder why you need a different air pressure with different masks, if they use the same hose diameter?  One to discuss with your sleep clinic if you can get hold of them.  May be suggest an APAP would be better if you require a pressure change when you switch masks.   But at the end of the day, if it were me, I would take responsibility for my own health and make the changes I require.  After all, that's what the sleep clinic did when they originally discharged me.  Good luck!

A very helpful reply Jonathan. I found the pressure setting for the full face mask to be too high when I changed to a nasal mask, but perhaps I should have persisted?

I'll try again and I'll also discuss with the clinic whether an APAP would be better.

Many Thanks! 

Jonathan said:

Ramble alert!  My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu.  This was a very long time ago.  The NHS discharged me as self-managing, and in time I bought a DeVilbiss APAP and set my own min and max pressures, and monitored the data just fine.  For example I increased the minimum pressure from 4 to 6 (max was 13) as on 4 I didn't feel I was getting enough air if I had a cold.  Recently following unrelated surgery, they wanted me back under the sleep clinic, who issued me with a ResMed APAP which they control remotely.  At one point I tried changing the ramp up setting, but decided to put it back to the original setting.  The machine checks in with ResMed daily.  I don't know whether it reports any changes I have made, or conversely whether it overrides any settings I have changed.  In the early days of the new machine I had regular contact with the clinic to check the settings were working for me.  (In truth, the DeVilbiss ran at a much lower pressure and ramped up occasionally, whereas the ResMed with the same parameters runs at a much higher baseline.)  I am comfortable using some software called Oscar which lets me download data from both machines and gives much more detail than ResMed's MyAir.  (I power off the machine, take out the SD card, operate the write-protect switch on the card, and read the data using Oscar on my laptop.  I then un-write-protect the card, put it back in the machine, and power it up, and the machine is happy.)  So in summary, my situation is different as the masks I switch between (Sleepweaver and DreamWear) are similar, and my NHS machine is an APAP.  I wonder why you need a different air pressure with different masks, if they use the same hose diameter?  One to discuss with your sleep clinic if you can get hold of them.  May be suggest an APAP would be better if you require a pressure change when you switch masks.   But at the end of the day, if it were me, I would take responsibility for my own health and make the changes I require.  After all, that's what the sleep clinic did when they originally discharged me.  Good luck!

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Kath Hope replied to John's discussion Oropharyngeal exercises
"I would always be guided by Dr Vik Veer, who is the UK's leading ENT surgeon specialising in snoring, sleep apnoea and UARS. He doesn't say the exercises will cure moderate to severe sleep apnoea, but can help by strengthening the airway…"
yesterday
Kath Hope replied to John's discussion A tale of two nasal dilators
"Good info thanks. I personally prefer nasal strips though."
yesterday
Tommas M is now a member of Hope2SleepGuide
Sunday
Irene Price is now a member of Hope2SleepGuide
Jun 11
John posted a discussion

A tale of two nasal dilators

Trying to get my nose to stay open, I've been experimenting with nasal dilators.So far I tried two types.- Generic tubes from ebay, 50p each- Fancy Airmax £10Both are moulded silicon rubber.I would say the packaging for the Airmax, which is really…See More
Jun 9
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"Dab hand with a sewing machine :)  The "stethoscope" pipes were detachable with a bit of careful persuasion."
Jun 8
John replied to John's discussion Airsense 10 -humidifier runs dry
"How did you fasten it?I suppose you could do it with tape or elastic bands. Cut up an old fleece jacket, wrap it round the tube, strap it up, bit of velcro. That sort of thing. I hadn't really thought of that."
Jun 8
John replied to John's discussion Airsense 10 -humidifier runs dry
"Come to think of it you could likely double up a hose cozy, one over another.This is a piece of N95 face mask I used for high grade filtration. I just put it where the filter usually goes.This is around 6 months dirt I would say, thereabouts. I used…"
Jun 8
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"Neat clip for your hose! I used to use the Respironics Comfort Curve one of the best masks ever, now discontinued of course.  With its stethoscope-style tubing, I had to make my own fleecy cover."
Jun 8
John replied to John's discussion Airsense 10 -humidifier runs dry
"Oh cool. Did you do any other DIY mods?I made a clamped strap to go on the headboard and lift the tube. Just a spare c-clamp with a bit of nylon strap and a clip but works well."
Jun 8
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"Yes, I bought some fleecy material and made my own "snuggle hose" 10+ years ago. "
Jun 8
John replied to John's discussion Airsense 10 -humidifier runs dry
"Did you try a sleeve for the tube, Jonathan? For rain out? I got one off ebay for a few quid and I think it helps. It's a fleece sleeve  you zip over the main tube."
Jun 7
John posted a discussion

Oropharyngeal exercises

I asked medics at the Castle Hill CPAP clinic about tongue and throat exercises. They said no evidence, and it can't work anyway because the muscles fully relax during sleep.Yet I'm watching Vik Veer, head of ENT at a London hospital, offer evidence…See More
Jun 7
John replied to John's discussion Nasal valve collapse
"Well I found out what the norm was by asking my doctor to do the Cottle maneuver on herself, and she said there was no difference with and without.Whereas for me it's massively different.The Cottle maneuver is where you pull the skin by the…"
May 31
John replied to John's discussion Short apneas - official definition
"It's a suspiciously round number I wonder how they arrived at it?I asked the People at Castle Hill and they didn't really enlighten me on it, but I was told that it's normal for people to have apnoeas, which I didn't know.I…"
May 31
Kath Hope replied to John's discussion Short apneas - official definition
"An apnoea or hypopnoea of less than 10 seconds won't be reported as an event, in the same way they're not reported on a sleep study, as that's the cut-off point."
May 31
Emma Matthews is now a member of Hope2SleepGuide
May 31
Anne Olson is now a member of Hope2SleepGuide
May 30
John posted a discussion

Short apneas - official definition

I'm reading the Resmed definition of apnea and hypopnia."Apnea" means "no breath." An apnea happens when you stop breathing for 10 seconds or longer during sleep."Hypopnea is a partial blockage of the airway (shallow breathing). During a hypopnea,…See More
May 22
Andy Griffiths is now a member of Hope2SleepGuide
May 20

© 2024   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service