Sleep Apnoea Forum Bringing Help + Support to the Patient

Hello everyone,

I've not been on here for a while. I lost my mother just before Christmas to cancer. I'd been helping her through the treatment and since she passed I've been dealing with her estate, so my apologies for my absence.

Because of everything that has been going on, I hadn't looked at the data from my cpap machine in a while, so last week I re-installed the "Sleepyhead" program on my pc and put in the card. It showed that I have been getting lots of leaks! Odd thing was, the leaks started on the night of June 25th and every night since. Nothing before that date. That night I was more careful than usual about putting on my mask, and even asked my girlfriend to check the straps etc. But when I checked the data in the morning, the leaks were still there. That night I decided to put on the new hose that I was given at my annual checkup, but again no change. I contacted the hospital who supplied the equipment and went to see them today. They could see the leaks from the data, and asked if I felt anything from the mask. (I use a full face mask, the Mirage Quattro from Resmed.) I told them no, I hadn't. They said that as my AHI readings were low, less that 2 most days, that the machine was doing it's job and I was responding to treatment, and not to worry about the leaks unless things changed. I wasn't completely happy with what I was told. I thought that if there was a leak, then there's a fault that needs fixing, surely? To top it all, they forgot to put the memory card back into my machine, which I didn't notice til I was home!

Up til the leaks started, my AHI was less the 0.5. After June 25 it went up to between 1.3 - 1.9. OK that's not a big rise, but noticeable.

Plus I have no idea what changed on the night of June 25th?

I would welcome any thoughts or suggestions.

Thank you very much.

Views: 114

Reply to This

Replies to This Discussion

Hi David and so sorry to hear about the loss of your mother, and caring for someone with terminal cancer is very sad.  My first thought was the hose, as sometimes very tiny holes can appear, but you've explained it wasn't that.  Another thing that can cause leaks to appear and continue is when the mask or mask cushion is ready for replacing.  Also, I'm not sure how you wash it, but if you're using anything like Fairy Liquid or anything with added moisturisers, what happens is that the additives in the detergent can leave behind a residue on the soft part of the mask (cushion), and whilst it looks clean, it can cause leaks.  I've just commented on another discussion here too that the new Silent Night Mask Liners are proving very successful in curing leaks http://www.hope2sleep.co.uk/products/134 so that might be worth a try.

As you said, the AHI is still very good, but I can understand you wanting to get to the bottom of the mask leaks, which can also cause us interrupted sleep.

Hope this helps and my best wishes to you as you come to terms with life without your Mum.

Reply to Discussion


Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.


Latest Activity

Edam replied to Edam's discussion Changing hospital
"I want to change because the other hospital, which is in a different trust, supplies a different make of mask. My present hospital only supplies one make of mask which is unsuitable for my nasal problems. Over the years I have spent hundreds of…"
Adam Cartwright replied to David thompson's discussion SELLING cpap airsense10 elite machine with travel bag and accessories in the group Buy-Sell-Swap
"Hi David I thought I'd check but I assume you have sold your Airsense 10 Elite?"
Adam Cartwright joined The SleepGuide Crew's group
Profile IconAdam Cartwright and Linda Cook joined Hope2SleepGuide
Sleep2snore replied to Savannah A.'s discussion Sleep Centre in UK that measures UARS
"That is a difficult one, but if you have a Polysomnography done a good Sleep Doctor should spot the signs, however, it is often missed unless the patient mentions it or ENT (if you attended there first before referral) suspects you might have…"
Sleep2snore replied to ROBERT O'BRIEN's discussion c pap mask
"Yes, masks for one person do not mean they are for everyone, getting a supplier to give ou a refund if it is not suitable is good, but trying it on and lying down with your machine on for an hour or so is the only real way of trying a mask. …"
Sleep2snore replied to Edam's discussion Changing hospital
"It will depend on the Sleep Clinic or hospital, however, if you AHI is 1 why do you want to change? You might be allowed just to keep what you have already and the equipment transferred to the new Sleep Clinic. As your AHI is so low I very much…"
Edam posted a discussion

Changing hospital

I am considering asking my GP to refer me to another hospital for the supply and monitoring of CPAP .Would I just be supplied another CPAP and mask by the new hospital or would a new sleep test have to be done. As my original diagnosis was made…See More
Kath Hope replied to ROBERT O'BRIEN's discussion c pap mask
"I agree with giving it your best shot at getting the 'right' mask for you Bob, but even with all the best reviews in the world it's not possible to guarantee if it will be the 'right' mask for you.  It's why when…"
ROBERT O'BRIEN posted a discussion

c pap mask

hi everyone I am considering buying a more comfortable nasal mask, I am looking at the JOYCE SILK GEL NASAL MASK.  I have looked for reviews but cannot find any , has anyone on this forum used this mask and is it worth a hundred pounds.my current…See More
Kath Hope replied to Savannah A.'s discussion Sleep Centre in UK that measures UARS
"Unfortunately, there aren't as many as we'd like there to be.  The only way of truly diagnosing UARS is via Esophageal Manometry (Pes) which is rarer still here in the UK.  Take a look at our charity's webpage on this…"
Mar 12
Savannah A. posted a discussion

Sleep Centre in UK that measures UARS

Hi there,I have a connective tissue disorder that is associated with UARS (Upper Airway Resistance Syndrome).I was wondering whether there was a sleep centre in the UK that measures UARS in patients.I would be very grateful to hear from others.Many…See More
Mar 12
Savannah A. updated their profile
Mar 12
Boyertown replied to Julie Straiton's discussion Severe hair loss with mask straps ?
"Has there been any more news on this subject?  I am experiencing hair loss too. Thank you."
Mar 12
Boyertown updated their profile
Mar 12
Boyertown is now a member of Hope2SleepGuide
Mar 12
Kath Hope replied to Dave Cheeseman's discussion New diagnosis!
"Hi Dave, and sorry to hear you've been diagnosed with severe sleep apnoea, but when you get on CPAP you should start to feel so much better. To purchase a CPAP machine you need a prescription from the consultant, and if you really want to…"
Mar 11
Dave Cheeseman posted a discussion

New diagnosis!

Hi Everyone,I need a bit of advice from some more experienced people. I had a sleep study through the NHS last week & have been diagnosed with extreme Sleep Apnea (60-70 instances an hour). However I have now been told that I have to be referred…See More
Mar 11
Dave Cheeseman is now a member of Hope2SleepGuide
Mar 11
Kath Hope replied to Bernadette Plunkett's discussion Advice on ordering a CPAP machine from overseas
"Ha Ha, I just replied to this post then realised I'd replied to Bernadette and her post was from 2016. Have deleted it as it was irrelevant Good to hear you've got your DreamStation Go on the app now though."
Mar 10

© 2018   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service