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Hi there,

I have a connective tissue disorder that is associated with UARS (Upper Airway Resistance Syndrome).

I was wondering whether there was a sleep centre in the UK that measures UARS in patients.

I would be very grateful to hear from others.

Many thanks!

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Unfortunately, there aren't as many as we'd like there to be.  The only way of truly diagnosing UARS is via Esophageal Manometry (Pes) which is rarer still here in the UK.  Take a look at our charity's webpage on this http://www.hope2sleep.co.uk/upper-airways-resistance-syndrome.html  There are clinics that are willing to treat UARS with CPAP when UARS is suspected though.  Whereabouts do you live in the UK?  Also, have you had a sleep study as some people who assume they're suffering from UARS are often surprised to discover it's actually sleep apnoea?

That is a difficult one, but if you have a Polysomnography done a good Sleep Doctor should spot the signs, however, it is often missed unless the patient mentions it or ENT (if you attended there first before referral) suspects you might have this.  Then it will be looked for, but there is no certainly that it will be picked up.

If you suspect you have this, get your Gp to point this out before you go for a Polysomnography Sleep Study.

It can be treated but can be a bit complex to treat and sometimes requires a more complex machine.

Dear Kath, many thanks for your reply and the link to the page; apologies for my late response.

I have recently had a simple sleep study done at home, and am awaiting a more comprehensive inpatient sleep study. I will ask whether Esophageal Manometry (Pes) can be done. I am currently based in the north though potentially a move may be in the works.

I am hoping the longer sleep study will uncover some answers!


Kath Hope said:

Unfortunately, there aren't as many as we'd like there to be.  The only way of truly diagnosing UARS is via Esophageal Manometry (Pes) which is rarer still here in the UK.  Take a look at our charity's webpage on this http://www.hope2sleep.co.uk/upper-airways-resistance-syndrome.html  There are clinics that are willing to treat UARS with CPAP when UARS is suspected though.  Whereabouts do you live in the UK?  Also, have you had a sleep study as some people who assume they're suffering from UARS are often surprised to discover it's actually sleep apnoea?

Dear Sleep2snore, thanks for your reply and apologies for my late response.

In the case that UARS is detected, may I enquire what you mean regarding a more complex machine? Are you referring to BiPAP machines?

Many thanks.

Sleep2snore said:

That is a difficult one, but if you have a Polysomnography done a good Sleep Doctor should spot the signs, however, it is often missed unless the patient mentions it or ENT (if you attended there first before referral) suspects you might have this.  Then it will be looked for, but there is no certainly that it will be picked up.

If you suspect you have this, get your Gp to point this out before you go for a Polysomnography Sleep Study.

It can be treated but can be a bit complex to treat and sometimes requires a more complex machine.

Great to hear you're having an in-patient sleep study Savannah.  You may not need to investigate UARS either, because if a simple study (probably pulse oximetry) has picked up an issue that warrants an in-patient study, then it's likely that sleep apnoea itself is suspected.  Good luck and keep us posted.

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