Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

I have been using a BPAP Resmed S9 having been diagnosed with moderate level 4 years ago.   After an initial struggle for a couple of months everything was sorted with some help from Hope2Sleep.

For sometime before being diagnosed with sleep apnea I had had a triple bypass in 2009 (probably something to do with the undiagnosed sleep apnea) and suffered with breathlessness after a lung collapse during my op.

Anyway, I have just recently been diagnosed with Asbestosis and I have found that whilst on the machine the pressure and pain from the Asbestosis is totally relieved only to return within an hour of waking.

I reported the fact to my Respiratory Consultant who has now prescribed "Non invasive Ventilation" as part of my treatment - not that I needed persuading!   It then turned out that the consultant is on the panel at my Sleep Clinic and is arranging a further appointment to assess my BPAP settings.

Views: 114

Reply to This

Replies to This Discussion

Good stuff, I don;t think your By-pass surgery would have been due to Sleep Apnoea, though it wouldn't help when you were asleep not to be on treatment.

Did you work on building sites to get Asbestosis.

It scares me to think I used to walk past people cutting asbestos with a circular saw and the dust was terrible.

However, nothing has shown up in any scans, though they were not looking for that anyway.

I did have a shadow on my right lung, but it turned out to be pneumonia.

I was in hospital at the time, how do you get pneumonia when you are in a hospital.

Good to see the treatment is helping at night and you have a good consultant.

Glad to hear we've helped David, which is the primary purpose of our charity There has been lots of research with cardio issues and undiagnosed sleep apnoea, so I'm convinced the triple bypass will have been to do with your undiagnosed sleep apnoea.  Hindsight eh?  Many of the cardio consultants who are clued up with the link between sleep apnoea and cardio issues will automatically suggest people with heart problems have a sleep study, but sadly some aren't connecting the dots.  I have also had a pneumothorax (partly collapsed lung when undiagnosed with sleep apnoea).  Sorry to hear about your Asbestosis, and it makes sense that when you're on your BiPAP you'll be relieved of the symptoms.  You could also be retaining carbon dioxide, and the BiPAP will help with this.  Keep us posted re the Non-Invasive Ventilation.  I've been on ASV myself which did help with the co2 retention, but so does the VPAP.

Kath, thanks for the pointers on ASV will see what happens on the sleep study. Interesting point about CO2 retention, it was detected on my original sleep study that I was a CO2 retainer and a test was conducted which said it was mild, then again there was no symptoms of Asbestosis then. I was changed to BPAP and given the RESMED S9.

When I had the heart attack I was Insulin dependent type 2 Diabetic so another contributory factor? I have now been reclassified as a Late onset type 1 diabetic (LADA or Type 1.5 Diabetic) and obviously still Insulin dependent.

When I spoke to the Sleep clinic recently they told me they would look at other options and I needed to get my consultant to make a referral, that's been done and await an appointment.

Thanks for all that you do

I'm not knowledgeable on the link between diabetes and heart attacks, but both of them are definitely linked with sleep apnoea, and whilst type 2 is the main one, there has also been research into the link between sleep apnoea and type 1 diabetes.

They will need to check your blood gases to see if your co2 retention is worse now. Common symptoms are waking up sluggish or with headaches, despite CPAP.  They're unaware why I retain co2 and neuro are trying to fathom it out.  It's frustrating not knowing, but at least the VPAP is sorting it so I'm lucky in that way



Sleep2snore said:

Good stuff, I don;t think your By-pass surgery would have been due to Sleep Apnoea, though it wouldn't help when you were asleep not to be on treatment.

Did you work on building sites to get Asbestosis.

It scares me to think I used to walk past people cutting asbestos with a circular saw and the dust was terrible.

However, nothing has shown up in any scans, though they were not looking for that anyway.

I did have a shadow on my right lung, but it turned out to be pneumonia.

I was in hospital at the time, how do you get pneumonia when you are in a hospital.

Good to see the treatment is helping at night and you have a good consultant.

Thanks for your reply, as you will see from my response to Kaths reply I am also a Late Onset Type 1 Diabetic (LADA or type 1.5) and that may have well been a cause and I as 62 at the time so it all stacks up. Before the heart attack I also developed some breathing problems but did not do anything about it!

After the bypass (during which my left lung collapsed) I was diagnosed with COPD but this was a misdiagnosis I found out 7 years later.

As a result of the Heart Attack it was found that I had mild heart failure and this led to the investigations as to what was causing the breathing problems. A CT scan 4 years before had suggested Pulmonary Fibrosis and the latest in the middle of last year showed Asbestosis.

My exposure to asbestos is vague - 1. I was born in a Prefab (almost entirely made of Asbestos sheets) and 2. I was a regular soldier from age 15 until age 30 and a lot of barracks have lots of asbestos in them. There are many instance of people who have contracted Asbestosis with even mild exposure, teachers, some of them from the asbestos mats they used in science labs over bunsen burners! There is a recent petition by teachers demanding action to get asbestos out of schools today because they have an unusually high incidence of Asbestosis. You can see the relevance when you find that it can take anything between 40 and 70 years to develop.

I should have said I have never worked on a building site. I was a computer engineer and often visited sites where Asbestos was still obvious.

My consultant is setting up a sleep clinic appointment for me and hope that will be soon. My BPAP us doing a good job its just the daytime off the machine that's the problem!

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Lily Mae updated their profile
1 hour ago
Profile IconKatherine Palmer and Lily Mae joined Hope2SleepGuide
2 hours ago
Judy Y posted a discussion

Sleep apnoea and TMJ

HiI have been using my cpap for about 20 months now. On the whole have got on with it reasonably well.About 6 months ago started to develop a clicking in my jaw (only on the right side) and sometimes could not open my mouth properly, It is quite…See More
Sunday
Janice gordon is now a member of Hope2SleepGuide
Apr 16
Mark A updated their profile
Apr 14
Mark A added a discussion to the group Buy-Sell-Swap
Thumbnail

Philips Dreamstation Auto CPAP APAP perfect condition with case and power supply

Bought this as a second machine for travel then changed jobs so didn’t use it doesn’t have the humidifier but you can buy them no hose or mask but bag etc with manuals …See More
Apr 14
Mark A joined The SleepGuide Crew's group
Apr 14
Edward Kahn added a discussion to the group Buy-Sell-Swap
Thumbnail

Resmed AutoSet S9

Selling a ResMed AutoSet S9Comes in a case with the power supply and a few extra tubesopen to offers and can post to UK + EuropeThanksplease email edd.kahn@gmail.comSee More
Apr 12
Eric Swindon replied to Beany Lad's discussion Advice Required, recently diagnosed with OSA
"That is great news. I tried again to message you but it said "You can't send a message until Beany Lad accepts your friend request." I can send you an unused nasal mask but it is unwise to quote addresses or private email addresses on…"
Apr 12
Beany Lad replied to Beany Lad's discussion Advice Required, recently diagnosed with OSA
"Hi Eric many thanks for your advice. Believe it or no after posting my story last night I think definitely managed to have the best night so far using the mask. After dropping off I did not find myself with a dry throat for the first time. I was…"
Apr 12
Eric Swindon replied to Beany Lad's discussion Advice Required, recently diagnosed with OSA
"Hi, I hope you read this tonight as I think I can help you. I tried to message you but we have to be friends first so my request will end up in your inbox. My first trials were at The Leicester General way back in the 1980's when sleep apnea…"
Apr 11
Beany Lad posted a discussion

Advice Require, recently diagnosed with OSA

Hi allI am so pleased I have come across this forum. To get the best advise I find it best to ask people who have the experience.My storyFor my work as a field based technical engineer I am required to drive long distances daily. Going back a few…See More
Apr 11
Beany Lad updated their profile
Apr 11
Edward Kahn joined The SleepGuide Crew's group
Apr 11
Profile IconEdward Kahn and Beany Lad joined Hope2SleepGuide
Apr 11
Richard lang is now a member of Hope2SleepGuide
Apr 6
Kevin Offland added a discussion to the group Buy-Sell-Swap
Thumbnail

SELLING PHILIPS DREAMSTATION AUTO CPAP

Philips Dreamstation only a few hours use comes with a Resmed mask all tubes power supply, instructions and bag it's in amazing condition no smoking home this is one of the best machines on the market open to sensible offers drop me a message or…See More
Mar 31
Kevin Offland joined The SleepGuide Crew's group
Mar 31
Kevin Offland posted a discussion

For sale Philips dreamstation

Philips dreamstation only a few hours used comes with a Resmed mask all tubes power supply, instructions and bag it's in…See More
Mar 26
Kevin Offland is now a member of Hope2SleepGuide
Mar 26

© 2019   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service