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Savannah A.
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Savannah A.'s Discussions

Sleep Centre in UK that measures UARS
5 Replies

Hi there,I have a connective tissue disorder that is associated with UARS (Upper Airway Resistance Syndrome).I was wondering whether there was a sleep centre in the UK that measures UARS in…Continue

Tags: disorder, tissue, connective, UK, UARS

Started this discussion. Last reply by Kath Hope Apr 13.

 

Savannah A.'s Page

Latest Activity

Kath Hope replied to Savannah A.'s discussion Sleep Centre in UK that measures UARS
"Great to hear you're having an in-patient sleep study Savannah.  You may not need to investigate UARS either, because if a simple study (probably pulse oximetry) has picked up an issue that warrants an in-patient study, then it's…"
Apr 13
Savannah A. replied to Savannah A.'s discussion Sleep Centre in UK that measures UARS
"Dear Sleep2snore, thanks for your reply and apologies for my late response. In the case that UARS is detected, may I enquire what you mean regarding a more complex machine? Are you referring to BiPAP machines? Many thanks!"
Apr 4
Savannah A. replied to Savannah A.'s discussion Sleep Centre in UK that measures UARS
"Dear Kath, many thanks for your reply and the link to the page; apologise my late response. I have recently had a simple sleep study done at home, and am awaiting a more comprehensive inpatient sleep study. I will ask whether Esophageal…"
Apr 4
Sleep2snore replied to Savannah A.'s discussion Sleep Centre in UK that measures UARS
"That is a difficult one, but if you have a Polysomnography done a good Sleep Doctor should spot the signs, however, it is often missed unless the patient mentions it or ENT (if you attended there first before referral) suspects you might have…"
Mar 16
Kath Hope replied to Savannah A.'s discussion Sleep Centre in UK that measures UARS
"Unfortunately, there aren't as many as we'd like there to be.  The only way of truly diagnosing UARS is via Esophageal Manometry (Pes) which is rarer still here in the UK.  Take a look at our charity's webpage on this…"
Mar 12
Savannah A. posted a discussion

Sleep Centre in UK that measures UARS

Hi there,I have a connective tissue disorder that is associated with UARS (Upper Airway Resistance Syndrome).I was wondering whether there was a sleep centre in the UK that measures UARS in patients.I would be very grateful to hear from others.Many thanks!See More
Mar 12
Savannah A. updated their profile
Mar 12
Savannah A. is now a member of Hope2SleepGuide
Jan 10

Profile Information

My Interest in Sleep Apnoea
I may have Sleep Apnoea
Treatment Being Used, If Any
No treatment
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
No treatment currently
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
No treatment currently

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Latest Activity

bonum noctem posted a discussion
yesterday
bonum noctem is now a member of Hope2SleepGuide
yesterday
Kath Hope replied to Linda's discussion Do charities take new surplus CAPD masks?
"I know exactly what you mean Linda. It's good when people purchase them when unsure of their size, but wasteful otherwise.  You can send them to our Hope2Sleep Charity who run this forum and address is on the contact…"
yesterday
Linda posted a discussion

Do charities take new surplus CAPD masks?

when I request a replacement medium Phillips Respironics mask from my NHS provider I am given a pack that includes all size masks and new headgear.  I have queried this and have been advised this is how they are supplied.  It seems a terrible waste.…See More
yesterday
Edam replied to Edam's discussion Double inhaling
"I have finally found the answer  I have increased the EPR to 3 This has kept my pressure below 14 for the last 3 days . Im very annoyed that the hospital and Resmed had not increased this  For some reason increasing the EPR has reduced the…"
Saturday
Glassdaisy joined The SleepGuide Crew's group
Thursday
Edam replied to Edam's discussion Double inhaling
"Its me not the machine. The S9 has been checked by Resmed and no fault was found but the circuit board was changed as a precaution. I have used another S9 but had the same problem. I have been told by the hospital that despite my AHI being under 1…"
Tuesday
Sleep2snore replied to Edam's discussion Double inhaling
"Don't rule out a fault with the machine or restricted airflow. I would also not rule out that you might be one of the few that needs a different machine. In any case, it should not go to 20 and sit there, I would get it checked or replaced. If…"
Tuesday
Edam replied to Edam's discussion Double inhaling
"Before I make a decision I am going to try something different. I have noticed that when it goes up to 20 most times it has done so when the pressure has dropped to minimum which is 12 at present. I will increase the minimum pressure to 14 so…"
Nov 12
Edam replied to Edam's discussion Double inhaling
"I think its time to make a decision. Either buy another make of APAP or get referred to another hospital which supplies a different make"
Nov 12
Sleep2snore replied to Edam's discussion Double inhaling
"That is hard to believe.  A pressure of 20 is quite high and very few require that amount of pressure. 1 ltr/min is nothing, the machine should cope with that without any problems at all. A lot of people get mixed up with pressure and…"
Nov 11
Edam replied to Edam's discussion Double inhaling
"I thought I had this problem solved but it got stuck at 20 again last night. My 95% pressure was 19, AHI  0.1 and leak 1 l/min. Sleepyhead shows that it was stuck at 20 for approx 30 mins ."
Nov 11
Debra Wells is now a member of Hope2SleepGuide
Nov 9
Sleep2snore replied to Ruth Furniss's discussion Cold air
"Don't know what machine ou have, but a heated hose can help a lot. You can get them as a stand alone but it is not ideal. If your machine has the facility for a heated hose it might be worth the investment. Heating the room will help."
Oct 30
Sleep2snore replied to Renee Rowlands's discussion Recommendation please for Oximeter purchase.
"There are plenty on the market, but one thing I would make sure it did was to store the data for printing or downloading. There are plenty that say they do this and don't, so be aware of buying off Amazon or Ebay."
Oct 28
Kath Hope replied to Ruth Furniss's discussion Cold air
"Like you say yourself Ruth, warming up the bedroom will help, but also if you don't have a heated humidifier then that would help - as will covering the tube with a Hose Cover."
Oct 28
Steve Bacall is now a member of Hope2SleepGuide
Oct 28
Ruth Furniss posted a discussion

Cold air

Hi I have sleep apnoea & Copd this is my first winter using cpap, found it very hard to sleep last night because of breathing in cold air was wondering if anyone had any suggestions on how to warm the air up besides sleeping in a warm room? I…See More
Oct 28
Mark Darbyshire is now a member of Hope2SleepGuide
Oct 20
Bill Thomson added a discussion to the group Buy-Sell-Swap
Thumbnail

ResMed DC-DC converter for S9

I have for sale a converter which allows the S9 machine, which requires a 24v supply, to run from a vehicle 12v or 24v DC socket, or direct from a 12v battery. The converter can power a humidifier and heated tube as well as the CPAP machine,…See More
Oct 13

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