"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
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Intro
I never introduced myself!
I am Rachel and I am mum to 5 amazing children, they were all born far too soon, although the more mature baby at 30 weeks I think my first child was the one that shocked me
Most as I was a teen mum and didn't have a clue what was goin on, she is now a fantastic 15 year old who is way above average at school and he is a student dance teacher. My second child is now 13, she was born at 26 weeks of pregnancy and she had quite a large bleed to her brain, she was very slow
With development and didn't walk till she was three but she is now a regional gymnastic champion, on the gifted and talented register at school and an ambassador at school!
My 3rd child wasn't so lucky, little Niamh was born at 25 weeks and suffered huge bleeds on her brain she is my little princess although she is 11 lol, Niamh has diplegic cerebral palsy and a
Learning disability, she has an amazing personality and doesn't let anyone or anything get in the way of what she wants!
Emmy was my 4th girl, she was another 25 weeker like Niamh she had huge bleeds they were in the breathing control part of her brain and after 5 long
Months in the neonatal unit she came home
Tube fed and needing oxygen, she finally came
Off oxygen aged 4! She had her feeding tube out last year and she is absolutely fine!! She was born with only one
Eye so she has a false eye but never wears it, she doesn't care bless her!
Emil is my final child, he was born at 26 weeks, he too has had a bleed by will not know
How this will affect him until he either does or
Doesn't reach his milestones. He has had an odd 18 months in and out of hospital having surgery on his airway but is now
On cpap and apart from been a bit
Crazy having the facemask on lately he is a little trooper!
So there you are my amazing kids explained-briefly!
Rachel
I am Rachel and I am mum to 5 amazing children, they were all born far too soon, although the more mature baby at 30 weeks I think my first child was the one that shocked me
Most as I was a teen mum and didn't have a clue what was goin on, she is now a fantastic 15 year old who is way above average at school and he is a student dance teacher. My second child is now 13, she was born at 26 weeks of pregnancy and she had quite a large bleed to her brain, she was very slow
With development and didn't walk till she was three but she is now a regional gymnastic champion, on the gifted and talented register at school and an ambassador at school!
My 3rd child wasn't so lucky, little Niamh was born at 25 weeks and suffered huge bleeds on her brain she is my little princess although she is 11 lol, Niamh has diplegic cerebral palsy and a
Learning disability, she has an amazing personality and doesn't let anyone or anything get in the way of what she wants!
Emmy was my 4th girl, she was another 25 weeker like Niamh she had huge bleeds they were in the breathing control part of her brain and after 5 long
Months in the neonatal unit she came home
Tube fed and needing oxygen, she finally came
Off oxygen aged 4! She had her feeding tube out last year and she is absolutely fine!! She was born with only one
Eye so she has a false eye but never wears it, she doesn't care bless her!
Emil is my final child, he was born at 26 weeks, he too has had a bleed by will not know
How this will affect him until he either does or
Doesn't reach his milestones. He has had an odd 18 months in and out of hospital having surgery on his airway but is now
On cpap and apart from been a bit
Crazy having the facemask on lately he is a little trooper!
So there you are my amazing kids explained-briefly!
Rachel
Views: 53
Replies to This Discussion
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Permalink Reply by Kath Hope on
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.....and what a brave lady you are Rachel, and a proud Mum of those amazing 5 children. Thanks for sharing your story with us, and look forward to hearing about Emil's progress.
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Permalink Reply by carol murphy on
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Rachel wow you are one strong mummy your miracles all sound amazing and I hope Emil follows in his siblings footsteps and does amazingly well. Can I ask what his airway problem was My 2 youngest boys 3.5 yr Travis and 16mth old Jaydon both have had supraglottoplasty for Laryngomalacia. Is his Cpap treatment for apnea or for his airway issues.
Look forward to getting to know you through the forum and following Emils progress
Thanks for sharing your remarkable story
carol
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