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Sleep Apnoea Forum Bringing Help + Support to the Patient
Sleep disorder following mini stroke
Hi Kath and everybody. My name is Raza and am new to this forum. It feels really good to sound out people who have first hand experience of sleep apnoea. I am 72 not overweight and do not drink or smoke. I had a mini stroke,cerebellum, just before Christmas and since then sleep has been very disturbed. I wake three or four times, tired dazed and mildly confused. I have to sit up for a few minutes to adjust before hitting the pillow. Sleep follows instantly is heavy and unrefreshing. Daytime is marked by tiredness and sleepiness. I have been referred to the sleep clinic but have not heard anything, perhaps for obvious reasons of Covid and so on.
I have some questions. Has anyone experienced anything similar following TIA or stroke as in sudden onset of sleep disorder. Also I am wondering whether my symptoms are more akin to central rather than obstructive sleep apnoea and if so whether the Hope2Sleep testing equipment,if available, will pick up the problem anyway. Lastly I have been tracking sleep patterns on Fitbit sense and the estimated oxygen variations have been consistently high. Is this significant?
cheers and apologies for the length of this missive.
Raza
Views: 80
Replies to This Discussion
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Permalink Reply by Kath Hope on
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Hi Raza and glad you found us.
Firstly to say, there are many of us who aren't overweight, smokers or regular drinkers (mine's severe), as the main reason for sleep apnoea is due to craniofacial issues that we inherit, but of course being overweight or regular alcohol drinkers will certainly make this worse. So often it's the untreated sleep apnoea that causes weight gain due to choice of wrong foods for energy due to the sleep deprivation. Plus in REM sleep we burn calories and patients with sleep apnoea get thrown out of REM sleep regularly through the night as it's where most apnoeas happen. Smoking to a smaller degree, surprisingly in the case of sleep apnoea, even though it's obviously not a good thing to do. See the information on our main charity website about sleep apnoea https://www.hope2sleep.co.uk/sleep-apnoea-information.html
As for the TIA, that's definitely a red flag to get a sleep study and in fact there's a quote on this link “I think the implications of the study are that patients with stroke and TIA should receive early diagnostic testing with a sleep study" https://www.physiciansweekly.com/treating-sleep-apnea-may/ You'll find many other links on the internet about trials and research into sleep apnoea in patients who have had TIA's. In fact you'll find a patient story on our own website from our own treasurer who wished she'd not ignored the signs of sleep apnoea that she believes lead to her own TIA https://www.hope2sleep.co.uk/sleep-apnoea-patient-stories-karen.html
Oxygen desaturations during sleep are a sure sign that apnoeas and/or hypopnoeas are happening, and I'd encourage you to get a sleep study as soon as you can. Our own diagnostic sleep service is for obstructive sleep apnoea, as due to COVID we're having to keep the testing as simple as possible due to less contact, but the sleep consultant who carries out the diagnoses is very competent in recognising signs of central sleep apnoea as opposed to obstructive, although most people do have the obstructive form.
Sorry for the long reply, but was trying to answer all you questions at once.
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Permalink Reply by Raza silveira on
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Hi Kath
Thank you very much for the detailed response and additional links. It is quite a relief to have problems shared and acknowledged. I am requesting the sleep test over two nights for good measure and will let you know how I get on.
Raza
Kath Hope said:Hi Raza and glad you found us.
Firstly to say, there are many of us who aren't overweight, smokers or regular drinkers (mine's severe), as the main reason for sleep apnoea is due to craniofacial issues that we inherit, but of course being overweight or regular alcohol drinkers will certainly make this worse. So often it's the untreated sleep apnoea that causes weight gain due to choice of wrong foods for energy due to the sleep deprivation. Plus in REM sleep we burn calories and patients with sleep apnoea get thrown out of REM sleep regularly through the night as it's where most apnoeas happen. Smoking to a smaller degree, surprisingly in the case of sleep apnoea, even though it's obviously not a good thing to do. See the information on our main charity website about sleep apnoea https://www.hope2sleep.co.uk/sleep-apnoea-information.html
As for the TIA, that's definitely a red flag to get a sleep study and in fact there's a quote on this link “I think the implications of the study are that patients with stroke and TIA should receive early diagnostic testing with a sleep study" https://www.physiciansweekly.com/treating-sleep-apnea-may/ You'll find many other links on the internet about trials and research into sleep apnoea in patients who have had TIA's. In fact you'll find a patient story on our own website from our own treasurer who wished she'd not ignored the signs of sleep apnoea that she believes lead to her own TIA https://www.hope2sleep.co.uk/sleep-apnoea-patient-stories-karen.html
Oxygen desaturations during sleep are a sure sign that apnoeas and/or hypopnoeas are happening, and I'd encourage you to get a sleep study as soon as you can. Our own diagnostic sleep service is for obstructive sleep apnoea, as due to COVID we're having to keep the testing as simple as possible due to less contact, but the sleep consultant who carries out the diagnoses is very competent in recognising signs of central sleep apnoea as opposed to obstructive, although most people do have the obstructive form.
Sorry for the long reply, but was trying to answer all you questions at once.
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You're welcome Raza and if it's us at the charity you've booked the sleep study with then it will be me who gives you the results, and the sleep consultant we use is very thorough indeed and will take all your medical history and any medication into account. We're trying our best to get through our waiting list, as it's a little slower due to our extra COVID-safe precautions we now have to put in place, but this is to keep both you and us safe :)
Raza silveira said:Hi Kath
Thank you very much for the detailed response and additional links. It is quite a relief to have problems shared and acknowledged. I am requesting the sleep test over two nights for good measure and will let you know how I get on.
Raza
Kath Hope said:Hi Raza and glad you found us......
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Yes it is and I am reassured that I am in very good hands.
raza
Kath Hope said:You're welcome Raza and if it's us at the charity you've booked the sleep study with then it will be me who gives you the results, and the sleep consultant we use is very thorough indeed and will take all your medical history and any medication into account. We're trying our best to get through our waiting list, as it's a little slower due to our extra COVID-safe precautions we now have to put in place, but this is to keep both you and us safe :)
Raza silveira said:Hi Kath
Thank you very much for the detailed response and additional links. It is quite a relief to have problems shared and acknowledged. I am requesting the sleep test over two nights for good measure and will let you know how I get on.
Raza
Kath Hope said:Hi Raza and glad you found us......
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You definitely will be in good hands Raza and we look forward to helping you soon :) Meanwhile, if you've not registered you might want to join us this Thursday on our support webinar http://hope2sleepguide.co.uk/events/hope2sleep-charity-s-free-onlin...
Raza silveira said:Yes it is and I am reassured that I am in very good hands.
raza
Kath Hope said:You're welcome Raza and if it's us at the charity you've booked the sleep study with then it will be me who gives you the results, and the sleep consultant we use is very thorough indeed and will take all your medical history and any medication into account. We're trying our best to get through our waiting list, as it's a little slower due to our extra COVID-safe precautions we now have to put in place, but this is to keep both you and us safe :)
Raza silveira said:Hi Kath
Thank you very much for the detailed response and additional links. It is quite a relief to have problems shared and acknowledged. I am requesting the sleep test over two nights for good measure and will let you know how I get on.
Raza
Kath Hope said:Hi Raza and glad you found us......
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