Fao carol

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Permalink Reply by carol murphy on May 23, 2011 at 22:22

Hi Rachel

 

Thank You so much means alot Im so nervous as Im hoping for all the answers to be revealed if not then it will be back to the jigsaw puzzle with missing pieces .

Will let you know how it goes

Hope you are all well anything new with you guys

Thanks again

Carol x

 

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Permalink Reply by Kath Hope on May 24, 2011 at 0:20

Good luck Carol and keep us posted. We're hoping for good news for you without the missing pieces :)

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Permalink Reply by Rachel Dickinson on May 25, 2011 at 18:48

hi carol how did it go? hope things r ok?

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Permalink Reply by carol murphy on August 19, 2011 at 22:37

Hi

 

I am so sorry for not coming back to update i had to reboot my pc and lost the bookmark ...yesterday I was websurfing and came across the site again ao glad :)

 

Travis PSG went good he still has apnea central and obstructive but not nearly as bad as prior to op alot of his centrals were part of normal sleep as in they followed movement / sigh his average event is only 14 secs now when before it was 21 so improvement .....

 

Cpap for now isnt being used but is still in the equation if he doesnt gain weight and his next PSG in November is worse that his May one

 

He was recently diagnosed with asthma and we are a month into using inhalers daily he also had his reflux meds increased this has improved his restlessness when sleeping and reduced his stridor

 

They said by November that will be a year since surgery and will be the telling of what next

How is Emil doing have so much to catch up on will be reading the boards for a week

xx

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Permalink Reply by Kath Hope on August 19, 2011 at 22:45

Great to have you back Carol - have missed you!  Good to hear about Travis' good progress too :)

carol murphy said:

Hi

 

I am so sorry for not coming back to update i had to reboot my pc and lost the bookmark ...yesterday I was websurfing and came across the site again ao glad :)

 

Travis PSG went good he still has apnea central and obstructive but not nearly as bad as prior to op alot of his centrals were part of normal sleep as in they followed movement / sigh his average event is only 14 secs now when before it was 21 so improvement .....

 

Cpap for now isnt being used but is still in the equation if he doesnt gain weight and his next PSG in November is worse that his May one

 

He was recently diagnosed with asthma and we are a month into using inhalers daily he also had his reflux meds increased this has improved his restlessness when sleeping and reduced his stridor

 

They said by November that will be a year since surgery and will be the telling of what next

How is Emil doing have so much to catch up on will be reading the boards for a week

xx

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Permalink Reply by Rachel Dickinson on August 19, 2011 at 22:52

So glad things are going well! It's great to have you bk! Emil is doing well bless him, been the best thing ever for him! 

Kath Hope said:

Great to have you back Carol - have missed you!  Good to hear about Travis' good progress too :)

carol murphy said:

Hi

 

I am so sorry for not coming back to update i had to reboot my pc and lost the bookmark ...yesterday I was websurfing and came across the site again ao glad :)

 

Travis PSG went good he still has apnea central and obstructive but not nearly as bad as prior to op alot of his centrals were part of normal sleep as in they followed movement / sigh his average event is only 14 secs now when before it was 21 so improvement .....

 

Cpap for now isnt being used but is still in the equation if he doesnt gain weight and his next PSG in November is worse that his May one

 

He was recently diagnosed with asthma and we are a month into using inhalers daily he also had his reflux meds increased this has improved his restlessness when sleeping and reduced his stridor

 

They said by November that will be a year since surgery and will be the telling of what next

How is Emil doing have so much to catch up on will be reading the boards for a week

xx

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Permalink Reply by carol murphy on August 19, 2011 at 23:04

Kath I was so frustrated when I lost the site bookmark I have now written it on my calendar how are you doing post op noticed any other improvements?

 

Rachel Im glad Emil is doing well and cpap has made a difference does he still get scoped to review his malacia ?

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Permalink Reply by Kath Hope on August 19, 2011 at 23:09

I was starting to be concerned things weren't good with not hearing from you, so glad you found us again.

Whilst the nose op didn't cure my sleep apnoea (which I never expected it too), it's made life with the CPAP so much more comfortable now I can breathe through my nose.  When summer came I hadn't realized how nice the flowers really smelt.  I can now smell them without putting my nose right into the flower with the risk of a bee stinging my nose :-D

 

How's hubby?  Have you sorted him yet with his CPAP?

carol murphy said:

Kath I was so frustrated when I lost the site bookmark I have now written it on my calendar how are you doing post op noticed any other improvements?

 

Rachel Im glad Emil is doing well and cpap has made a difference does he still get scoped to review his malacia ?

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Permalink Reply by carol murphy on August 19, 2011 at 23:17

thats good news Kath .... he has not made a decision on having the surgery perhaps he will once the little ones are well enough I think he may have some fear in there too ....

His cpap mask was changed as he lost 2.5stone since starting it so it didnt fit well at all ...... worked great for a while and this last 2 weeks hes found hes waking every 2 hours so not sure whats going on there if it continues he will need to contact his resp nurse ..... He has been on CPap now almost a year in october and the difference in his energy and quality of life is huge .....

I have a ??? actually about alcohol and sleep I will post it seperately

 

 

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Permalink Reply by Kath Hope on August 19, 2011 at 23:24

That's great to hear, about the positive effects your hubby's having since using CPAP :)  Great about the weight loss.   Great about the weight loss too, but people tend to forget they lose it from the face too + their masks need changing.  Do you think this is happening again with him waking up every 2 hours?

carol murphy said:

thats good news Kath .... he has not made a decision on having the surgery perhaps he will once the little ones are well enough I think he may have some fear in there too ....

His cpap mask was changed as he lost 2.5stone since starting it so it didnt fit well at all ...... worked great for a while and this last 2 weeks hes found hes waking every 2 hours so not sure whats going on there if it continues he will need to contact his resp nurse ..... He has been on CPap now almost a year in october and the difference in his energy and quality of life is huge .....

I have a ??? actually about alcohol and sleep I will post it seperately

 

 

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Permalink Reply by carol murphy on August 19, 2011 at 23:33

could be possible I will need to ask him if he finds the mask slipping I just read a post about the wipes to clean the mask he was told warm soapy water so think I will invest in the wipes as he often has a residue on the silicone of the mask

He did say the head strap above his nose was causing pressureand can you get padding for it ;)

 

 

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Permalink Reply by Kath Hope on August 19, 2011 at 23:41

I cannot tell you how many people love the wipes (me included).  The cheapest place to buy them is direct from the website at www.hope2sleep.co.uk or if you use Facebook, I've just added the products on there with a 10% discount if you 'like' the page.  Here's the link to that https://www.facebook.com/hope2sleep.co.uk?sk=app_135607783795  It could be that all his facial oils aren't being completely removed when cleaning and the wipes will take care of that.  For the forehead, all you need is a piece of t-shirt material folded over to create some padding. 

carol murphy said:

could be possible I will need to ask him if he finds the mask slipping I just read a post about the wipes to clean the mask he was told warm soapy water so think I will invest in the wipes as he often has a residue on the silicone of the mask

He did say the head strap above his nose was causing pressureand can you get padding for it ;)

 

 

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