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Sleep Apnoea Forum Bringing Help + Support to the Patient

Amelia Kennedy
  • Female
  • Burton on Trent
  • United Kingdom
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Amelia Kennedy's Friends

  • June Ostiadel
  • Marion@As I Live and Breathe
 

Amelia Kennedy's Page

Latest Activity

Amelia Kennedy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Sharon, I can empathise!  For 18 years I had no problem at all, then recently both my mask and machine became obsolete and I'm really struggling with the new equipment.  I don't actually use a CPAP machine, I use a NIPPY-3…"
Jul 4, 2018
Amelia Kennedy updated their profile
Mar 31, 2018
Amelia Kennedy updated their profile photo
Mar 31, 2018
Amelia Kennedy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Kath, thanks for the reply! I've tried every size of (possibly) every available mask and they all leak.  Thanks for the link ... I'll take a look. I may well try one of the pad-a-cheeks as the reviews are pretty good and…"
Mar 3, 2018
Amelia Kennedy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi all, just saying "hello" to fellow sleep apnoea sufferers.  I'm 59 and have been using Nippy ventilators for the last 20 years for my combination apnoea caused by a brain haemorrhage.  I'm treated at Papworth and…"
Mar 3, 2018

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea
Treatment Being Used, If Any
BiPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
NIPPY-3
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Airfit F10

Comment Wall (8 comments)

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At 0:47 on March 12, 2014, Kath Hope said…

Sorry Amelia - I almost missed your comment.  I know she'll be back here when she can or you can email her if it's easier at marion@asiliveandbreathe.co.uk

The forum can be confusing sometimes even for me

At 23:57 on March 9, 2014, Kath Hope said…

Hi Amelia

I've had a quick chat with Marion today - she's been rather poorly lately and has been in hospital twice.  Anyway, she saw the comment you'd left her, but in her tired state couldn't work out how to leave you one back, so can you add her as a friend and copy/paste it in there so she can reply easily?

Best Wishes

Kath

At 13:12 on March 7, 2014, Kath Hope said…

You're very welcome Amelia

At 15:19 on March 6, 2014, Kath Hope said…

Marion's been on hers too for around 15-20 years due to scoliosis. She's also with Papworth and this is her profile on here if you want to connect http://hope2sleepguide.co.uk/profile/MarionWhiting?xg_source=profiles_memberList  She's recently changed to a new machine and no sure if it's less bulky.

At 11:54 on March 6, 2014, Kath Hope said…

Good to hear you got the machine you needed Amelia, and we do have several people on the Nippy's - in fact one of our members, Marion from As I Live I + Breathe,  has used one for years + is the author of the book we sell 'CPAP + Ventilator Secrets.'

At 11:01 on March 6, 2014, gwatuk said…

Thanks for that - I was just curious!

At 9:06 on March 6, 2014, gwatuk said…

Hi Amelia, your profile say you use a NIPP|-2 machine - what is that?

At 17:39 on February 23, 2014, June Ostiadel said…

Hi Amelia, Welcome to Hope2Sleep. I am relatively new on here and I've already had lots of help from Kath and useful discussions with her and other members too. I'm not using the same equipment as you, however, I suppose we may still encounter similar problems (although I hope you have none)! See you around. June

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Latest Activity

Dennis Pramas replied to Darryl Milligan's discussion Humidity and AHI
"Hi Darryl, I have a similar experience concerning increased humidity and AHI. For about one year I have been using the ResMed s9 Autoset with F20 mask, a pressure setting of 10 cm H2O without a humidifier and have been averaging AHI below 5. The…"
19 hours ago
Profile IconDianne Shaw and Dennis Pramas joined Hope2SleepGuide
Thursday
Terry James posted a discussion

First week with CPAP and it's not going well

Hi all,First of all, I would like to say what a great forum! I feel I might just be using this more often.A little background if I may?I was diagnosed late last year with OSA, with an AHI of 29 - so on the edge of severe OSA. If I'm honest, I wasn't…See More
Tuesday
May posted discussions
Monday
Profile IconMay, Terry James and Mark A joined Hope2SleepGuide
Monday
Profile IconMark Grocock and Lynne J Austin joined Hope2SleepGuide
Jan 5
Tony Westcott updated their profile
Jan 2
Donna Batters is now a member of Hope2SleepGuide
Dec 29, 2018
Lemongrape is now a member of Hope2SleepGuide
Dec 23, 2018
Mags updated their profile
Dec 21, 2018
Mags left a comment for Mags
"Hello Everyone   I'm so glad I've found this wonderful informative site.  Just been diagnosed recently with sleep apnea and finding it all very difficult.  Just cannot get used to wearing the mask and take it off most…"
Dec 18, 2018
Kath Hope replied to Ruth Furniss's discussion Blocked nose
"Definitely nothing inside the humidifier chamber except plain water.  Olbas Oil on a tissue or Vicks as Eric states, and there's a more detailed article on the website here https://www.hope2sleep.co.uk/blog/cpap-masks-with-a-cold.html"
Dec 18, 2018
Eric Swindon replied to Ruth Furniss's discussion Blocked nose
"I have never done that because the general consensus is that any addition to the humidifier chamber might corode the metal plate. However, I do get the odd cold and frequently suffer from blocked nose at least on one side and my answer which works…"
Dec 17, 2018
Ruth Furniss posted a discussion

Blocked nose

If you have a cold and blocked nose can you put a couple of drops of olbas oil in your humidifier water?See More
Dec 17, 2018
Mags is now a member of Hope2SleepGuide
Dec 17, 2018
Rod J Brunton posted a discussion

NEEDED: CPAP nasal pillow style mask & headgear - FX, DREAMWEAR or any similar style

Does anyone have a nasal pillow style mask & headgear they don't like or don't use? Mine vanished somewhere between Vancouver & Glasgow & I didn't notice till I got to Kirky.  I have a spare one at home, but that's not helping me while I…See More
Dec 12, 2018
Rod J Brunton is now a member of Hope2SleepGuide
Dec 12, 2018
Andy Falconer updated their profile
Dec 11, 2018
Andy Falconer replied to Andy Falconer's discussion First night with CPAP
"Hi Kath, I'm hoping the next few nights will see me get my AHI down further, but i'm also keen not to put too much pressure on the situation. I have to say i'm very impressed with the Hope2Sleep service so far, with regular updates…"
Dec 11, 2018
Kath Hope replied to Andy Falconer's discussion First night with CPAP
"Hi Andy. That's a good first night and sounding positive already. You may find your AHI comes down over the next few nights. Ideally we're looking for it to be up to 5 which is classed as 'normal.'  Your other goods will be…"
Dec 11, 2018

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