"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
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Sandy K. King
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- Kalamazoo, MI
- United States
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Sandy K. King's Discussions
New full face mask! Yikes!
19 Replies
Hi, I'm back. I went to my sleep doc today and got switched to the mask that covers my nose and mouth because I wake up with a dry mouth and a sore throat. The only problem I have now is connecting…Continue
Started this discussion. Last reply by Terry Vella May 1, 2013.
Sandy K. King's Page
Profile Information
- Treatment Being Used, if any?
- CPAP
- If Machine Being Used, What Make or Model?
- I am going to be getting a c-pap machine after discussing results of first sleep study with a sleep center doctor, then a 2nd sleep study will be set up with a c-pap sleep study. I am just am the beginning stages of diagnoses and evaluation.
- If Mask Being Used, What Type or Name?
- nothing yet
Sandy K. King's Photos
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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Welcome, Sandy to hope2sleep, I agree with Kath and was pretty much going to say the same thing, I used to be on 100mg of Seroquel but it didn't help me as my problem was I was too scared to sleep as I thought / knew I would stop breathing. The only meds I take now are natural sleep aides if I need them like Valerian, Kava or Melatonin. Once you get your CPAP you may find overtime you don't need it. I am currently working with a friend of mine to get her off it, she was on 1200mg and is now down to 800mg and will be off it in two months. The important thing that Drs dont tell us about meds is the damage they can do to us, my friends blood sugar has gone up so much she is almost diabetics and it is caused by the prolonged effects of large doses of Seroquel. Drs love giving us meds rather than fixing the cause. My friend is addicted to Stilnox and that is next, she is a strong, brave lady and we will get her off all meds eventually and she will be back to normal. Just a point, she has not been diagnosed with sleep apnea but is on the DS site for Bi Polar and Depression, hope you get something out of this site, Terry.
Well past bedtime for me (here in the UK) but on a quick calculation that sounds like you had just over 20 event per hour, which works out of a moderate case of sleep apnoea (that's how we spell 'apnoea' in the UK). You're right that it's better not to take sedation medication with sleep apnoea, as it makes it worse. This could mean that without the medication your events would be less (assuming you had taken the medication when you had the first sleep study). It is very likely that your undiagnosed sleep apnoea has caused the insomnia, so when you get on treatment this may well improve so you can be weaned off it. I can imagine at the moment you feel panicky about this, but you're going to be far safer in your sleep when you get your CPAP. One step at a time.... see how you get on when you get your machine, and we'll support you every step of the way
Good Night!
Kath
Welcome to the forum Sandy, and hope you find lots of help here whilst you're waiting for your CPAP treatment. Feel free to ask us any questions via new discussions.
Best Wishes and Hope for Good Sleep Soon!
Kath