"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
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Amanda Farley
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Amanda Farley's Discussions
Night time restlessness
3 Replies
Hello all, been a while since I was here.I am successfully using my APAP machine and it's now second nature to wear it.However, I have noticed recently that I am much more restless at night....I am…Continue
Started this discussion. Last reply by Kath Hope May 30, 2015.
So I am full of air....
9 Replies
Woke up at 4:45am and since then have ...ahem......burped and otherwise expelled air. Am going to be such a catch for any future potential partner lol.Just thought I'd share that with you all.;)Going…Continue
Started this discussion. Last reply by Kath Hope Jan 25, 2013.
Masks and air leaks.
23 Replies
I hate the mask I have, it's leaky (air), uncomfortable and the only way I can get it to stop leaking is to wedge it further down my face and end up with a sore bridge of my nose. In short I hate it…Continue
Started this discussion. Last reply by Kath Hope Feb 10, 2015.
I officially LOVE antibiotics.
3 Replies
So my cough progressed and by Monday morning I was breathless and the GP was mentioning hospital but allowed me away with antibiotics. Just 48hrs later I feel SO much better, no longer breathless and…Continue
Started this discussion. Last reply by Kath Hope Apr 26, 2012.
Amanda Farley's Page
Profile Information
- Treatment Being Used, if any?
- CPAP
- If Machine Being Used, What Make or Model?
- Phillips Respironics RemStar A Flex
- If Mask Being Used, What Type or Name?
- ResMed face mask
Mother, cat slave, sister, daughter, auntie, friend and niece - all these things to lots of people...and of course the cat (she who MUST be obeyed)!
Amanda Farley's Photos
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Latest Activity
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
"No personal experience, but CPAP.com review of AirMini
The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
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Glad you like the pretty hose now - makes our bedrooms look less clinical ;) I use the wipes all the time - as well as them being quick and convenient, they do a great job of removing our facial oils which helps the masks keep sealing well. I wipe mine in a morning and leave the mask to air dry on the hose lift hook, so it's all ready for bed.