"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Help Needed - Please Invite Your MP's
The British Lung Foundation are hosting a Parliamentary Reception on the 23rd April in the House of Commons to give the MP's the true facts of Sleep Apnoea and the risk factors in their constituency. I am speaking at this event and we need as many MP's as possible to attend so that each one can take action in their own areas in improving Sleep Apnoea Services here in the UK.
The MP's have all been invited, but to ensure how important it is for them to attend please click on the link below which will take you to personal invitation page for your MP created by the British Lung Foundation, and will automatically be sent to him/her. The letter can also be edited for you to put your personal experience or any other issue you wish to raise.
It only takes a couple of minutes, and when you have sent the invite you will see that you can share it via Facebook and Twitter. Feel free to share this post too.
Click on this link www.blf.org.uk/osareception
Many thanks!
Views: 99
Replies to This Discussion
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Permalink Reply by David on
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Following my request to Clive Betts our Mp he has sent the following nice email reply.
Dear David,
Thank you very much for your recent correspondence regarding Obstructive Sleep Apnoea.
OSA was something that I was aware of, but I was very interested to read that such a high number of cases go undiagnosed. I have read the BLF's 10-point OSA charter, and I was particularly interested in the final point that encourages employers to arrange an OSA screening for all staff employed as drivers and other vigilance-critical roles. This could increase the diagnosis rates of OSA, whilst hopefully preventing some serious or fatal accidents, particularly on the road. I would, however, be concerned at the level of support an employee receives from their employer following OSA diagnosis. One would hope that such an individual would be able to continue with their work whilst being treated for their OSA, but I fear that this may not always be the case.
I will write to the Department of Health on your behalf, asking what plans it has for improving treatment and awareness of OSA, and I will also write to the Chair of Sheffield CCG asking what plans it has to commission services for people with OSA. I will write to you again once I have received replies.
Please do not hesitate to contact me again in the future regarding this or any other issue.
Regards
Clive Betts MP
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Permalink Reply by Kath Hope on
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Excellent response David and thanks for posting. Thanks to Clive too and hoping for big changes here in the UK.
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Permalink Reply by Rob Callow on
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Hi Everyone.
I have also sent a request to my Local MP & hopefully I will receive a reply along the same lines as what David has.
Well done David & good luck Kath.
If I receive a response, I will post it like David has
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