"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Sleep Apnoea Forum Bringing Help + Support to the Patient
REALLY ANGRY
I have not posted on here for a while, but I really need to let off steam!!! I had a respiratory appointment today. I have been on a Philips bi pap machine for a few years but I don't seem to be getting any better. Ahi's averaging 16. It was a new nurse today. Every other appointment I have had with the other nurses, they have told me that the machine would supply what I needed automatically. Well surprise surprise it does actually have to be set up. I have literally been having to low a setting for years. So I have been getting upset and stressed because I thought I was doing something wrong when I had not, for years. It has now been set up for me so I have to go back in 2 months to see how I am doing. Why didn't they see off my readings that something was very wrong. Sorry for the rant but I needed to let off steam. PLEASE LET ME KNOW WHAT YOU THINK.
Views: 305
Replies to This Discussion
-
Permalink Reply by Kath Hope on
-
Your rant is perfectly understandable Carolyn, because if you search this forum I'm sure you will find posts from yourself going back several years when you told us your AHI was high! Thank goodness you saw the new nurse today, but it's very sad this wasn't flagged up a lot earlier!
Good luck with the new pressures and keep us posted - hope you start to feel better soon.
-
Permalink Reply by Carolyn Tipping on
-
Thank you for replying, Kath.I an really terrified at starting allover again with proper pressures. I have type 1 diabetes also and if I get stressed this plays up. I really feel I'm in a no win situation. Thank you for your support. I will message you again tomorrow to tell you how my 1st night went. I must admit I am very nervous.
-
-
Hope things are going better now Carolyn. I know it's hard for you, but try not to be stressed with what's happened in the past and you honestly have nothing to be afraid of having better pressures. If this is the problem things can only get better :)
-
Permalink Reply by Sleep2snore on
-
Not had much dealings with Bi-PAP machines. Even APAP machines are better to be set up with min' and sometimes max' pressures for best performance. Hope this works out better for you. Can't understand why they have not looked into it before? An AHI of 16 is way to high when on treatment.
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep. Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
"Can't say I know about this."
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
"Hi Jonathan, well see my nose is blocked a lot, so I mouth breath which really sucks a lot more moisture and makes my mouth dry. So I put humidity on maximum, which makes for condensation at the mask end, which becomes a demonic reed instrument.Now…"
ResMed AirSense 10 getting noisy
HelloI have an NHS issued ResMed AirSense 10 with heated humidifier. In the last couple of weeks, it's developed an annoying noise, when I inhale. It bothers me a little and my partner a lot! I sometimes get problems if the water container in the…See More
"Hi
My first question is why is condensation forming? I very occasionally get some condensation, may be once a month, but I can quickly run a finger around the inside of the mask, and wipe it away. I use a nasal mask, with the humidifier…"
"11K+? Ok that's probably where I should look then :-)"
"Hi John. Thanks for the compliment as I do my best popping on here, but it's difficult due to us now supporting 25k+ patients at the charity. To be honest, the forum is quiet because most people seem to prefer Facebook and forums aren't as…"
"There's some information here, but generally it's very common and likely due to our anatomy."
© 2024 Created by The SleepGuide Crew.
Powered by
