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Sleep Apnoea Forum Bringing Help + Support to the Patient

Amelia Kennedy
  • Female
  • Burton on Trent
  • United Kingdom
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Amelia Kennedy's Friends

  • June Ostiadel
  • Marion@As I Live and Breathe
 

Amelia Kennedy's Page

Latest Activity

Amelia Kennedy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Sharon, I can empathise!  For 18 years I had no problem at all, then recently both my mask and machine became obsolete and I'm really struggling with the new equipment.  I don't actually use a CPAP machine, I use a NIPPY-3…"
Jul 4
Amelia Kennedy updated their profile
Mar 31
Amelia Kennedy updated their profile photo
Mar 31
Amelia Kennedy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Kath, thanks for the reply! I've tried every size of (possibly) every available mask and they all leak.  Thanks for the link ... I'll take a look. I may well try one of the pad-a-cheeks as the reviews are pretty good and…"
Mar 3
Amelia Kennedy replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi all, just saying "hello" to fellow sleep apnoea sufferers.  I'm 59 and have been using Nippy ventilators for the last 20 years for my combination apnoea caused by a brain haemorrhage.  I'm treated at Papworth and…"
Mar 3

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea
Treatment Being Used, If Any
BiPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
NIPPY-3
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
Airfit F10

Comment Wall (8 comments)

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At 0:47 on March 12, 2014, Kath Hope said…

Sorry Amelia - I almost missed your comment.  I know she'll be back here when she can or you can email her if it's easier at marion@asiliveandbreathe.co.uk

The forum can be confusing sometimes even for me

At 23:57 on March 9, 2014, Kath Hope said…

Hi Amelia

I've had a quick chat with Marion today - she's been rather poorly lately and has been in hospital twice.  Anyway, she saw the comment you'd left her, but in her tired state couldn't work out how to leave you one back, so can you add her as a friend and copy/paste it in there so she can reply easily?

Best Wishes

Kath

At 13:12 on March 7, 2014, Kath Hope said…

You're very welcome Amelia

At 15:19 on March 6, 2014, Kath Hope said…

Marion's been on hers too for around 15-20 years due to scoliosis. She's also with Papworth and this is her profile on here if you want to connect http://hope2sleepguide.co.uk/profile/MarionWhiting?xg_source=profiles_memberList  She's recently changed to a new machine and no sure if it's less bulky.

At 11:54 on March 6, 2014, Kath Hope said…

Good to hear you got the machine you needed Amelia, and we do have several people on the Nippy's - in fact one of our members, Marion from As I Live I + Breathe,  has used one for years + is the author of the book we sell 'CPAP + Ventilator Secrets.'

At 11:01 on March 6, 2014, gwatuk said…

Thanks for that - I was just curious!

At 9:06 on March 6, 2014, gwatuk said…

Hi Amelia, your profile say you use a NIPP|-2 machine - what is that?

At 17:39 on February 23, 2014, June Ostiadel said…

Hi Amelia, Welcome to Hope2Sleep. I am relatively new on here and I've already had lots of help from Kath and useful discussions with her and other members too. I'm not using the same equipment as you, however, I suppose we may still encounter similar problems (although I hope you have none)! See you around. June

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Latest Activity

Ann Murch posted a discussion

New by wondering what to do next

Hi,my name is Ann and I stumbled across this site when looking to see where I could sell my CPAP machine but after reading some discussions, I now think that I may be better keeping it. I bought the  Sleep Cube as it was fully automatic and as I…See More
yesterday
Ann Murch is now a member of Hope2SleepGuide
Saturday
Cathy posted a discussion

New full face mask

Hi, I’ve been using the ResMed mirage Quattro since I was as diagnosed5 years ago. I’ve always hated it and found it so uncomfortable. Last week I bought myself a ResMed  airfit F20 with quiet air and it’s the best thing ever. Nothing covering my…See More
Jul 11
Kyla Davies joined The SleepGuide Crew's group
Jul 11
John Wilkinson replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Sharon, I have been using a Cpap machine for 7 months. I too struggled with a full face mask (Simplus as issued by sleep clinic) but I changed from a large to medium size mask and it is a lot more comfortable and, because it fits better, I…"
Jul 9
Edam replied to Edam's discussion Double inhaling
"Using the Quatro Air is certainly working. My 95% pressures are still below 15 and also Im getting a much better sleep. I think the reason its working is that the inlet is lower on the Quatro Air and is also directed downwards. This direction of…"
Jul 9
Eric Swindon added a discussion to the group Buy-Sell-Swap
Thumbnail

Unused Masks for sale

 I am offering these never used masks (all in original packaging with User Manuals) for half the current retail price (check them at www.eu-pap.co.uk) , that is £50 or £60 including shipping within the U.K. …See More
Jul 8
Eric Swindon joined The SleepGuide Crew's group
Jul 8
Profile IconKyla Davies and Trina joined Hope2SleepGuide
Jul 8
Trina replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Thanks for accepting me! I am new to the sleep apnea world, but suspect I have had it for many, many years. It was just diagnosed as many of things. "
Jul 7
Sleep2snore replied to Chris Vesey's discussion Insurance
"To be honest, I never thought about what would happen if it was stolen or damaged while away!"
Jul 6
Sleep2snore replied to Chris Vesey's discussion Insurance
"The best thing is to ask your clinic, they all appear to work their own way, also if you are going abroad it is worth checking if it is still covered.  If not you might feel better if it were covered by insurance.  Ask if your home…"
Jul 6
Sleep2snore replied to Neil Jay's discussion Remstar M series repair?
"I went off on a tangent when my brain stopped working. Philips R|esperonics Customer Support Centre (Repairs and Maintenance) 0870 532 9741"
Jul 6
sharon replied to sharon's discussion struggling with CPAP
"thank you, i will try the suggestions, I reaaly appreciate the help Sharron"
Jul 6
Kath Hope replied to Neil Jay's discussion Remstar M series repair?
"I don't think Resmed would repair a Respironics machine Sleep2Snore although I could be wrong."
Jul 5
Sleep2snore replied to sharon's discussion struggling with CPAP
"You might need to try a good few masks before you fine one that works for and with you. Once you find one they will stop making it next week if your luck is like mine! Contact your clinic and check it is not to big or get another mask. Also make…"
Jul 5
Sleep2snore replied to Neil Jay's discussion Remstar M series repair?
"I think it is a Humidifier not a Dehumidifier but that is an easy mistake to make. The humidifier is controlled from inside the machine and as far as I know, the only repairer is ResMed UK. Someone tell me otherwise! The other option and maybe…"
Jul 5
Kath Hope replied to Neil Jay's discussion Remstar M series repair?
"I've not heard of any repairers here in the UK.  If it's the System One Remstar and it's under 2 years old it has a 2-year manufacturer's warranty.  If you got it from your hospital they will change it for you."
Jul 5
Neil Jay posted a discussion

Remstar M series repair?

I have a RemStarAuto M Series CPAP machine with a dehumidifier. The dehumidifier has stopped working. I have dome some testing and the humidifier works when hooked up to another Remstar so the fault is somewhere in the main device. I have tested the…See More
Jul 5
sharon replied to sharon's discussion struggling with CPAP
"thank you, I will look at the liners"
Jul 5

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