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First night ever, using my APAP Prisma machine.
2 1/2 hours at bedtime. Then another hour or so early morning?
Both times with 30 mins soft start.
Occasionally my cheeks were blowing out and ears felt pressurised. Made my jaw ache.
Still had 4 ‘hard’exhalations- this is a fairly recent symptom for me, just the last two weeks. It’s like someone punched me hard in the stomach. My body reacts physically- my abdomen contracts and I involuntarily give a big grunt of outward breath. No idea why. Not a nice feeling.
Don’t remember having any apnea events- but then I don’t think I was asleep.
Sometimes felt like hard lump between bottom of ribs. Very uncomfortable.
Seemed like it was doing it’s own timing for breathing, not following mine? Shouldn’t be because it’s set to APAP I believe.
Very conscious of my breathing all the time, not sure I was breathing normally.
Fit was ok; leaked around right cheek twice so I retightened lower right strap.
At one time the screen showed the Test Screen, don’t know why. (When I pressed far right button to get screen to light up.) My husband said the test screen comes up if you press second to last button, so I made have done that by mistake.
Although generally I was uncomfortable, on occasions exhaling was VERY hard. Uncomfortable.
Settings: soft pap 2, humidifier 2, soft start 30 mins, auto start off.
Slightly dry mouth this morning, but not worse than normal.
Took it off after 2 half hours ish, as breathing rhythm and hard to exhale got to me. Don’t THINK I slept at all.
Put it back on early morning to try again. Might have dozed off?
Draped hose over bed head so above me- worked well. Was able to turn over ok.
Pressure was 16 at one point? Think that’s when I found it uncomfortable and took it off.
I’m not sure HOW I should feel, what I am likely to experience, whilst using the Prisma. Maybe everything I experienced is common? If so, I hope it goes away!!!
If I adjust any of the settings will it help me?
ps my app just showed I had mask on for over 6 hrs in total, with zero Deep Sleep and 12 AHI with 0/1 leakage. I’ve just been diagnosed with sleep apnoea (I’m in the U.K., Wales) with a moderate AHI of 26.
I’m hoping someone can reassure me that the above experiences are normal but will go away !!!! Feeling bit lonely about it at the moment, but dead keen to make it work.
thank you, Linda
Views: 1260
Try not to over-think things and you did very well on your first night. It's rare to feel a big positive difference after the first night as you're trying to adjust to sleeping with a mask on with pressure blowing and and the machine is also working to treat you well. This is why the clinic doesn't want a review immediately as they need to see the data after a few weeks of therapy. Don't be adjusting anything as the machine was set up as to how the clinic instructed us (often left on the default settings initially). The data will be coming into our PrismaCloud which we can share with your clinic and if any changes are needed they will decide and instruct us to make them remotely.
Your job at the moment is to just try to get used to this new therapy and sleep whilst the machine is treating your sleep apnoea as they very good at that :)
You'll get a lot more instant help in our Private Group really than on this public forum. We have several people in there and one man who is about to have his first night tonight on his Lowenstein Prisma SmartMax.
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