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Sleep Apnoea Forum Bringing Help + Support to the Patient

Amelia Kennedy
  • Female
  • Burton on Trent
  • United Kingdom
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Amelia Kennedy's Friends

  • June Ostiadel
  • Marion@As I Live and Breathe
 

Amelia Kennedy's Page

Latest Activity

Amelia Kennedy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Sharon, I can empathise!  For 18 years I had no problem at all, then recently both my mask and machine became obsolete and I'm really struggling with the new equipment.  I don't actually use a CPAP machine, I use a NIPPY-3…"
Jul 4, 2018
Amelia Kennedy updated their profile
Mar 31, 2018
Amelia Kennedy updated their profile photo
Mar 31, 2018
Amelia Kennedy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Kath, thanks for the reply! I've tried every size of (possibly) every available mask and they all leak.  Thanks for the link ... I'll take a look. I may well try one of the pad-a-cheeks as the reviews are pretty good and…"
Mar 3, 2018
Amelia Kennedy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi all, just saying "hello" to fellow sleep apnoea sufferers.  I'm 59 and have been using Nippy ventilators for the last 20 years for my combination apnoea caused by a brain haemorrhage.  I'm treated at Papworth and…"
Mar 3, 2018

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea
Treatment Being Used, If Any
BiPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
NIPPY-3
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Airfit F10

Comment Wall (8 comments)

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At 0:47 on March 12, 2014, Kath Hope said…

Sorry Amelia - I almost missed your comment.  I know she'll be back here when she can or you can email her if it's easier at marion@asiliveandbreathe.co.uk

The forum can be confusing sometimes even for me

At 23:57 on March 9, 2014, Kath Hope said…

Hi Amelia

I've had a quick chat with Marion today - she's been rather poorly lately and has been in hospital twice.  Anyway, she saw the comment you'd left her, but in her tired state couldn't work out how to leave you one back, so can you add her as a friend and copy/paste it in there so she can reply easily?

Best Wishes

Kath

At 13:12 on March 7, 2014, Kath Hope said…

You're very welcome Amelia

At 15:19 on March 6, 2014, Kath Hope said…

Marion's been on hers too for around 15-20 years due to scoliosis. She's also with Papworth and this is her profile on here if you want to connect http://hope2sleepguide.co.uk/profile/MarionWhiting?xg_source=profiles_memberList  She's recently changed to a new machine and no sure if it's less bulky.

At 11:54 on March 6, 2014, Kath Hope said…

Good to hear you got the machine you needed Amelia, and we do have several people on the Nippy's - in fact one of our members, Marion from As I Live I + Breathe,  has used one for years + is the author of the book we sell 'CPAP + Ventilator Secrets.'

At 11:01 on March 6, 2014, gwatuk said…

Thanks for that - I was just curious!

At 9:06 on March 6, 2014, gwatuk said…

Hi Amelia, your profile say you use a NIPP|-2 machine - what is that?

At 17:39 on February 23, 2014, June Ostiadel said…

Hi Amelia, Welcome to Hope2Sleep. I am relatively new on here and I've already had lots of help from Kath and useful discussions with her and other members too. I'm not using the same equipment as you, however, I suppose we may still encounter similar problems (although I hope you have none)! See you around. June

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Latest Activity

Profile IconJune Curtin and Frank Fartin joined Hope2SleepGuide
yesterday
Lee replied to Lee's discussion DreamWear full face
"Well I turned EPR on and tried the mask again last night, but again I stopped breathing which woke me up gasping for air. It seems to happen just after or not long after I drop off, after the third time I changed mask back to original one and went…"
Monday
Kath Hope replied to Lee's discussion DreamWear full face
"Sorry for the delay as I managed to get myself locked out of the forum lol.  Please don't be messing with the pressures and contact your hospital if your wife has noticed you looking gray.  Perhaps go back to a different mask until…"
Friday
Edam replied to Edam's discussion APAP or BIPAP
"There is no link between the 95% pressure and the AHI. A few nights back my 95% pressure was 19.46 with AHI 0 Last night my 95% pressure was 17 with AHI 0 When the AHI does increase its normally hypopnoea,s So why does the APAP want to increase the…"
Friday
Lee replied to Lee's discussion DreamWear full face
"Hi thanks for the reply’s I will look at this as the wife said I was gray yesterday and after looking at the instructions again it says about the symptoms I had to not use and talk to my clinic so a bit worried. I used my other full face mask…"
Friday
Sleep2snore replied to Lee's discussion DreamWear full face
"I would say if you have the Ramp Start enabled to make it start at a higher pressure.  Check also if you are using a big enough cushion as this is a common mistake.  Same with Nasal Pillows, people tend too use a size to small. Check you…"
Thursday
Sleep2snore replied to Edam's discussion APAP or BIPAP
"That is not impossible, even dust and mites can cause problems, even the mites that are so tiny you can't see them and they live on your body.  However, only you yourself can work out if certain food make things worse.  It could be…"
Thursday
Edam replied to Edam's discussion APAP or BIPAP
"I am now finding that the pressure the APAP runs at during the night is dependent  on what I have eaten that evening. I have found that if I have bolied rice rather than chips with the evening meal then my 95% pressure can reduce by as much as…"
Mar 14
Kath Hope replied to Lee's discussion DreamWear full face
"Hi Lee.  Sorry to hear you're still having problems with masks.  It's not normal to feel there's not enough air with the DreamWear as that mask usually give people the opposite sensation of feeling more pressure than…"
Mar 13
Lee posted a discussion

DreamWear full face

Hi all I’m having trouble with my DreamWear full face mask,I’ve spent a long time getting the fit right but I have two problems 1. The bit between my nostrils somehow hurts it’s bearable but I would sooner not have the pain and 2. I have to breathe…See More
Mar 13
Sleep2snore replied to SleepyHead's discussion NHS or Private to get diagnosis to determine treatment
"How are you getting on, any progress?"
Mar 5
Sleep2snore replied to Edam's discussion APAP or BIPAP
"I was not off for a few days. The results were the same as when I started! Which I have to say was bad!"
Mar 5
Felicity Goodliffe is now a member of Hope2SleepGuide
Mar 5
Edam replied to Edam's discussion APAP or BIPAP
"It is my understanding that when a new sleep test is required you need to be off CPAP for a few days to get a accurate test. Is this correct The London hospital does not seem to be aware of this"
Mar 4
John Brown is now a member of Hope2SleepGuide
Mar 2
SleepyHead replied to SleepyHead's discussion NHS or Private to get diagnosis to determine treatment
"Thank you - that is very helpful"
Feb 26
Sleep2snore replied to SleepyHead's discussion NHS or Private to get diagnosis to determine treatment
"Private and will not be cheap!  London Sleep Clinic (PRIVATE) London Bridge Hospital  know nothing about this one. Sleep & Snoring Institute  Know nothing about this one either, If you are near London try getting to one of the…"
Feb 25
Sleep2snore replied to Edam's discussion APAP or BIPAP
"Sleepyhead YouTube.  Sleepyhead on YouTube"
Feb 25
Sleep2snore replied to Edam's discussion APAP or BIPAP
"As you say that would be difficult.  I would keep it in APAP mode.  All you can do is to keep the high pressure open and start with the low at 10 and go up a step at a time and see where you do best, though if your needs change so much you…"
Feb 25
Lee replied to David thompson's discussion SELLING cpap airsense10 elite machine with travel bag and accessories in the group Buy-Sell-Swap
"Hi is this sold ?"
Feb 25

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