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Marion@As I Live and Breathe
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Marion@As I Live and Breathe's Discussions
Free competition to win a copy of 'A Monkey, a Mouse and a CPAP Machine'
8 Replies
This award-winning children's book was written especially for children who use CPAP, or who have a family member that uses it. It's available from the…Continue
Started this discussion. Last reply by Marion@As I Live and Breathe Sep 26, 2012.
Marion@As I Live and Breathe's Page
Profile Information
- Treatment Being Used, if any?
- Other
- If Machine Being Used, What Make or Model?
- NIPPV
- If Mask Being Used, What Type or Name?
- nasal mask
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Latest Activity
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
"Yes, it does the job. I use a Powapacs Atom for portable power "
"Hi Nick thanks. Does it do the job and could you camp with it?"
CPAP Total Face Mask
I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
"Hi
It sounds like you need to have more conversations with your sleep clinic. There's little point in having a high pressure if it means you cannot tolerate the machine. There's an interesting video here…"
Pressure waking me up. Belching and wind
HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
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Hi Marion, I've just joined up and have been told by Kath you're also a long-term NIPPY user (or have been in the past) and have written a book about it. I've been using a NIPPY-2 for 16 years and am fine with it now, though I did have teething problems for some time, like most I'm sure, and keep a good supply of flannels in my bedside drawer as drooling has always been a big problem for me (hated the chin straps which always ended up soaked!). Kath mentioned that she thought you'd moved on to another machine and I'm curious to know which one, if you don't mind sharing? I visit Papworth every year and always plead with them to try me on another (lighter) machine, but none seem to "do the job" - I have combination apnoea after a stroke. I hate the weight and size of this one and am worrying about having to use public transport for me and my husband to get a few days away in the summer as he's just had to revoke his driving licence due to his own ill-health. Anyway, I do hope you're keeping well and would love to hear from you when you have a minute.