"Hi Kath Thanks so much for your reply - I attached some screen shots... Thanks so much ! wow I wonder how the laser surgery could have made things worse! "
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Haneen Ghabra
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helpUARS
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Hello All After years of TMJ and morning migraines (sine 2008) I was finally diagnosed with UARS in 2018. I did a few soft palate and easy procedures with radiotherapy and laser (first was using…Continue
Started this discussion. Last reply by Haneen Ghabra Mar 22, 2020.
Haneen Ghabra's Page
Latest Activity
"Hi Haneen
It's very difficult to pinpoint what happens when symptoms return. If you can post a daily screenshot from an average night we could take a look for you. Without seeing that, a few other things to consider is that the…"
helpUARS
Hello All After years of TMJ and morning migraines (sine 2008) I was finally diagnosed with UARS in 2018. I did a few soft palate and easy procedures with radiotherapy and laser (first was using nasal dilator and a MAD device. Anyways in 2019 September tried a cpap for the first time (dream station) and it changed my life. For the first time ever I barely had any migraines or fast heartbeat and so on. IT was like a miracle. Anyways now all of a sudden since January the symptoms are back and I…See More
Profile Information
- Treatment Being Used, if any?
- CPAP
- If Machine Being Used, What Make or Model?
- Phillips DreamStation auto
- If Mask Being Used, What Type or Name?
- dreamwear nasal pillows
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Latest Activity
"Yes, it does the job. I use a Powapacs Atom for portable power "
"Hi Nick thanks. Does it do the job and could you camp with it?"
CPAP Total Face Mask
I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
"Hi
It sounds like you need to have more conversations with your sleep clinic. There's little point in having a high pressure if it means you cannot tolerate the machine. There's an interesting video here…"
Pressure waking me up. Belching and wind
HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep. Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
"Can't say I know about this."
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
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