"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Sleep Apnoea Forum Bringing Help + Support to the Patient
Happy new year hope 2012 you all breath easy :)
Hi
Been absent from the boards for a few months life is so busy
Travis has Bilateral Vocal Cord Palsy which is intermitant he is due to get a NG tube on the 18th if that doesnt work we will be trialling CPAP
Jaydon had a psg in Nov that showed no significant obstruction so we are now looking at his lower airway and immune system as well as CF however Im not convinced I think he has OSA caused by his upper airway he has sever harrisons sulci
I videoed him napping today any comments appreciated ......is my gut instinct correct and I need to push them to review this do average 2 year olds breath like this when sleeping ???
Carolanne
Views: 185
Replies to This Discussion
-
Permalink Reply by Kath Hope on
-
Oh Carol, no wonder you're worried. Perhaps our good friend and expert Rock might see this. I'm no expert and not trying to be, but keep pushing and ring up to see if your email has been received.
carol murphy said:got a daytimenap video I notice 4 mins into video his neck sinks in at same time as chest any ideas why ?
-
Permalink Reply by carol murphy on
-
just updating my post for anyone who reads it through searching jaydon had tonsils adnoids and revised supraglottoplasty in June 2012 and 25th September after the data on his psg showing no real issues again video footage showed him clearly obstructing (thank god for video) and he started Cpap so gut instinct was correct and his study results werent true to his visual breathing
-
-
Thanks for the update Carol and thank goodness for a mother's intuition, which is is normally the case, proves correct. Take a look at this post where we're waiting for news about Tracey's son who had his tonsils removed and is about to go for a 2nd sleep study - again, because the 'mother' persisted. http://hope2sleepguide.co.uk/forum/topics/hello-have-just-found-out...
How's Jaydon doing now he's on CPAP?
-
-
Updating again for those that search for information Jaydon has been on cpap a pressure of 5 for now we need to increase to 8 but will be a gradual process
We are on week 6 and the difference in him is astounding his utter daytime exhaustion and his inability to function has ceased he is no longer emotional. aggresive, so tired he dragged his body and often almost slept standing up !!
It has been a case of gradual desensitization and as the weeks pass the longer he uses it without wakening previously 2 hour intervals last night was 5.5 hours
Cpap has been a complete life changing experience for the good
The sleep deprevation made his character ugly through no fault of his own he is now thanks to cpap funny happy and engaging
It has been a long road to get to this point and throughout it all my instinct was right so If my advice would be if you think something isnt right you are probably correct and keep fighting until you are heard
- ‹ Previous
- 1
- 2
- Next ›
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep. Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
"Can't say I know about this."
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
"Hi Jonathan, well see my nose is blocked a lot, so I mouth breath which really sucks a lot more moisture and makes my mouth dry. So I put humidity on maximum, which makes for condensation at the mask end, which becomes a demonic reed instrument.Now…"
ResMed AirSense 10 getting noisy
HelloI have an NHS issued ResMed AirSense 10 with heated humidifier. In the last couple of weeks, it's developed an annoying noise, when I inhale. It bothers me a little and my partner a lot! I sometimes get problems if the water container in the…See More
"Hi
My first question is why is condensation forming? I very occasionally get some condensation, may be once a month, but I can quickly run a finger around the inside of the mask, and wipe it away. I use a nasal mask, with the humidifier…"
"11K+? Ok that's probably where I should look then :-)"
"Hi John. Thanks for the compliment as I do my best popping on here, but it's difficult due to us now supporting 25k+ patients at the charity. To be honest, the forum is quiet because most people seem to prefer Facebook and forums aren't as…"
"There's some information here, but generally it's very common and likely due to our anatomy."
© 2024 Created by The SleepGuide Crew.
Powered by
