"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Jaydon my 2yr 9mth has started Cpap
Hi
I havent posted alot in recent months but I do read often Jaydon went in for a sleep study and started trial ventilation at night we tried bipap but he tolerated cpap better
we tried the full face mask but he didnt like it as he rubs his eyes in his sleep so we are using a nasal mask which so far is working better
He is on a pressure of 5 for now to get him used to the new night sleep partner and we need to gradually go to 8 possibly 10 depending on next study result
Tonight we struggled getting the mask on but he gave in and is so far kept it on
Im looking at the Fitlife full face cpap mask can anyone tell me how much the spare seals are and if they are readily available as the nhs wont be covering it.
Thanks Carol
Views: 86
Replies to This Discussion
-
Permalink Reply by Kath Hope on
-
Just spotted this new post Carol, and I've just asked how Jaydon's doing on the other one, so now I know!
Regarding the FitLife, you don't buy replacement seals as the mask comes as all one unit, and it's an easy one to clean. As you'll know, I use the FitLife (and also have to buy it as our clinic don't supply it), and the mask has lasted me well over a year. I'm on my 2nd now, but that's because I wanted the new one with improvements. The only thing you may have to replace is the headgear, which lasts longer than the mask. Having said that, Respironics' headgear is a lot better than some of the other manufacturers.' There's a link to the headgear here http://www.hope2sleep.co.uk/products/47
Have you seen the pictures of little Emil with his FitLife mask on? Emil with his FitLife Mask Rachel, his Mum sent me them to help other parents struggling with masks.
Am sorry to hear the NHS won't fund this mask - some will and some won't - postcode lottery again!
-
Permalink Reply by carol murphy on
-
Hi Kath
thanks for the reply I actually speak to Emils mum as he also has Laryngomalacia :) she has been great for tips with teething issues on cpap .....just waiting on a ventilation nurse to see what I can and Cant get from the nhs .....
I am amazed at the totally different daytime child I have and he has only been on it for a week
regards
Carol
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
"No personal experience, but CPAP.com review of AirMini
The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
ResMed AirMini for travel
I am considering either buying or renting an AirMini for a forthcoming holiday this month where I will be sharing a twin room. I have read that they’re quite noisy and I don’t want to waste my money on either rental or purchase if the noise level…See More
"Hi, I use a ResMed F20 and had the same issue with the silicone full face mask causing red marks and soreness on my nose bridge. I switched over to the Airtouch memory foam full face masks which are expensive and not supplied by the NHS, but the…"
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
© 2025 Created by The SleepGuide Crew.
Powered by
