Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

I have been diagnosed with Severe Obstructive Sleep Apnoea and the consultant and his team supplied me with a CPAP machine.  I had no problems with the physical presence of the mask but was frequently woken with a horrendous dry mouth or "surges" of air in the mask and my face.  The sleep team were extremely good and offered lots of advice and tried various masks and machines but even with the humidifier set at maximum I still experienced the horrendous dry mouth.  Once awake I was unable to get back to sleep wearing the mask so ended up taking it off to be able to get sufficient sleep  which unfortunately didn't give me the full therapeutic value.  As I was losing more sleep than I was gaining it was agreed that the CPAP machine was not for me and I was discharged from the hospital.  The consultant suggested looking into mandibular mouthguards but said the NHS did not supply them. 

I have spoken to my dentist about mandibular mouthguards and she said it would cost £750.  Before spending this money I would like to know if anyone else has used them and how efficient they are in helping with sleep apnoea. I would be glad of anyone's comments please.

Views: 114

Reply to This

Replies to This Discussion

Sorry to hear this as it's quite a worry that you no longer have CPAP with your sleep apnoea being severe Christine, as you'll no doubt know the health risks of living with untreated sleep apnoea https://www.hope2sleep.co.uk/sleep-apnoea-information.html I just wish you'd found us when you were struggling with your CPAP so that we could have helped. Dry mouth is usually very easy to treat with a CPAP humidifier and very often things like the XyliMelts. In fact if you check out this webinar replay, my own talk is all about dry mouth as if you go with a mandibular device, dry mouth is a common problem with those too. 

£750 for a mandibular device isn't expensive, but it's rare they treat severe ranges of sleep apnoea, although they can help improve the sleep apnoea and maybe take it into the moderate range. If you do go with a mandibular device we always recommend a repeat sleep study to see if the device is actually helping. If the hospital have discharged you then we do have a sleep study service at the charity on this link https://www.hope2sleep.co.uk/sleep-apnoea-home-screening-service.html

If you have a Facebook account we do have a Private Group there, where you're likely to get more responses from people who use or have tried mandibular devices so here's the link to join https://www.facebook.com/groups/SleepApnoeaSupportAndAwareness

Reply to Discussion

RSS

About

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Kath Hope replied to Glassdaisy's discussion Soft Cap
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Mar 27
Glassdaisy posted a discussion

Soft Cap

some time ago I was told that Hope2Sleep was researching a replacement for the discontinued Soft Cap.. as I have seen nothing to indicate moving forward on this, would I be right in assuming you decided it is no longer relevant?See More
Mar 27
Glassdaisy replied to Nick Daniel's discussion CPAP Total Face Mask
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
Mar 27
Wendy Anthony is now a member of Hope2SleepGuide
Mar 25
David McDade is now a member of Hope2SleepGuide
Jan 3
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"Yes, it does the job. I use a Powapacs Atom for portable power "
Dec 18, 2024
John replied to John's discussion Are every small CPAP machines any good?
"Hi Nick thanks. Does it do the job and could you camp with it?"
Dec 18, 2024
Nick Daniel posted a discussion

CPAP Total Face Mask

I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
Dec 17, 2024
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
Dec 17, 2024
Greg Lloyd is now a member of Hope2SleepGuide
Dec 6, 2024
Jonathan replied to David Hudson's discussion Pressure waking me up. Belching and wind
"Hi It sounds like you need to have more conversations with your sleep clinic.  There's little point in having a high pressure if it means you cannot tolerate the machine.  There's an interesting video here…"
Dec 1, 2024
David Hudson posted a discussion

Pressure waking me up. Belching and wind

HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
Nov 28, 2024
Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9, 2024
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3, 2024
Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
Nov 2, 2024
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Nov 2, 2024
Collette rose is now a member of Hope2SleepGuide
Oct 31, 2024
John posted a discussion
Oct 30, 2024
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Oct 29, 2024
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24, 2024

© 2025   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service