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Mark
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  • Leeds
  • United Kingdom
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Help! I'm not sure where to turn anymore.
6 Replies

Sorry for the essay!My sleep clinic are useless and I really don't feel they have the knowledge to treat my condition.I've been on cpap/apap for around 4 or 5 years. Despite this I still feel…Continue

Started this discussion. Last reply by Sleep2snore Aug 13, 2020.

 

Mark's Page

Latest Activity

Sleep2snore replied to Mark's discussion Help! I'm not sure where to turn anymore.
"Be careful with ENT as some jump into offering operations that are very painful and if they work at all only work for a short time.  Take a lot of time to think about it if offered one.  It is a good idea to get checked out for polyps and…"
Aug 13, 2020
Kath Hope replied to Mark's discussion Help! I'm not sure where to turn anymore.
"Hi Mark Just to let you know we've replied to your email, so can you check you've received the message in case it's gone to your junk or spam by mistake. Thanks."
Aug 5, 2020
Mark replied to Mark's discussion Help! I'm not sure where to turn anymore.
"Thank you kath. I'm sending you through an email with the data from my cpap machine.The email address beings with my username."
Jul 29, 2020
Kath Hope replied to Mark's discussion Help! I'm not sure where to turn anymore.
"You're welcome Mark and an ENT consultation could certainly prove useful and they'll be able to spot the reason for your obstructive sleep apnoea. Acid reflux is often caused by the sleep apnoea.  I'm no medic, so will explain…"
Jul 23, 2020
Mark replied to Mark's discussion Help! I'm not sure where to turn anymore.
"Hello Kath, Thank you very much for responding it's greatly appreciated. I hadn't considered an ENT referral. In fact I didn't know that was possible. I'll call my doctors and ask about it. I'm using a full face mask. I have…"
Jul 23, 2020
Kath Hope replied to Mark's discussion Help! I'm not sure where to turn anymore.
"Sorry to hear how you're struggling Mark and if on your initial sleep study your AHI was only just into the border of sleep apnoea, it's likely that it did start off as UARS and has progressed into the sleep apnoea range.  Many people…"
Jul 22, 2020
Mark posted a discussion

Help! I'm not sure where to turn anymore.

Sorry for the essay!My sleep clinic are useless and I really don't feel they have the knowledge to treat my condition.I've been on cpap/apap for around 4 or 5 years. Despite this I still feel fatigued and exhausted all the time. Some days my brain doesn't feel right somehow and I just scrape through the day barely functional.According to the data collected from my machine I should be doing great!AHI is always under 5 and I average around 8 hours of sleep every night.I've had all the blood tests…See More
Jul 22, 2020
Mark is now a member of Hope2SleepGuide
Jul 21, 2020

Profile Information

Treatment Being Used, if any?
Auto-Adjusting CPAP
If Machine Being Used, What Make or Model?
Resmed S9
If Mask Being Used, What Type or Name?
Resmed Mirage Quattro

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Latest Activity

Crabbleite replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Thanks Kath. I am going to start adapting to the mask by wearing it in the day at first. Once I get one or two nights on it I reckon I will be OK. other forums have said there is no point in tweaking my pressure because of the high leak rate and I…"
1 hour ago
Bill Thomson replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"but it's also worth considering if you definitely ONLY breathe through your nose during sleep as that could cause a higher AHI...” Crabbleite, maybe you are one of the relative minority like me, who find that with CPAP you physically…"
3 hours ago
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"In one way John, bearing in mind your AHI was 45 on diagnosis, 9 is very good, although if you're still experiencing the brain fog and tiredness etc., it's a pity the clinic haven't managed to get it lower despite them trying. …"
13 hours ago
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Crabbleite I can't speak for the Resmed Mirage FX, but we've sold the Wisp for years at the charity and our site has all 5 star reviews.  The DreamWisp is the newest version with the difference being the hose comes out of the top…"
13 hours ago
John Wilkinson replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi. I was diagnosed about 3 years ago with severe sleep (45 AHI). I'm 63, fairly active and only slightly overweight. My AHI came down to 9 after about 12 months and I get about 7 hours sleep a night. Despite their best efforts my clinic has…"
21 hours ago
Crabbleite replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi I have been using xPAP fo around 15 years and have never really for it to work for me. I am joining this forum with eh aim of getting my AHI below 5. I have been using a Respirinicas Comfort Gel nasal mask for a long time now and it is well…"
Wednesday
Crabbleite is now a member of Hope2SleepGuide
Wednesday
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Frankam, you're with a very good sleep clinic who remotely check and monitor your therapy so please don't try to adjust any settings.  If the machine needs to go up to a pressure of 10 it's because that pressure is needed to…"
Monday
frankam replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"An  update  here  tonight  is  my  6th  night with  the cpap...The  first  night  was  great  slept  solid,however the last three  days  i just could  not …"
Monday
Jonathan replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Those adrenaline shots when you stop breathing and your brain wakes you up can certainly send you dashing to the loo.  CPAP worked for me too (diagnosed 2008). Great night's sleep on night one, and only got better."
Monday
ScottishSleepyHead updated their profile
Jan 16
Steve C is now a member of Hope2SleepGuide
Jan 15
Kath Hope replied to ScottishSleepyHead's discussion Newly diagnosed not sure what happens next - Scottish NHS
"Yes it can be a shock to get the results of a sleep study Mark and to find out you're stopping breathing 24 times per hour, because this is happening whilst asleep so most often the sufferer is totally unaware of this.  This forum is…"
Jan 15
ScottishSleepyHead replied to ScottishSleepyHead's discussion Newly diagnosed not sure what happens next - Scottish NHS
"Hi Kath, thank you for the quick response. Until last February I had never heard of sleep apnea, so it's been a bit of a journey until now even. When the GP first explained sleep apnea as being asleep and your throat closing then you stop…"
Jan 15
Kath Hope replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi again Frankam and was glad to be of help and reassurance.  I was speaking with one of your nurses earlier and told her of your great overnight success, and she was really pleased.  The nurses aren't here on the forum but they are…"
Jan 14
Kath Hope replied to ScottishSleepyHead's discussion Newly diagnosed not sure what happens next - Scottish NHS
"Welcome Mark and good to hear you got diagnosed and will hopefully soon be treated.  An AHI of 24 is classed as moderate sleep apnoea (30 and above is severe).  Good that you don't drink as it makes sleep apnoea worse.  Being…"
Jan 14
ScottishSleepyHead posted a discussion

Newly diagnosed not sure what happens next - Scottish NHS

Hi,Firstly my names Mark and I am totally alien to all of this.I had a sleep test done by the Scottish NHS about 14 weeks ago, after waiting since January to get it, given all the Covid problems I thought that was quite quick. The results came back…See More
Jan 14
Profile IconScottishSleepyHead and frankam joined Hope2SleepGuide
Jan 14
frankam replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Well i finally  made  it  here..thanks  for  all  the  help   and advice fromKath  who has  been a great  help.I used  my philips  cpap machine  last  night for …"
Jan 14
frankam posted a status
"It seems a very big difference i slept like a baby"
Jan 14

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