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The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
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CPAP results
Hello Everyone!
I was diagnosed with severe sleep apnoea in December 2016 the consultant advised I sleep on average 2 - 2 1/2 hours per night. I picked up my CPAP machine 10th February 2017.
I have now used the CPAP for 5 continuous nights and feel totally drained, as much as I did before the diagnoses. The mask has taken a little bit of getting used to but nothing major, I still have disturbed sleep where I wake several times over 3 to 4 hours and I have had to reset the CPAP machine as the pressure has been too high but then fallen asleep waking at lunch time. Is this normal?
On a positive I don't wake with pains in my chest and my heart doesn't feel it's recovering from a 5K run!
I have read that people have really great results in days why am I not, I've spoken with the hospital, they have advised to just keep going and when we meet in 2 weeks they will look at the data in the machine.
Welcome your thoughts!
Kind regards
Amanda
Views: 205
Replies to This Discussion
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Permalink Reply by Ted on
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Hi Amanda
Nice to meet you I'm in a similar situation to you today was my check up day after been sent home with my cpap just over 2 weeks ago I have changed my mask as I could not get on with the one given to me. For me this last week has seen better results I still have patchy sleep but it's getting better and my headaches don't seem as intense as before treatment.
I'm not suggesting you change your mask as I have and the hospital confirmed time is a factor and we each differ but as we use the cpap over time it should improve.
And last but not least the hospital said I would see a specialist in about 2 months for a full review giving me time to adjust hope this helps a little
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Permalink Reply by Justin Stephens on
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hi Amanda. We are all different when it comes to treatment and will adapt at different rates. I cant coment on the short sleep intervals you have but what I would look into is downloading a program called SLEEPYHEAD ( as long as your machine is data compatible ) as you can down load data from your machine to review whats going on. My sleep nurse explained briefly what was what and that was it really so I found this program really helped me to understand what type of apneas I was having and I found helpful advise from other cpap users on how to setup and essentialy self treat the correct way. It does get better, I still have good and bad days but atleast I can see whats going on through using the software ( which is free ) and maybe adjust as I go along. Do you know the make and model of your machine? Should be on the front.
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Permalink Reply by Kath Hope on
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Overall, it sounds like you're having a good start Amanda and good to hear you're already feeling benefits with your heart and chest. For most people it's not a overnight miracle, even though there are some lucky people who do experience this. I would guess that it's the raising of the pressures that's waking you when you go into REM sleep, so when you go back for your review I would mention this to the hospital who will look at the data and may be able to adjust the pressures, if you're keeping the auto machine (APAP). However, some hospitals use the data and then swap their patients onto a fixed CPAP machine. Hang in there.....
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Permalink Reply by Amanda Russell on
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Ted said:Hi Amanda
Nice to meet you I'm in a similar situation to you today was my check up day after been sent home with my cpap just over 2 weeks ago I have changed my mask as I could not get on with the one given to me. For me this last week has seen better results I still have patchy sleep but it's getting better and my headaches don't seem as intense as before treatment.
I'm not suggesting you change your mask as I have and the hospital confirmed time is a factor and we each differ but as we use the cpap over time it should improve.
And last but not least the hospital said I would see a specialist in about 2 months for a full review giving me time to adjust hope this helps a littleHi Ted, Many thanks for taking the time to reply. I too have good and bad nights the mask isn't the problem I think I have got into the habit of waking during the night, mostly between 1am and 4am, I think once I can break this habit things will improve.
kind regardsamanda
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Hi Justin, many thanks will discuss this with the hospital at my next visit.
Justin Stephens said:hi Amanda. We are all different when it comes to treatment and will adapt at different rates. I cant coment on the short sleep intervals you have but what I would look into is downloading a program called SLEEPYHEAD ( as long as your machine is data compatible ) as you can down load data from your machine to review whats going on. My sleep nurse explained briefly what was what and that was it really so I found this program really helped me to understand what type of apneas I was having and I found helpful advise from other cpap users on how to setup and essentialy self treat the correct way. It does get better, I still have good and bad days but atleast I can see whats going on through using the software ( which is free ) and maybe adjust as I go along. Do you know the make and model of your machine? Should be on the front.
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Hi Kath
I agree it will take time, the main thing is that I know that it is working I feel that I am getting my life back!Kind regards
Amanda
Kath Hope said:Overall, it sounds like you're having a good start Amanda and good to hear you're already feeling benefits with your heart and chest. For most people it's not a overnight miracle, even though there are some lucky people who do experience this. I would guess that it's the raising of the pressures that's waking you when you go into REM sleep, so when you go back for your review I would mention this to the hospital who will look at the data and may be able to adjust the pressures, if you're keeping the auto machine (APAP). However, some hospitals use the data and then swap their patients onto a fixed CPAP machine. Hang in there.....
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Permalink Reply by Sleep2snore on
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Hi Amanda,
It does take a bit of time to get used to a CPAP and maybe a bit more time to get used to the varying pressures of an APAP. Stick with it and wait to see what they say. If it is an APAP, it sometimes helps if the lower pressure is a bit higher. Nearer the normal pressure that your machine goes to.
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