Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

I am into my 5th year of sleep problems. Have been attending drmackays clinic for four years. Have tried everything, different types of cpap. Although the more advanced one, For complex sleep issues reduced the breath holding sygnificantl. It did not improve my tiredness. I have been for several overnight and day tests etc. test indicate my major problem is that I don't seem to get into the zone that gives good satisfying sleep.

Issues, memory very poor. Tired all the time to the point of exhaustion. Sleeping more and more. Every afternoon. Seems the more I sleep the more tired I am... I have had other issues, TIAs. Severe headaches almost on a daily basis. Basically I am completely physically and mentally exhausted. Unable to undertake anything that requires physically effort.

Prior to this happening I was a very fit outdoors person, hill walker, swimmer, cyclist etc. have sold my golf clubs, bicycle, etc.. Fall asleep all the time can't even get through a movie, concert, etc etc. doc mckays view is that something has went wrong in my brain but he has no idea what and thus how to reverse it... Anyway latest idea is to try a gumshield,custom made. Anyone tried these and have they helped? My own view is "clutching straws" but I will try anything as I can't go on physically or psychologically as I am.. No life!!!

Cheers.

Views: 97

Reply to This

Replies to This Discussion

Oh David....I wish I'd seen your post last week.  I'm actually currently travelling home from the SASA (Scottish Association for Sleep Apnoea) Conference.  I was speaking there and so was Dr Tom Mackay.  Anyway, I hope you knew about the Conference and was perhaps there.

It's horrid when people are using their machines and still experiencing daytime fatigue and you're certainly with a good sleep consultant.  Can I ask if you've had your blood gases checked to make sure you're not retaining carbon dioxide?  I was and had to be taken off CPAP and put on VPAP.  Also, do you use your machine for ALL sleeps and how many hours do you manage?

I'm not sure why a gumshield would work though, assuming you're on good PAP therapy, despite the fatigue.

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Ann Murch is now a member of Hope2SleepGuide
yesterday
Cathy posted a discussion

New full face mask

Hi, I’ve been using the ResMed mirage Quattro since I was as diagnosed5 years ago. I’ve always hated it and found it so uncomfortable. Last week I bought myself a ResMed  airfit F20 with quiet air and it’s the best thing ever. Nothing covering my…See More
Wednesday
Kyla Davies joined The SleepGuide Crew's group
Wednesday
John Wilkinson replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Sharon, I have been using a Cpap machine for 7 months. I too struggled with a full face mask (Simplus as issued by sleep clinic) but I changed from a large to medium size mask and it is a lot more comfortable and, because it fits better, I…"
Jul 9
Edam replied to Edam's discussion Double inhaling
"Using the Quatro Air is certainly working. My 95% pressures are still below 15 and also Im getting a much better sleep. I think the reason its working is that the inlet is lower on the Quatro Air and is also directed downwards. This direction of…"
Jul 9
Eric Swindon added a discussion to the group Buy-Sell-Swap
Thumbnail

Unused Masks for sale

 I am offering these never used masks (all in original packaging with User Manuals) for half the current retail price (check them at www.eu-pap.co.uk) , that is £50 or £60 including shipping within the U.K. …See More
Jul 8
Eric Swindon joined The SleepGuide Crew's group
Jul 8
Profile IconKyla Davies and Trina joined Hope2SleepGuide
Jul 8
Trina replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Thanks for accepting me! I am new to the sleep apnea world, but suspect I have had it for many, many years. It was just diagnosed as many of things. "
Jul 7
Sleep2snore replied to Chris Vesey's discussion Insurance
"To be honest, I never thought about what would happen if it was stolen or damaged while away!"
Jul 6
Sleep2snore replied to Chris Vesey's discussion Insurance
"The best thing is to ask your clinic, they all appear to work their own way, also if you are going abroad it is worth checking if it is still covered.  If not you might feel better if it were covered by insurance.  Ask if your home…"
Jul 6
Sleep2snore replied to Neil Jay's discussion Remstar M series repair?
"I went off on a tangent when my brain stopped working. Philips R|esperonics Customer Support Centre (Repairs and Maintenance) 0870 532 9741"
Jul 6
sharon replied to sharon's discussion struggling with CPAP
"thank you, i will try the suggestions, I reaaly appreciate the help Sharron"
Jul 6
Kath Hope replied to Neil Jay's discussion Remstar M series repair?
"I don't think Resmed would repair a Respironics machine Sleep2Snore although I could be wrong."
Jul 5
Sleep2snore replied to sharon's discussion struggling with CPAP
"You might need to try a good few masks before you fine one that works for and with you. Once you find one they will stop making it next week if your luck is like mine! Contact your clinic and check it is not to big or get another mask. Also make…"
Jul 5
Sleep2snore replied to Neil Jay's discussion Remstar M series repair?
"I think it is a Humidifier not a Dehumidifier but that is an easy mistake to make. The humidifier is controlled from inside the machine and as far as I know, the only repairer is ResMed UK. Someone tell me otherwise! The other option and maybe…"
Jul 5
Kath Hope replied to Neil Jay's discussion Remstar M series repair?
"I've not heard of any repairers here in the UK.  If it's the System One Remstar and it's under 2 years old it has a 2-year manufacturer's warranty.  If you got it from your hospital they will change it for you."
Jul 5
Neil Jay posted a discussion

Remstar M series repair?

I have a RemStarAuto M Series CPAP machine with a dehumidifier. The dehumidifier has stopped working. I have dome some testing and the humidifier works when hooked up to another Remstar so the fault is somewhere in the main device. I have tested the…See More
Jul 5
sharon replied to sharon's discussion struggling with CPAP
"thank you, I will look at the liners"
Jul 5
Kath Hope replied to sharon's discussion struggling with CPAP
"I've just realised I've replied to some of your comments on the other 'welcome' thread.  It's definitely worth trying the liners that Amelia mentioned http://www.hope2sleep.co.uk/silent-night-mask-liners.html  I…"
Jul 4

© 2018   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service