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Amelia Kennedy
  • Female
  • Burton on Trent
  • United Kingdom
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Amelia Kennedy's Friends

  • June Ostiadel
  • Marion@As I Live and Breathe
 

Amelia Kennedy's Page

Latest Activity

Amelia Kennedy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Sharon, I can empathise!  For 18 years I had no problem at all, then recently both my mask and machine became obsolete and I'm really struggling with the new equipment.  I don't actually use a CPAP machine, I use a NIPPY-3…"
Jul 4
Amelia Kennedy updated their profile
Mar 31
Amelia Kennedy updated their profile photo
Mar 31
Amelia Kennedy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Kath, thanks for the reply! I've tried every size of (possibly) every available mask and they all leak.  Thanks for the link ... I'll take a look. I may well try one of the pad-a-cheeks as the reviews are pretty good and…"
Mar 3
Amelia Kennedy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi all, just saying "hello" to fellow sleep apnoea sufferers.  I'm 59 and have been using Nippy ventilators for the last 20 years for my combination apnoea caused by a brain haemorrhage.  I'm treated at Papworth and…"
Mar 3

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea
Treatment Being Used, If Any
BiPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
NIPPY-3
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Airfit F10

Comment Wall (8 comments)

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At 0:47 on March 12, 2014, Kath Hope said…

Sorry Amelia - I almost missed your comment.  I know she'll be back here when she can or you can email her if it's easier at marion@asiliveandbreathe.co.uk

The forum can be confusing sometimes even for me

At 23:57 on March 9, 2014, Kath Hope said…

Hi Amelia

I've had a quick chat with Marion today - she's been rather poorly lately and has been in hospital twice.  Anyway, she saw the comment you'd left her, but in her tired state couldn't work out how to leave you one back, so can you add her as a friend and copy/paste it in there so she can reply easily?

Best Wishes

Kath

At 13:12 on March 7, 2014, Kath Hope said…

You're very welcome Amelia

At 15:19 on March 6, 2014, Kath Hope said…

Marion's been on hers too for around 15-20 years due to scoliosis. She's also with Papworth and this is her profile on here if you want to connect http://hope2sleepguide.co.uk/profile/MarionWhiting?xg_source=profiles_memberList  She's recently changed to a new machine and no sure if it's less bulky.

At 11:54 on March 6, 2014, Kath Hope said…

Good to hear you got the machine you needed Amelia, and we do have several people on the Nippy's - in fact one of our members, Marion from As I Live I + Breathe,  has used one for years + is the author of the book we sell 'CPAP + Ventilator Secrets.'

At 11:01 on March 6, 2014, gwatuk said…

Thanks for that - I was just curious!

At 9:06 on March 6, 2014, gwatuk said…

Hi Amelia, your profile say you use a NIPP|-2 machine - what is that?

At 17:39 on February 23, 2014, June Ostiadel said…

Hi Amelia, Welcome to Hope2Sleep. I am relatively new on here and I've already had lots of help from Kath and useful discussions with her and other members too. I'm not using the same equipment as you, however, I suppose we may still encounter similar problems (although I hope you have none)! See you around. June

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Latest Activity

Edam replied to Edam's discussion Double inhaling
"I trialled the Sleepweaver before it came out, I believe I still have it somewhere, but I could not get on with it then. I used a liner on the Dreamwear last night but still was too painful to use and had to change masks during the early hours..…"
3 hours ago
Edam replied to Edam's discussion Double inhaling
3 hours ago
Kath Hope replied to Chris Vesey's discussion Cure for wind
"This is a common problem Sally, and especially when new to CPAP, irrespective of whatever machines people use.  It's definitely not just an Airsense 10 problem. If you've not clicked on the link I posted above in my reply to Chris…"
yesterday
Sally Gray replied to Chris Vesey's discussion Cure for wind
"Hi, it’s interesting to read Chris’s comment that the AirSense 10 has given him flatulence whereas his previous CPAP wasn’t a problem.  I’m new to using a CPAP and have been provided with an AirSense 10 which I’m…"
Monday
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"I'm not aware of finance, and we at the Hope2Sleep Charity certainly couldn't offer this unfortunately.  However, if you have a Paypal account then you can apply for Paypal Credit which is offered for products over £150 I…"
Sunday
Kyla Davies replied to Bob Blair's discussion So Clean sanitiser
"Hi Kath In relation to the Soclean do you know if any finance is available to purchase one of these machines? I do not mind spending that amount on one but would be very helpful especially this time of year to purchase one on a finance…"
Sunday
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"Great to hear this Andy Just as importantly they will help prevent gum disease from dry mouth (plus less dental bills)."
Friday
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Tried one Xylimelts last night. Best sleep in ages. No waking up with a terrible dry mouth. Very pleased thank you"
Friday
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"Thanks for supporting our charity with your order Andy, and they'll be sent out tomorrow.  I love the Beaumont Citrus Wipes and have tried all the others, and these are definitely the best.  I use them everyday. Hope you find the…"
Sep 11
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Have just placed an order for some mask wipes and the mouth discs. Thanks for the recommendation of the discs, fingers crossed."
Sep 11
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"The SoClean will never be supplied by the NHS as they can't afford to give out products like this.  We have the SoClean at the charity at the price we've been told it has to be sold for…"
Sep 11
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Thank you for quick reply. The advert was on TV again this afternoon with a web address that links to an Amazon site. After a bit of research I have found a UK seller for £245 with 30 day return. Still not convinced so called my Respiratory…"
Sep 11
Sleep2snore replied to Edam's discussion Double inhaling
"I am sure they are not, but a lt of people tend to tighten their masks up to tightly. A lot more than they need to to stop leaks, I was no exception at the start, if it leaked, tighten it more, but this was not the answer.  New mask the correct…"
Sep 11
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"I still haven't seen the advert Andy, but lots of people are contacting us about purchasing.  First and foremost, whether with the SoClean or not, it is important to keep our equipment cleaned.  You're doing the right thing…"
Sep 10
Andy Dykes updated their profile
Sep 10
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Oh dear. Looks like I'm in trouble! I have used a CPAP machine for more than 10 years (not the same one) and currently have a Remstar System One SE. Have just seen an advert on TV for the SoClean which got me wondering how often are you…"
Sep 10
Andy Dykes is now a member of Hope2SleepGuide
Sep 10
Edam replied to Edam's discussion Double inhaling
"The only trouble is that both the Amara View and the Dreamwear are too painful to wear. The part of the cushion separating the mouth area from the nose cuts in!! to the base of my nose and partly into my nostrils."
Sep 9
Sleep2snore replied to Edam's discussion Double inhaling
"Good detective work."
Sep 8
Sleep2snore replied to ged's discussion no EPR setting REsmed S8 spirit 2 autoset
Sep 8

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