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Sleep Apnoea Forum Bringing Help + Support to the Patient

Amelia Kennedy
  • Female
  • Burton on Trent
  • United Kingdom
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Amelia Kennedy's Friends

  • June Ostiadel
  • Marion@As I Live and Breathe
 

Amelia Kennedy's Page

Latest Activity

Amelia Kennedy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Sharon, I can empathise!  For 18 years I had no problem at all, then recently both my mask and machine became obsolete and I'm really struggling with the new equipment.  I don't actually use a CPAP machine, I use a NIPPY-3…"
Jul 4
Amelia Kennedy updated their profile
Mar 31
Amelia Kennedy updated their profile photo
Mar 31
Amelia Kennedy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Kath, thanks for the reply! I've tried every size of (possibly) every available mask and they all leak.  Thanks for the link ... I'll take a look. I may well try one of the pad-a-cheeks as the reviews are pretty good and…"
Mar 3
Amelia Kennedy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi all, just saying "hello" to fellow sleep apnoea sufferers.  I'm 59 and have been using Nippy ventilators for the last 20 years for my combination apnoea caused by a brain haemorrhage.  I'm treated at Papworth and…"
Mar 3

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea
Treatment Being Used, If Any
BiPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
NIPPY-3
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Airfit F10

Comment Wall (8 comments)

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At 0:47 on March 12, 2014, Kath Hope said…

Sorry Amelia - I almost missed your comment.  I know she'll be back here when she can or you can email her if it's easier at marion@asiliveandbreathe.co.uk

The forum can be confusing sometimes even for me

At 23:57 on March 9, 2014, Kath Hope said…

Hi Amelia

I've had a quick chat with Marion today - she's been rather poorly lately and has been in hospital twice.  Anyway, she saw the comment you'd left her, but in her tired state couldn't work out how to leave you one back, so can you add her as a friend and copy/paste it in there so she can reply easily?

Best Wishes

Kath

At 13:12 on March 7, 2014, Kath Hope said…

You're very welcome Amelia

At 15:19 on March 6, 2014, Kath Hope said…

Marion's been on hers too for around 15-20 years due to scoliosis. She's also with Papworth and this is her profile on here if you want to connect http://hope2sleepguide.co.uk/profile/MarionWhiting?xg_source=profiles_memberList  She's recently changed to a new machine and no sure if it's less bulky.

At 11:54 on March 6, 2014, Kath Hope said…

Good to hear you got the machine you needed Amelia, and we do have several people on the Nippy's - in fact one of our members, Marion from As I Live I + Breathe,  has used one for years + is the author of the book we sell 'CPAP + Ventilator Secrets.'

At 11:01 on March 6, 2014, gwatuk said…

Thanks for that - I was just curious!

At 9:06 on March 6, 2014, gwatuk said…

Hi Amelia, your profile say you use a NIPP|-2 machine - what is that?

At 17:39 on February 23, 2014, June Ostiadel said…

Hi Amelia, Welcome to Hope2Sleep. I am relatively new on here and I've already had lots of help from Kath and useful discussions with her and other members too. I'm not using the same equipment as you, however, I suppose we may still encounter similar problems (although I hope you have none)! See you around. June

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Latest Activity

Glassdaisy joined The SleepGuide Crew's group
19 hours ago
Edam replied to Edam's discussion Double inhaling
"Its me not the machine. The S9 has been checked by Resmed and no fault was found but the circuit board was changed as a precaution. I have used another S9 but had the same problem. I have been told by the hospital that despite my AHI being under 1…"
Tuesday
Sleep2snore replied to Edam's discussion Double inhaling
"Don't rule out a fault with the machine or restricted airflow. I would also not rule out that you might be one of the few that needs a different machine. In any case, it should not go to 20 and sit there, I would get it checked or replaced. If…"
Tuesday
Edam replied to Edam's discussion Double inhaling
"Before I make a decision I am going to try something different. I have noticed that when it goes up to 20 most times it has done so when the pressure has dropped to minimum which is 12 at present. I will increase the minimum pressure to 14 so…"
Monday
Edam replied to Edam's discussion Double inhaling
"I think its time to make a decision. Either buy another make of APAP or get referred to another hospital which supplies a different make"
Monday
Sleep2snore replied to Edam's discussion Double inhaling
"That is hard to believe.  A pressure of 20 is quite high and very few require that amount of pressure. 1 ltr/min is nothing, the machine should cope with that without any problems at all. A lot of people get mixed up with pressure and…"
Sunday
Edam replied to Edam's discussion Double inhaling
"I thought I had this problem solved but it got stuck at 20 again last night. My 95% pressure was 19, AHI  0.1 and leak 1 l/min. Sleepyhead shows that it was stuck at 20 for approx 30 mins ."
Sunday
Debra Wells is now a member of Hope2SleepGuide
Nov 9
Sleep2snore replied to Ruth Furniss's discussion Cold air
"Don't know what machine ou have, but a heated hose can help a lot. You can get them as a stand alone but it is not ideal. If your machine has the facility for a heated hose it might be worth the investment. Heating the room will help."
Oct 30
Sleep2snore replied to Renee Rowlands's discussion Recommendation please for Oximeter purchase.
"There are plenty on the market, but one thing I would make sure it did was to store the data for printing or downloading. There are plenty that say they do this and don't, so be aware of buying off Amazon or Ebay."
Oct 28
Kath Hope replied to Ruth Furniss's discussion Cold air
"Like you say yourself Ruth, warming up the bedroom will help, but also if you don't have a heated humidifier then that would help - as will covering the tube with a Hose Cover."
Oct 28
Steve Bacall is now a member of Hope2SleepGuide
Oct 28
Ruth Furniss posted a discussion

Cold air

Hi I have sleep apnoea & Copd this is my first winter using cpap, found it very hard to sleep last night because of breathing in cold air was wondering if anyone had any suggestions on how to warm the air up besides sleeping in a warm room? I…See More
Oct 28
Mark Darbyshire is now a member of Hope2SleepGuide
Oct 20
Bill Thomson added a discussion to the group Buy-Sell-Swap
Thumbnail

ResMed DC-DC converter for S9

I have for sale a converter which allows the S9 machine, which requires a 24v supply, to run from a vehicle 12v or 24v DC socket, or direct from a 12v battery. The converter can power a humidifier and heated tube as well as the CPAP machine,…See More
Oct 13
Bill Thomson joined The SleepGuide Crew's group
Oct 13
Sleep2snore replied to Chris Vesey's discussion Cure for wind
"It would depend if there was a smell or not "
Oct 9
Sleep2snore replied to Edam's discussion Double inhaling
"I'll be interested to know what you have found.  Give it time so you can prove what is happening. I had my machine pulse at full pressure for the second time when it was switched on, turning it off then on again a couple of times with a…"
Oct 9
Mark bowerman is now a member of Hope2SleepGuide
Oct 9
Renee Rowlands posted a discussion

Recommendation please for Oximeter purchase.

Hello everyone!I would very much like to check my oxygen levels during the night.  Can anyone recommend an Oximeter to purchase please?My mask is a F&P Brevida which has soft straps and one of the straps slips up my head during the night, making…See More
Oct 7

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