Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Research into Snoring Children and those with Down's Syndrome

This is a fantastic opportunity for parents and carers of Children ages 3 to 4 years old (they have enough 2 year olds now) who Snore and those beautiful children with Down's Syndrome to take part in research conducted by Dr Anna Joyce - Sleep Researcher. She is as passionate as we are in raising awareness of how both children with and without down's syndrome can live better quality of lives if their Sleep Apnoea is diagnosed and treated.
The research will be carried out in either Coventry or London (whichever is more convenient) and parents/carers will be sent home with a respiratory polygraphy kit to check for Sleep Apnoea. There is even a £40 shopping voucher given as a reward, although I'm sure many worried parents won't need enticing for a chance to check if their children are suffering from sleep disordered breathing!

"Parents and carers interested in participating with their children will be invited to attend a session lasting around an hour and a half at Coventry University or the UCL Institute of Education in London (whichever is most convenient for them) where their young ones will play games that will test their motor, visual and language skills.

Parents will also be shown how to use specialist equipment to monitor their child’s breathing during sleep, which they will then take home with them. After recording a night of sleep, they will return the equipment to Dr Joyce, who will assess whether breathing difficulties are apparent. Volunteers will be given a £40 shopping voucher in return for their taking part in the study.

 

As a psychological scientist specialising in sleep problems and how they affect people’s lives, Dr Joyce is keen to gain further insight into how disruptive sleeping patterns - particularly those related to breathing difficulties - contribute to delays in early cognitive abilities.

 

Breathing issues experienced during bedtime, like heavy snoring or gasping for air, may be a sign of obstructive sleep apnoea syndrome (OSAS), which is a disorder where the airway becomes blocked during sleep. For a number of reasons, such as low muscle tone and narrow airways, OSAS is particularly common in people with Down’s syndrome.

 

Although scientists know that OSAS is a particular culprit for causing cognitive difficulties in typically developing individuals, there is barely any research looking at people with Down’s syndrome, which is where Dr Joyce’s project comes in. 

 

Dr Anna Joyce explained:

 

Sleep is a vital process that supports a number of physical and psychological functions. We all need good sleep to perform at our best and those with sleep problems find it more difficult to learn, pay attention and remember things — so it’s not surprising that any child with poor sleep will do worse than their classmates at school.

 

“What’s more, those with neurodevelopmental disorders like Down’s syndrome often have sleep problems - actually around six in ten people with the condition experience some kind of difficulty sleeping - and this could be partly responsible for some of their other cognitive and behavioural difficulties.

 

“My research aims to help in a very practical way by improving education and quality of life for these children and their families. I’m determined get the message across to health services that all children should be screened and treated for sleep problems so that they have the best chance to be healthy and happy. “

 

Volunteers wishing to take part in Dr Joyce’s research should contact her on 024 7765 9509or email anna.joyce@coventry.ac.uk. Participants need to attend Coventry University or UCL Institute of Education for one session between now and July 2016 when testing will be taking place, and will need to be able to return the equipment that they will be using at home within one week."

Original Source http://studenttimes.org/article/news/campus-news/sn...

Views: 46

Reply to This

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Edam updated their profile
19 hours ago
N replied to Bernadette Plunkett's discussion Advice on ordering a CPAP machine from overseas
"Very interesting conversation; many thanks. Philips says (website) the machines are expected to last about 5 years. We’ll see.  I think that if you travel a lot and/or for extended periods you need something very portable. if you are away…"
yesterday
Sleep2snore replied to Bernadette Plunkett's discussion Advice on ordering a CPAP machine from overseas
"It is the manufactures own rules, but they will not look at a machine bought overseas under warranty. If you ask ResMed, they will only say that they will not honer any warranty if you buy a machine abroad. They know that they can't stop you…"
Monday
N replied to Bernadette Plunkett's discussion Advice on ordering a CPAP machine from overseas
"Hello, Yes, it is a very old fashioned way of doing business. Apple used to do the same years ago until they realised that people travel and use the Internet, and now all their products cost more or less the same globally. Furthermore, as we still…"
Monday
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Not all the clinics like supplying the FitLife (total face) mask as it's the most expensive one.  It's been a favourite one of mine for a long time, and in the early days I had to purchase it myself, but my clinic does now.  Hope…"
Sunday
Kath Hope replied to Chris Vesey's discussion Dvla / hospital
"Yes it's annoying Chris.  However, due to the fact that the DVLA themselves don't appear to know how to handle this all correctly (it depends who you reach at the time) then it's advisable not to email or ring them, but to rely…"
Sunday
Kath Hope replied to Bernadette Plunkett's discussion Advice on ordering a CPAP machine from overseas
"Welcome to the forum N.  Sorry to hear about your experience, and in actual fact the USA Store have broken the rules sending the machine from the USA as they're not supposed to.  Although they can be cheaper, it can work out more…"
Sunday
N replied to Bernadette Plunkett's discussion Advice on ordering a CPAP machine from overseas
"Hello, I ordered a DreamStation Go Auto CPAP machine from the CPAP Shop in the US - as advised on the Philips US website.The machine is not available in the UK and I wanted it for travelling - I have a DreamStation with humidifier from the NHS but…"
Sunday
N replied to John Wilkinson's discussion Dreamstation humidifier heated hose and simplus 'mask type' settings
"Hi John, I had the same problem until I disvovered that the setting for the heating was “adaptive” (works following a piece of software that switches the humidifier on/off during the night), as opposed to “fixed”. I changed…"
Sunday
N replied to Edam's discussion Amara view mask
"Hi Edam, There are several reviews on YouTube about the Amara; the results are very  mixed. I tried it and I found that it leaked too much; a real pity as the idea is very good. I then tried the ResMed F-20 (full-face, no forehead support) and…"
Sunday
N is now a member of Hope2SleepGuide
Sunday
Chris Vesey posted a discussion

Dvla / hospital

Hi,Wrote to the dvla for the correct form, phoned them when nothing arrived, form came a week later. Filled it out and sent it back 3 weeks ago, a week ago I had a letter a week ago saying they had written to the cosultant, resmed agreed to send a…See More
Sunday
Sven Mischkies replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi, thanks for the responses. I tried to loosen the straps to the point just before it starts leaking, but to no avail. I thought the Amara View would be the worst mask for me, because it sits right there where I get the numbness from the…"
Friday
Edam replied to Edam's discussion Amara view mask
"Respironics have confirmed that the slot is 2.5cm on the small and mediom cushions and 3 cm on the large"
Feb 15
Edam replied to Edam's discussion Amara view mask
Feb 15
Edam posted discussions
Feb 14
Edam replied to Edam's discussion Amara view mask
"Thanks for that. After looking through 7 pages of reviews I found somebody who had measured the slot at 1in by 0.5 in at its shortest.  As my nose is about 1.25 in wide any movement would cause a major leak. I wish Respironics would publish a…"
Feb 14
Sleep2snore replied to Edam's discussion Amara view mask
"There is some information here https://www.cpap.com/blog/amara-view-respironics/ scan down the page to see helpful comments and a guide."
Feb 14
grumpycamel updated their profile
Feb 13
grumpycamel replied to John Wilkinson's discussion Dreamstation humidifier heated hose and simplus 'mask type' settings
"Hi John, It may help if you switch on the preheat function on the DreamStation main menu before you go to bed. It warms up the humidifier for 30 minutes and switches itself off to get things warmed up. I tend to have the hose and humidifier on 5…"
Feb 13

© 2018   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service