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Mark
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Help! I'm not sure where to turn anymore.
5 Replies

Sorry for the essay!My sleep clinic are useless and I really don't feel they have the knowledge to treat my condition.I've been on cpap/apap for around 4 or 5 years. Despite this I still feel…Continue

Started this discussion. Last reply by Kath Hope Aug 5.

 

Mark's Page

Latest Activity

Kath Hope replied to Mark's discussion Help! I'm not sure where to turn anymore.
"Hi Mark Just to let you know we've replied to your email, so can you check you've received the message in case it's gone to your junk or spam by mistake. Thanks."
Aug 5
Mark replied to Mark's discussion Help! I'm not sure where to turn anymore.
"Thank you kath. I'm sending you through an email with the data from my cpap machine.The email address beings with my username."
Jul 29
Kath Hope replied to Mark's discussion Help! I'm not sure where to turn anymore.
"You're welcome Mark and an ENT consultation could certainly prove useful and they'll be able to spot the reason for your obstructive sleep apnoea. Acid reflux is often caused by the sleep apnoea.  I'm no medic, so will explain…"
Jul 23
Mark replied to Mark's discussion Help! I'm not sure where to turn anymore.
"Hello Kath, Thank you very much for responding it's greatly appreciated. I hadn't considered an ENT referral. In fact I didn't know that was possible. I'll call my doctors and ask about it. I'm using a full face mask. I have…"
Jul 23
Kath Hope replied to Mark's discussion Help! I'm not sure where to turn anymore.
"Sorry to hear how you're struggling Mark and if on your initial sleep study your AHI was only just into the border of sleep apnoea, it's likely that it did start off as UARS and has progressed into the sleep apnoea range.  Many people…"
Jul 22
Mark posted a discussion

Help! I'm not sure where to turn anymore.

Sorry for the essay!My sleep clinic are useless and I really don't feel they have the knowledge to treat my condition.I've been on cpap/apap for around 4 or 5 years. Despite this I still feel fatigued and exhausted all the time. Some days my brain doesn't feel right somehow and I just scrape through the day barely functional.According to the data collected from my machine I should be doing great!AHI is always under 5 and I average around 8 hours of sleep every night.I've had all the blood tests…See More
Jul 22
Mark is now a member of Hope2SleepGuide
Jul 21

Profile Information

Treatment Being Used, if any?
Auto-Adjusting CPAP
If Machine Being Used, What Make or Model?
Resmed S9
If Mask Being Used, What Type or Name?
Resmed Mirage Quattro

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Latest Activity

Profile IconChristine Bridges and peter Ryan joined Hope2SleepGuide
5 minutes ago
Nick Daniel added a discussion to the group Buy-Sell-Swap
Thumbnail

Selling a DeVilbiss Sleepcube Auto Plus

Model DV54UK-P Excellent condition, just 200 hours usageI bought this as a spare for travelling but I've hardly used it and…See More
yesterday
Kath Hope replied to Holly's discussion Hot weather
"You're welcome Holly and will notice the article mentions the Silent Night Liners which helps with sweat.  I realise you probably haven't got any at the moment, but you can try making a liner from an old t-shirt (stretchy…"
Saturday
Holly replied to Holly's discussion Hot weather
"Thank you for thanking the time to reply. The mask is so hot a sweaty on my face. I will try the tips. Thank you "
Saturday
Kath Hope replied to Stuart Adrian Gillespie's discussion I'm so worried about my Health condition and putting on weight.
"So sorry that this post got missed Stuart and was flagged up thanks to Holly's reply.  Do let us know which machine you have so we can help."
Saturday
Kath Hope replied to Holly's discussion Hot weather
Saturday
Holly posted a discussion

Hot weather

Hi all. first summer using CPAP and my god it’s hard to use when it’s hot!! Any tips would be greatly appreciated HollySee More
Saturday
Holly replied to Stuart Adrian Gillespie's discussion I'm so worried about my Health condition and putting on weight.
"Hey. Depending on your make of machine you can download the app. I have a Philips dream station and you can see how you are doing every day. It took me 6 months to see any difference what so ever. At first I was more tired than I was before I…"
Saturday
Kath Hope replied to Mark's discussion Help! I'm not sure where to turn anymore.
"Hi Mark Just to let you know we've replied to your email, so can you check you've received the message in case it's gone to your junk or spam by mistake. Thanks."
Aug 5
Kath Hope replied to Amanda S's discussion Which is the best sleep apnoea test?
"Welcome Amanda and sorry to hear of your husband's struggles.  It sounds like he either went to a clinic that don't treat people with an AHI of less than 15 from the sleep study results, or he could have had a pulse oximetry sleep…"
Aug 4
Amanda S posted a discussion

Which is the best sleep apnoea test?

This is my first post and I am very grateful to have found this forum.My husband was tested for sleep apnoea  using a home test on the NHS in Dec 17. At the interview afterwards they told him he had sleep  apnoea  but not bad enough to be given a…See More
Aug 4
Amanda S is now a member of Hope2SleepGuide
Aug 3
Kath Hope replied to David's discussion Breas Z1 cpap machine error 33,
"Good luck and definitely stress you only used it for travel so had very little use."
Aug 3
David replied to David's discussion Breas Z1 cpap machine error 33,
Aug 3
David replied to David's discussion Breas Z1 cpap machine error 33,
"No Kath it’s not and disappointing. I’m holding fire to buy a travel one till next year when (if) we go abroad, Until then I’ll use my dream station as I won’t have carry it."
Aug 3
Kath Hope replied to David's discussion Breas Z1 cpap machine error 33,
"Heck, that's not lasted long David, and I assume you've not used it much either (more for travel).  Might be worth saving up for the DreamStation Go which has most features the same as your DreamStation.  We sell it at the…"
Aug 2
David posted a discussion

Breas Z1 cpap machine error 33,

My Breas Z1 machine has suddenly started showing error 33. Having contacted my supplier in the Uk it turns out that Breas will not repair it . I’ve only had about 4 years max. I feel that this is terrible service from the manufacturer to not support…See More
Aug 2
Profile IconKiersten and thatbloke joined Hope2SleepGuide
Aug 1
Mark replied to Mark's discussion Help! I'm not sure where to turn anymore.
"Thank you kath. I'm sending you through an email with the data from my cpap machine.The email address beings with my username."
Jul 29
Gavin Wayne is now a member of Hope2SleepGuide
Jul 26

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