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Sleep Apnoea Forum Bringing Help + Support to the Patient

Amelia Kennedy
  • Female
  • Burton on Trent
  • United Kingdom
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Amelia Kennedy's Friends

  • June Ostiadel
  • Marion@As I Live and Breathe
 

Amelia Kennedy's Page

Profile Information

Treatment Being Used, if any?
BiPAP
If Machine Being Used, What Make or Model?
NIPPY-3
If Mask Being Used, What Type or Name?
Airfit F10

Comment Wall (8 comments)

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At 0:47 on March 12, 2014, Kath Hope said…

Sorry Amelia - I almost missed your comment.  I know she'll be back here when she can or you can email her if it's easier at marion@asiliveandbreathe.co.uk

The forum can be confusing sometimes even for me

At 23:57 on March 9, 2014, Kath Hope said…

Hi Amelia

I've had a quick chat with Marion today - she's been rather poorly lately and has been in hospital twice.  Anyway, she saw the comment you'd left her, but in her tired state couldn't work out how to leave you one back, so can you add her as a friend and copy/paste it in there so she can reply easily?

Best Wishes

Kath

At 13:12 on March 7, 2014, Kath Hope said…

You're very welcome Amelia

At 15:19 on March 6, 2014, Kath Hope said…

Marion's been on hers too for around 15-20 years due to scoliosis. She's also with Papworth and this is her profile on here if you want to connect http://hope2sleepguide.co.uk/profile/MarionWhiting?xg_source=profiles_memberList  She's recently changed to a new machine and no sure if it's less bulky.

At 11:54 on March 6, 2014, Kath Hope said…

Good to hear you got the machine you needed Amelia, and we do have several people on the Nippy's - in fact one of our members, Marion from As I Live I + Breathe,  has used one for years + is the author of the book we sell 'CPAP + Ventilator Secrets.'

At 11:01 on March 6, 2014, gwatuk said…

Thanks for that - I was just curious!

At 9:06 on March 6, 2014, gwatuk said…

Hi Amelia, your profile say you use a NIPP|-2 machine - what is that?

At 17:39 on February 23, 2014, June Ostiadel said…

Hi Amelia, Welcome to Hope2Sleep. I am relatively new on here and I've already had lots of help from Kath and useful discussions with her and other members too. I'm not using the same equipment as you, however, I suppose we may still encounter similar problems (although I hope you have none)! See you around. June

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Latest Activity

Ben updated their profile
yesterday
Profile IconBen, Jason Nel and paul cownley joined Hope2SleepGuide
yesterday
John posted a discussion

Do tongue exercises work ?

Hi,I saw a study on the internet in which OSA was alleviated with tongue exercises, and some UK medics recommend exercises - thinking of Mike Dilkes, but I spoke to a local consultant and he said there was no evidence that exercises work. Is there…See More
Oct 6
John replied to John's discussion Getting a precise diagnosis - scans ?
"Thank you for your thoughtful reply Kath. I still think the incisor filing sounds credible because moving my jaw forward a little, makes everything feel better in my throat and face, so it would be interesting to read about some cases. But as you…"
Oct 5
Kath Hope replied to John's discussion Getting a precise diagnosis - scans ?
"Ha, that's typical John, as your GP would have been able to give you a good examination. Regarding the conflicting advice you've been given regarding jaw surgery, that's very difficult. We've come across several people who have…"
Oct 1
Kath Hope replied to Sally Gray's discussion Cleaning products advice please!
"Hi Sally You're right that we do have to keep a good cleaning regime with our CPAP and daily mask cleaning will help prevent leakage, as a lot of this is caused due to facial oils left behind on the mask cushion. Resmed have recently published…"
Oct 1
Sally Gray posted a discussion

Cleaning products advice please!

I’m looking for some cleaning advice but the existing threads here are quite old so I am starting a new one. I realise that I have been appallingly lax with cleaning my ResMed AirSense CPAP which I’ve had for over 3 years. I’ve only been doing it…See More
Oct 1
John replied to John's discussion Getting a precise diagnosis - scans ?
"Thank you for your reply Kath. Well, I sort of lucked out because my GP was an ENT specialist who started getting into my case but he went elsewhere after Covid came so that was that.Year ago my dentist wanted to fiddle with my teeth to allow my jaw…"
Sep 30
Kath Hope replied to John's discussion Getting a precise diagnosis - scans ?
"Sorry for such a long delay to your question John, as we're inundated at the Hope2Sleep Charity (who run this group) at the moment. The reasons are not always given as a lot of sleep clinics are run by respiratory departments, yet with…"
Sep 30
David W replied to Dee Dee's discussion Free Resmed CPAP masks, postage costs only to pay in the group Buy-Sell-Swap
"Hi Dee Dee.  I'm probably a bit late to this, but would be interested in the Airfit F20 Large if it's still available. Happy to make a donation to charity too.  Thank you. "
Sep 27
David W joined The SleepGuide Crew's group
Sep 27
David W is now a member of Hope2SleepGuide
Sep 27
Darthgal replied to Sophie's discussion ResMed AirSense 10 AutoSet For Her - for sale in the group Buy-Sell-Swap
"Hi i haven't heard back from you in a while  - are you still selling your things? i had replied to your email with further questions regarding  postal insurance and packing . Did you receive that? "
Sep 26
Daniel James added a discussion to the group Buy-Sell-Swap
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For Sale: Resmed Airsense 10 Autoset

Resmed Airsense 10 AutosetI have a Resmed Airsense 10 Autoset that is surplus to my requirements. When I was diagnosed with moderate sleep apnoea I received from the NHS a Resmed Escape S9 fixed pressure machine. With use I found my pressure…See More
Sep 24
Profile IconDaniel James and John joined The SleepGuide Crew's group
Sep 24
John posted a discussion

Getting a precise diagnosis - scans ?

Hi all, so, OK I got a diagnosis of OSA and was given a CPAP machine.Finding out exactly what the problem is has not proven so easy. By exact problem I mean what the structural problem in my throat is - small jaw, blocked nose, big tongue, fat neck…See More
Sep 24
John replied to Dee Dee's discussion Free Resmed CPAP masks, postage costs only to pay in the group Buy-Sell-Swap
"Aha, hi Dee Dee I'd be interested in that Mirage FX if you still have it... ?"
Sep 23
John is now a member of Hope2SleepGuide
Sep 23
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Karen Sorry but pleased as well to hear you've just been diagnosed, because once you're on CPAP you should start to feel so much better and should be protected from the many other conditions untreated sleep apnoea causes or exacerbates…"
Sep 21
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"You're welcome Mark. I think we currently have about a 10 day waiting list, and as soon as you're at the top you'll be sent a link to complete the required COVID and health questions, and look forward to helping you again soon."
Sep 21

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