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Sleep Apnoea Forum Bringing Help + Support to the Patient
pressure pain?
I am new to this site and not sure if I am using it correctly so please be patient with me.
I use a CPAP machine from the hospital but find I wake up with a pain in the region of my middle(half way between belly button and ribs). I mentioned this to the clinic but they dont seem to know why. I find the machine does not make me feel better when I wake up. I feel rather spaced out with it. Anyone else had these problems. I have used it on and off for two years but feel not benefit.
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Replies to This Discussion
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Permalink Reply by Jackie on
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LOL ... dog tired for sure.
Have a quite good night - feel like I got some quality sleep - broken as usual but not because of leaks!
my doc calls it GORD - gastro-oesophageal reflux disease - he put it into a medical report for occy health when I had to finish work (not because of the GORD though lol) and I had to ask what illness I had suddenly acquired on top of everything else lol ... felt such a fool when it was explained to me.
He said I had several co-morbidities - sounded like I was dying there and I had to look it up for reassurance.
Ignorance can be bliss or just ignorance :)
Weather is cool and dull, but oh so beautiful here in mid-Wales ... peace and quiet
xxxxxxxxxxxxxxxxx huggles all round
Jacks
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Permalink Reply by Tigers Fan on
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Your post about diagnosis by Google presses a button for me, Kath!
On the one hand, the NHS and medics, GPs and Consultants, Registrars and the rest insist on regarding patients as being so thick that they cannot possibly be given any responsibility for their treatment beyond taking pills and potions. On the other, patients find it necessary to self-diagnose-by-Google and take charge of their own treatment, in our case, DIY CPAP therapy. I know I need amoxycilin for a chest infection but I can't go to the chemist and buy some - unless I'm on the Continent, of course. If I go to my GP and ask for some, he'll give me something else - but if I go to him complaining of a chest infection, green, de dah, he gives me amoxycilin every time. It drives me nuts! I know when I need a doctor and I know when I can do it for myself and if I'm in doubt, I go to my doctor. Either doctors need to be perfect or they need to have patients involved pro-actively in their own treatment. If I ruled the world, anyway.
TF
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Permalink Reply by Sally Gould on
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Thanks to everyone replying. I dont feel on my own with this sleep apnea any more. I am going to the sleep clinic soon so will have a word about altering the pressures. Its good Kath that we can laugh over these tings. I do have other medical problems with bad pain caused by rheumatism, which Ive had since being 2, and often wonder if the Kapake I take and the Fentanyl patches add to sleep problems. I am now trying to use my machine every night after reading on this site and hope things get batter. My husband says I look like a fighter pilot about to take off when I put on the mask; lol Good idea about recording what pressures people use. Keep up the site.I think it will really grow. Also keep laughing everyone, its the best medicine.
Kath Hope said:
Good idea starting a new discussion about pressure settings. Go for it Caveman......... So often people who lose lots of weight like you did don't get their pressures altered, which is often necessary.
Thanks for sharing about Conns Syndrome. Never heard of that and learnt something new!
My husband also has a very rare disorder called Swallow Syncope which hardly anyone knows about. He used to have a mini fit/fainting episode when eating or drinking. Turns out his heart was stopping and he had to have a pacemaker fitted which has cured the problem. He struggled on for years though, until finally 'Mr Google' revealed the problem to me, and we were prompty sent to yet another heart specialist. We're a right pair - one stops breathing when she sleeps, and the other's heart stops when he eats LOL.
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Permalink Reply by Kath Hope on
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Excellent points here TF, and 100% agree!
Tigers Fan said:Your post about diagnosis by Google presses a button for me, Kath!
On the one hand, the NHS and medics, GPs and Consultants, Registrars and the rest insist on regarding patients as being so thick that they cannot possibly be given any responsibility for their treatment beyond taking pills and potions. On the other, patients find it necessary to self-diagnose-by-Google and take charge of their own treatment, in our case, DIY CPAP therapy. I know I need amoxycilin for a chest infection but I can't go to the chemist and buy some - unless I'm on the Continent, of course. If I go to my GP and ask for some, he'll give me something else - but if I go to him complaining of a chest infection, green, de dah, he gives me amoxycilin every time. It drives me nuts! I know when I need a doctor and I know when I can do it for myself and if I'm in doubt, I go to my doctor. Either doctors need to be perfect or they need to have patients involved pro-actively in their own treatment. If I ruled the world, anyway.
TF
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So pleased to hear that you feel supported now since coming on here Sally :) Totally agree that we have to keep on having a good sense of humour (most people who get dressed up like Darth Vader every night for bed have to have some humour at least!).Good point about us needing to be aware of what medication we take, as some can contribute towards sleep problems. So often people go to their GP's very depressed, when the depression is actually caused by sleep deprivation, and because the true diagnosis of sleep apnoea is missed, they are then put on anti-depressants or tranquillisers, which make the apnoeas even worse. I must point out though that NOT ALL anti-depressants do this. If alcohol, certain foods we eat, nicotine etc., can affect our sleep, then it stands to reason that some medications will as well!
Sally Gould said:Thanks to everyone replying. I dont feel on my own with this sleep apnea any more. I am going to the sleep clinic soon so will have a word about altering the pressures. Its good Kath that we can laugh over these tings. I do have other medical problems with bad pain caused by rheumatism, which Ive had since being 2, and often wonder if the Kapake I take and the Fentanyl patches add to sleep problems. I am now trying to use my machine every night after reading on this site and hope things get batter. My husband says I look like a fighter pilot about to take off when I put on the mask; lol Good idea about recording what pressures people use. Keep up the site.I think it will really grow. Also keep laughing everyone, its the best medicine.
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