Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

I have been using a BPAP Resmed S9 having been diagnosed with moderate level 4 years ago.   After an initial struggle for a couple of months everything was sorted with some help from Hope2Sleep.

For sometime before being diagnosed with sleep apnea I had had a triple bypass in 2009 (probably something to do with the undiagnosed sleep apnea) and suffered with breathlessness after a lung collapse during my op.

Anyway, I have just recently been diagnosed with Asbestosis and I have found that whilst on the machine the pressure and pain from the Asbestosis is totally relieved only to return within an hour of waking.

I reported the fact to my Respiratory Consultant who has now prescribed "Non invasive Ventilation" as part of my treatment - not that I needed persuading!   It then turned out that the consultant is on the panel at my Sleep Clinic and is arranging a further appointment to assess my BPAP settings.

Views: 189

Reply to This

Replies to This Discussion

Good stuff, I don;t think your By-pass surgery would have been due to Sleep Apnoea, though it wouldn't help when you were asleep not to be on treatment.

Did you work on building sites to get Asbestosis.

It scares me to think I used to walk past people cutting asbestos with a circular saw and the dust was terrible.

However, nothing has shown up in any scans, though they were not looking for that anyway.

I did have a shadow on my right lung, but it turned out to be pneumonia.

I was in hospital at the time, how do you get pneumonia when you are in a hospital.

Good to see the treatment is helping at night and you have a good consultant.

Glad to hear we've helped David, which is the primary purpose of our charity There has been lots of research with cardio issues and undiagnosed sleep apnoea, so I'm convinced the triple bypass will have been to do with your undiagnosed sleep apnoea.  Hindsight eh?  Many of the cardio consultants who are clued up with the link between sleep apnoea and cardio issues will automatically suggest people with heart problems have a sleep study, but sadly some aren't connecting the dots.  I have also had a pneumothorax (partly collapsed lung when undiagnosed with sleep apnoea).  Sorry to hear about your Asbestosis, and it makes sense that when you're on your BiPAP you'll be relieved of the symptoms.  You could also be retaining carbon dioxide, and the BiPAP will help with this.  Keep us posted re the Non-Invasive Ventilation.  I've been on ASV myself which did help with the co2 retention, but so does the VPAP.

Kath, thanks for the pointers on ASV will see what happens on the sleep study. Interesting point about CO2 retention, it was detected on my original sleep study that I was a CO2 retainer and a test was conducted which said it was mild, then again there was no symptoms of Asbestosis then. I was changed to BPAP and given the RESMED S9.

When I had the heart attack I was Insulin dependent type 2 Diabetic so another contributory factor? I have now been reclassified as a Late onset type 1 diabetic (LADA or Type 1.5 Diabetic) and obviously still Insulin dependent.

When I spoke to the Sleep clinic recently they told me they would look at other options and I needed to get my consultant to make a referral, that's been done and await an appointment.

Thanks for all that you do

I'm not knowledgeable on the link between diabetes and heart attacks, but both of them are definitely linked with sleep apnoea, and whilst type 2 is the main one, there has also been research into the link between sleep apnoea and type 1 diabetes.

They will need to check your blood gases to see if your co2 retention is worse now. Common symptoms are waking up sluggish or with headaches, despite CPAP.  They're unaware why I retain co2 and neuro are trying to fathom it out.  It's frustrating not knowing, but at least the VPAP is sorting it so I'm lucky in that way



Sleep2snore said:

Good stuff, I don;t think your By-pass surgery would have been due to Sleep Apnoea, though it wouldn't help when you were asleep not to be on treatment.

Did you work on building sites to get Asbestosis.

It scares me to think I used to walk past people cutting asbestos with a circular saw and the dust was terrible.

However, nothing has shown up in any scans, though they were not looking for that anyway.

I did have a shadow on my right lung, but it turned out to be pneumonia.

I was in hospital at the time, how do you get pneumonia when you are in a hospital.

Good to see the treatment is helping at night and you have a good consultant.

Thanks for your reply, as you will see from my response to Kaths reply I am also a Late Onset Type 1 Diabetic (LADA or type 1.5) and that may have well been a cause and I as 62 at the time so it all stacks up. Before the heart attack I also developed some breathing problems but did not do anything about it!

After the bypass (during which my left lung collapsed) I was diagnosed with COPD but this was a misdiagnosis I found out 7 years later.

As a result of the Heart Attack it was found that I had mild heart failure and this led to the investigations as to what was causing the breathing problems. A CT scan 4 years before had suggested Pulmonary Fibrosis and the latest in the middle of last year showed Asbestosis.

My exposure to asbestos is vague - 1. I was born in a Prefab (almost entirely made of Asbestos sheets) and 2. I was a regular soldier from age 15 until age 30 and a lot of barracks have lots of asbestos in them. There are many instance of people who have contracted Asbestosis with even mild exposure, teachers, some of them from the asbestos mats they used in science labs over bunsen burners! There is a recent petition by teachers demanding action to get asbestos out of schools today because they have an unusually high incidence of Asbestosis. You can see the relevance when you find that it can take anything between 40 and 70 years to develop.

I should have said I have never worked on a building site. I was a computer engineer and often visited sites where Asbestos was still obvious.

My consultant is setting up a sleep clinic appointment for me and hope that will be soon. My BPAP us doing a good job its just the daytime off the machine that's the problem!

Reply to Discussion

RSS

About

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
Aug 3
Alison Mitchell is now a member of Hope2SleepGuide
Jul 2
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27
Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14
Jonathan replied to Sally Gray's discussion ResMed AirMini for travel
"No personal experience, but CPAP.com review of AirMini The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
May 5
Sally Gray posted a discussion

ResMed AirMini for travel

I am considering either buying or renting an AirMini for a forthcoming holiday this month where I will be sharing a twin room. I have read that they’re quite noisy and I don’t want to waste my money on either rental or purchase if the noise level…See More
May 3
Sally Gray replied to Nick Daniel's discussion CPAP Total Face Mask
"Hi, I use a ResMed F20 and had the same issue with the silicone full face mask causing red marks and soreness on my nose bridge. I switched over to the Airtouch memory foam full face masks which are expensive and not supplied by the NHS, but the…"
May 3
Kath Hope replied to Glassdaisy's discussion Soft Cap
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Mar 27
Glassdaisy posted a discussion

Soft Cap

some time ago I was told that Hope2Sleep was researching a replacement for the discontinued Soft Cap.. as I have seen nothing to indicate moving forward on this, would I be right in assuming you decided it is no longer relevant?See More
Mar 27
Glassdaisy replied to Nick Daniel's discussion CPAP Total Face Mask
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
Mar 27
Wendy Anthony is now a member of Hope2SleepGuide
Mar 25
David McDade is now a member of Hope2SleepGuide
Jan 3

© 2025   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service