"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Hello,have just found out my 3 yr old son has SA :((
Hello all.
My son is 3 and has always been a poor sleeper from birth. He has had numeouros health problems,from bronclitis to asthma.
We recently got referred to ent bcus he had glue ear.
I mentioned his sleepin how poor it was,and that he sleep talks. Alway tired,and behaoiur is hard work in the daytime.
So arranged a sleep study.
Results was sleep apnea.
Least seconds stop breathing was 15 most being 90!! Numerous times.
They are goin to take his adenoid and tonsils out in the next 6 weeks.
I'm bloody petrifed tho,now set up camp in his room to watch him.
Is there anythin i can do??
Also anyone out there with kids simalir age? Can u offer any advice,exp etc.
Thankyou.
T x
Views: 1115
Replies to This Discussion
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Permalink Reply by tracey clark on
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Thanks Leisa.
He's having a repeat sleep study done anyway hopefully soon..so should get our answers then. Yes my son has done this before for a stretch of a few nights,but not recently he hasn't. Anyway we shall see. Fingers crossed. If it hasn't cured it then we shall face the prospect of a cpap if it comes down to that, and shall no doubt be seeking you're advice.
I'm glad your son tolerates it, though makes things easier for u. Shame u are still getting up though to sort it out - goodness..Never ends does it? Never knew that about adenoids - gosh.
Thank you for your advice and good luck to u and you're son huni.
T xx
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Hi
I have a 3 and 5 year old both of whom had there tonsils and adnoids removed as well as supraglottoplasty as they have a floppy larynx
We did notice the work to breath did lessen with the surgery and were suprised how quickly they bounced back all I can suggest is to keep with regular pain relief for a week after tonsil removal
Good Luck and I hope it is the fix for him
Carol x
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Just read the whole post to see he has had surgery :) it can take 6 weeks for the swelling to go down infact my youngest it was almost 8 weeks before we saw any change
Im glad he is getting a repeat study
We have just started cpap on my almost 3 year old and the difference is amazing
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It's 8 weeks now,and i have notice a diff the last 8 nights now. He has gt a bad cough atm ,but this doesn't seem to b affecting him like it normally would so i'm actually thinking that it may well of worked....god i hope so.In fact i'd be surprised if study came back abnormal . But i could be being to optimistic here...hopefully not though. :)
What's a supraglottoplasty??
T xx
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Permalink Reply by Kath Hope on
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Sounding a bit more hopeful Tracey, so keeping everything crossed for you that the sleep study brings the news you're hoping for :)
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I hope this means he is better Tracey, I really do! Sounds promising :-)
Just keep an eye on him for a while because Edward went a bit quiet for about 3 to 6 months and then it started creeping back again.
Hopefully that won't happen though.
Good luck with the sleep study xxx
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Glad you have started to see subtle differences glad his cold isnt making him work hard like before ....
Supraglottoplasty is removing excess tissues from the larynx /voice box as he has laryngomalacia
Good luck for the study will look for your update post
carol x
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since i wrote this post,he ended up on steriods and antibiotics. Asthma flare up :(( he his now also back to his night wakin screamin etc....
t xx
Study is tomor hopefully get results quickly
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So sorry to hear this Tracey
and good job the study time has come around. Let us know how it goes and we'll all be thinking of you both.
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Well i think it went well. His oxygen lvls were between 90 and 92. when i changed it over half way thru night it went up to 95. His heart rate was between 75 to 80 don't know what that one means tho. I know the oxygen was good. So finger crossed.
T xx
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Good to hear about the 02. When do they give you the study results as to apnoeas etc?
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I did see the heart rate drop to 67 at one time too but i dont think any lower than that..i mean i did sleep in between,but i Aassume these levels are good?
t x
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