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Sleep Apnoea Forum Bringing Help + Support to the Patient

Amelia Kennedy
  • Female
  • Burton on Trent
  • United Kingdom
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Amelia Kennedy's Friends

  • June Ostiadel
  • Marion@As I Live and Breathe
 

Amelia Kennedy's Page

Profile Information

Treatment Being Used, if any?
BiPAP
If Machine Being Used, What Make or Model?
NIPPY-3
If Mask Being Used, What Type or Name?
Airfit F10

Comment Wall (8 comments)

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At 0:47 on March 12, 2014, Kath Hope said…

Sorry Amelia - I almost missed your comment.  I know she'll be back here when she can or you can email her if it's easier at marion@asiliveandbreathe.co.uk

The forum can be confusing sometimes even for me

At 23:57 on March 9, 2014, Kath Hope said…

Hi Amelia

I've had a quick chat with Marion today - she's been rather poorly lately and has been in hospital twice.  Anyway, she saw the comment you'd left her, but in her tired state couldn't work out how to leave you one back, so can you add her as a friend and copy/paste it in there so she can reply easily?

Best Wishes

Kath

At 13:12 on March 7, 2014, Kath Hope said…

You're very welcome Amelia

At 15:19 on March 6, 2014, Kath Hope said…

Marion's been on hers too for around 15-20 years due to scoliosis. She's also with Papworth and this is her profile on here if you want to connect http://hope2sleepguide.co.uk/profile/MarionWhiting?xg_source=profiles_memberList  She's recently changed to a new machine and no sure if it's less bulky.

At 11:54 on March 6, 2014, Kath Hope said…

Good to hear you got the machine you needed Amelia, and we do have several people on the Nippy's - in fact one of our members, Marion from As I Live I + Breathe,  has used one for years + is the author of the book we sell 'CPAP + Ventilator Secrets.'

At 11:01 on March 6, 2014, gwatuk said…

Thanks for that - I was just curious!

At 9:06 on March 6, 2014, gwatuk said…

Hi Amelia, your profile say you use a NIPP|-2 machine - what is that?

At 17:39 on February 23, 2014, June Ostiadel said…

Hi Amelia, Welcome to Hope2Sleep. I am relatively new on here and I've already had lots of help from Kath and useful discussions with her and other members too. I'm not using the same equipment as you, however, I suppose we may still encounter similar problems (although I hope you have none)! See you around. June

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Mar 23
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Mar 21
Judith Wilson replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
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Damien replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
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Mar 13
Judith Wilson replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
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Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Judith Sorry to hear there's such a long waiting list in your area.  It's been made worse because a lot of staff from the sleep clinics are respiratory specialists and these are the very professionals who were needed in ICU and on…"
Mar 10
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Sorry I missed this question Damien but I've spoken to you since at the charity and know you should have the machine by now.  Hope things are going well."
Mar 10
Judith Wilson replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"I am rather like Damien. Got a referral to Lung/Sleep consultant but no appointments in nhs for at least 10 months. Ordered the charities two night monitoring kit to test for sleep apnoea, but will this count as diagnosis to get prescription if I…"
Mar 10
Judith Wilson is now a member of Hope2SleepGuide
Mar 10
Damien replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Kathy, i bit the bullet the other day and just ordered the apap. What is the usual waiting time for order and delivery completion in mainland UK? thanks  damien "
Mar 4
Kath Hope replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Bless you and do understand, now you've got a diagnosis with 'hope' in sight for an end, or at least vast improvements, to your symptoms.  We got some more machines ordered today, although only one APAP without a humifidier...the…"
Mar 2
Damien replied to Damien's discussion Newly diagnosed via Phillips at home test and needing advice
"Hi Kath, I’m just holding off to see final sight of my insurance docs and to speak to them (on the very unlikely chance they can do anything) but it does look like it will be excluded so will likely buy the apap this week and then see ENT…"
Mar 2

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