"Many thanks , I have applied to join the Facebook Group and will see what happens about a replacement"
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John Garbutt
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Dream mapper 90% pressure changes
3 Replies
HiI have been using a philips CPAP machine for about four months and my AHI has been anything from 0.3 to 2.6 but occasionally the 90% pressure drops from 9 to 8 and my AHI shouts up to about 5 and…Continue
Started this discussion. Last reply by Kath Hope Jul 23, 2020.
How long to get machine
3 Replies
I was diagnosed with severe obstructive sleep apnoea four weeks ago and wondered how long it take to get machineContinue
Started this discussion. Last reply by Kath Hope Feb 22, 2020.
John Garbutt's Page
Latest Activity
"Hi
On browsing the internet for info on Philips Dreamstations I came across a recall https://www.cpap.com/blog/philips-recall/
and I wondered if anybody has hade their machines repaired or replaced
Thanks
John"
"Hi
I was looking something up on the internet about Philips Dreamstations and came across a recall announcement
https://www.cpap.com/blog/philips-recall/ ; and I wondered if any body has had their machine repaired / replaced"
"You're welcome John (my next appointment's October too as the May one got cancelled due to COVID). Just one other little thought is that if it's only been occuring recently it could be that you're getting more nasal…"
"Thanks for your reply Kath, I am not due for a hospital visit till October so I will see how he numbers go and contact them if it starts to creep up."
"This can happen John when the default minimum pressure of 4 is set, which I stress does work for a lot of people, but sometimes clinics do raise that minimum pressure as if the pressure tends to run very low in between the apnoeas and then suddenly…"
Dream mapper 90% pressure changes
HiI have been using a philips CPAP machine for about four months and my AHI has been anything from 0.3 to 2.6 but occasionally the 90% pressure drops from 9 to 8 and my AHI shouts up to about 5 and today to 8.7 is this normal? Mask fit is always 100%Many ThanksSee More
"I got my machine two days ago have now slept for two twelve hour times.
Starting to feel human"
"Yes I know John, and so often the missing jigsaw puzzle as to how we're feeling. I was shocked when I got my own severe sleep apnoea diagnosis and CPAP really is a life saver. Hope you don't have long to wait, and worth saying…"
"Many Thanks,will send them a mail om Monday.
Cannot believe how debilitating sleep apnoae can be. "
"Welcome John and good to hear you've been diagnosed now and especially with your sleep apnoea being severe.
It really depends on each sleep clinic as to how long you'll have to wait for your CPAP - some give them out immediately,…"
How long to get machine
I was diagnosed with severe obstructive sleep apnoea four weeks ago and wondered how long it take to get machineSee More
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- no machine as yet
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Latest Activity
"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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