Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Hi Everyone,

I need a bit of advice from some more experienced people. I had a sleep study through the NHS last week & have been diagnosed with extreme Sleep Apnea (60-70 instances an hour). 

However I have now been told that I have to be referred to another department before I can actually receive a CPAP machine, and that this department has a 6 month waiting list!!!! This is a bit of a kick as now that I have been diagnosed I am really looking forward to some relief!

My questions is... Do I need to wait for this department or can I just go out and buy one direct? I am guessing that I cannot get a standard CPAP as I don't know what pressure I need but is an APAP machine just plug and go? 

Thanks in advance!!

Views: 225

Reply to This

Replies to This Discussion

Hi Dave, and sorry to hear you've been diagnosed with severe sleep apnoea, but when you get on CPAP you should start to feel so much better.

To purchase a CPAP machine you need a prescription from the consultant, and if you really want to purchase your own then I'd bring that up when you get your next appointment, or ring the hospital for advice.  With severe sleep apnoea you need to be monitored properly and also check it's just obstructive sleep apnoea and not central.  Lots of hospitals are happy to look after their patients even when they purchase their own machine, and it would be worth finding out which manufacturer they use too as it will be easier for them to monitor you if they have the right software from the manufacturer they use.  Different hospitals use different ones.

If you do buy one make sure you get a good one and ask if they will look after it if you do buy one.

Some clinics will supply filters and check it every year after the warranty is out.  They might even repair and give you a loan machine.  Make sure you ask these questions.  Also, ask if they will supply you with a mask and hose.  Masks can be the biggest problem and the most expensive item.  You may need several before you find the one you can get on with.

You might need to settle with the make of machine the clinic uses if they agree to service and maintain it.  If this is the case, go for the best model you can afford and make sure it is an AUTO, the reason for this is an Auto can do both Auto and Cpap.

If you need a more complicated machine, they do come at a premium price.

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"Yes, it does the job. I use a Powapacs Atom for portable power "
Wednesday
John replied to John's discussion Are every small CPAP machines any good?
"Hi Nick thanks. Does it do the job and could you camp with it?"
Wednesday
Nick Daniel posted a discussion

CPAP Total Face Mask

I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
Dec 17
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
Dec 17
Greg Lloyd is now a member of Hope2SleepGuide
Dec 6
Jonathan replied to David Hudson's discussion Pressure waking me up. Belching and wind
"Hi It sounds like you need to have more conversations with your sleep clinic.  There's little point in having a high pressure if it means you cannot tolerate the machine.  There's an interesting video here…"
Dec 1
David Hudson posted a discussion

Pressure waking me up. Belching and wind

HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
Nov 28
Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3
Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
Nov 2
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Nov 2
Collette rose is now a member of Hope2SleepGuide
Oct 31
John posted a discussion
Oct 30
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Oct 29
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep.  Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
Oct 24
Jonathan replied to John's discussion evil mask noise
"Good to know you found a solution!"
Oct 24
John replied to John's discussion Has anyone been told root cause of their OSA?
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
Oct 21
John replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Can't say I know about this."
Oct 20
John replied to John's discussion evil mask noise
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
Oct 19

© 2024   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service