Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

So last night was my first with my new CPAP machine (a Philips DreamStation with an Amara style mask), and got on surprisingly well. It took me a while to fall asleep and woke briefly a handful of times in the night but I would say it was very successful on the whole.

I feel a lot brighter today than usual so hopefully after the first few weeks I'll feel even better.

Following my poor experience with Shrewsbury & Telford NHS Trust, I have to say that the team at the Stoke University hospital were first class. Plenty of information provided and support, a very quick turnaround and overall excellent experience. I have been diagnosed with an AHI of 21 (which was a lot lower than I expected) and according to my DreamStation, last night my AHI was 8.4, so a marked improvement.

I've already ordered some of the face cream, and cleaning wipes & spray so hopefully this will further enhance my already positive CPAP experience.

Thank you again to everyone's experiences and comments throughout the forum that I have read, it certainly helps!

All the best,

Andy

Views: 331

Reply to This

Replies to This Discussion

Hi Andy. That's a good first night and sounding positive already. You may find your AHI comes down over the next few nights. Ideally we're looking for it to be up to 5 which is classed as 'normal.' 

Your other goods will be despatched, but there will be a short delay on the popular CPAP Cream as it's currently in UK Customs and it's like watching paint dry as we await it's release.

One of the products our charity sell is the CPAP Hose Lift, and if only the NHS could supply it then it would help so many people as it prevents the tugging of the mask on the face which causes leaks.  With you being new to CPAP, take a look at this link on our website as there are tips for most hiccups we come across https://www.hope2sleep.co.uk/tips-for-problems-sleeping-with-cpap-o... and most can be easily fixed.

Hi Kath,

I'm hoping the next few nights will see me get my AHI down further, but i'm also keen not to put too much pressure on the situation.

I have to say i'm very impressed with the Hope2Sleep service so far, with regular updates regarding my order! Thank you for the prompt part despatch and the update regarding the cream. I have dealt with UK Customs in a previous job and distinctly remember it being extremely tedious!

Ah yes, it's funny you should say that as I did struggle with the hose hooked over the headboard last night and almost felt scared to move as I almost pulled the mask off when I rolled over at one point!

Thanks again for the support!

Andy

Kath Hope said:

Hi Andy. That's a good first night and sounding positive already. You may find your AHI comes down over the next few nights. Ideally we're looking for it to be up to 5 which is classed as 'normal.' 

Your other goods will be despatched, but there will be a short delay on the popular CPAP Cream as it's currently in UK Customs and it's like watching paint dry as we await it's release.

One of the products our charity sell is the CPAP Hose Lift, and if only the NHS could supply it then it would help so many people as it prevents the tugging of the mask on the face which causes leaks.  With you being new to CPAP, take a look at this link on our website as there are tips for most hiccups we come across https://www.hope2sleep.co.uk/tips-for-problems-sleeping-with-cpap-o... and most can be easily fixed.

Hi Andy, don't get to hung up on numbers, it is more how you feel that coults, though DVLA don't think so.

Small tweaks in your pressure and getting used to the machine and mask will bring it down.

It is not normal to have a machine blowing air at you all the time and have an alien on your face all night, so it will take you a while to get used to it.  More important is to keep using it and get used to it, then after a while you can get your numbers down a bit, though if you get below 5 you are doing well, but don't get hung up on it.

Reply to Discussion

RSS

About

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Kath Hope replied to Glassdaisy's discussion Soft Cap
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Mar 27
Glassdaisy posted a discussion

Soft Cap

some time ago I was told that Hope2Sleep was researching a replacement for the discontinued Soft Cap.. as I have seen nothing to indicate moving forward on this, would I be right in assuming you decided it is no longer relevant?See More
Mar 27
Glassdaisy replied to Nick Daniel's discussion CPAP Total Face Mask
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
Mar 27
Wendy Anthony is now a member of Hope2SleepGuide
Mar 25
David McDade is now a member of Hope2SleepGuide
Jan 3
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"Yes, it does the job. I use a Powapacs Atom for portable power "
Dec 18, 2024
John replied to John's discussion Are every small CPAP machines any good?
"Hi Nick thanks. Does it do the job and could you camp with it?"
Dec 18, 2024
Nick Daniel posted a discussion

CPAP Total Face Mask

I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
Dec 17, 2024
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
Dec 17, 2024
Greg Lloyd is now a member of Hope2SleepGuide
Dec 6, 2024
Jonathan replied to David Hudson's discussion Pressure waking me up. Belching and wind
"Hi It sounds like you need to have more conversations with your sleep clinic.  There's little point in having a high pressure if it means you cannot tolerate the machine.  There's an interesting video here…"
Dec 1, 2024
David Hudson posted a discussion

Pressure waking me up. Belching and wind

HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
Nov 28, 2024
Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9, 2024
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3, 2024
Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
Nov 2, 2024
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Nov 2, 2024
Collette rose is now a member of Hope2SleepGuide
Oct 31, 2024
John posted a discussion
Oct 30, 2024
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Oct 29, 2024
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24, 2024

© 2025   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service