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suzanne erdbrink
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  • Maleny
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  • Terry Vella

suzanne erdbrink's Discussions

recently moved from Australia....now under NHS in UK...... Shock!
10 Replies

I have recently moved over here with my Resmed S9 Autoset machine having been diagnosed with moderate to severe sleep apnoea in November 2012 with desaturations to 84%. When i arrived for my first…Continue

Started this discussion. Last reply by Pete Sep 5, 2014.

Somnomed dental device ? any experience?
5 Replies

Somnomed has anyone had experience with dental guards to assist with sleep apnoea?Continue

Started this discussion. Last reply by Kath Hope Jan 31, 2013.

Enlarged Tonsuls
35 Replies

I was diagnosed with severe sleep apnao around a month ago. I stop breathing 72 times a night completely up to one minute and ten seconds and partially stop 86times. I am seeingan ENT specialist in…Continue

Started this discussion. Last reply by Terry Vella Dec 31, 2012.

 

suzanne erdbrink's Page

Profile Information

Treatment Being Used, if any?
Other
If Machine Being Used, What Make or Model?
Seeing ENT specialist in January having a Tonsulechtomy
If Mask Being Used, What Type or Name?
none at present

Comment Wall (5 comments)

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At 2:26 on December 31, 2012, Terry Vella said…
Suzi, yes I am a male lol, sorry to ask about the depression, I go to an outpatient course on Saturdays and we talk about it openly and sometimes I don't think about the open forum on here, hope I haven't offended you.
At 21:49 on December 30, 2012, Terry Vella said…

Suzi, can I ask about your depression, how long have you been diagnosed and what anti depressnats are you on and the dosage? The reason I ask is so many of us get diagnosed with depression first then SA because Dr's and Pysch's try to fix the symptoms fIrst rather than the cause and for most of us again it's either lack of quality sleep and too much due to SA or other sleep related illnesss, there are 70-80 sleep disorders out there, you dont have to say if you dont want. I do have a theory that the medical profession and drug companies are only in it for the money but that's my theory. I'm just interested when people have depression and have sleep problems. I believe anyone that has depression and either cant sleep or over sleep should have a manditory sleep study. You've seen the discussion on my sister, she has had depression most of her life, been on all the meds and nothing worked and they wondered why. Her last resort was to listen to my theory and have a sleep study which proved she has SA and that it is hereditary. I'm on holidays and dont have much to do, so just thinking out aloud. Anyway have a good new year, I get the feeling either the operation will work for you or if not, at least now you now have another option, hopefully 2013 will be a good year for you and your family.

At 21:03 on December 30, 2012, Terry Vella said…

Thanks for the offer Suzi, we currently use nine advertising agencies and have 2 inhouse web designers, I'm trying to get that don to one or two to save money but I am dealing with Marketing. I have just taken over the companies image library where we used to use the nine agencies for all our images, we are now down to one and I have saved he company millions. We turn over around 2.5billion dollars a year in sales and heaps goes out in costs.

Yu dont have to say your role is more humble, we all do a job and unfortunately have to do it with illnesss, hopefully yours will improve soon, I'm looking forward to the day you tell us you are feeling better.

At 6:44 on December 30, 2012, Terry Vella said…

Suzi, I also work in IT for a large Retail manufacturer called Simplot, we sell brands like John West, Birdseye, John West, Edgell, Chiko and about 10 other brands, I look after our sales forces, software and hardware and have just taken on a project to purchase a CRM to incorporate our social media, I hate social media but can see how important it is now and for the future. My company has ask me to come up with a strategy to take us to 2020. We have websites for each brand and in 6 months have around 200,000 followers for each site, we have had to put on 2 fulltime people that work nearly 24/7 to keep up with queries, complaints, suggestions etc, just a bit about me.

At 3:36 on December 30, 2012, Terry Vella said…

Suzanne, it's really a messaging system so you don't have to post idscussions, I hate using Facebook and Twitter, I don't really want to know what Shane Wwarne and Liz Hurley are doing in the bedroom lol.

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Latest Activity

jjimjam updated their profile
Apr 17
Kath Hope replied to Becky Murkin's discussion noisy humidifier normal?
"It sounds like you're getting rainout issues (condensation) so here's an article to help with this. www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout"
Apr 16
Becky Murkin posted a discussion

noisy humidifier normal?

Hello,I have an air sense 10 auto.When I have the humidifier and the heated tube plugged in it makes a sort of drumming noise. Like that at the gallows in films.Is this normal? It wakes me up  and I have to give up and switch off  for the night.See More
Apr 16
John posted a discussion

Dentists in Hull that know about Mewing ?

I was wondering if there are any dentists in Hull who know about John & Mike Mew, and changing jaw shape over time?I could add that I saw an ENT consultant recently and she said jaw shape, malocclusion, is genetic, which has become a debatable…See More
Apr 9
Profile IconKaren Mcleod, Fiona Watson, Teresa Hobbs and 5 more joined Hope2SleepGuide
Apr 3
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"I did replace the tank in my SleepCube, and had to regularly take the silicone sealing gasket out and give it a goof clean, but not infrequently found it standing in a pool of water in the morning.  The machine sat on a tray because of…"
Mar 26
John posted a discussion

Nasal valve collapse

Does anyone have any experience of nasal valve collapse?Wondering if I have this but I don't know what the norm is.Been trying widgets that hold the nose open and it's like night and day.See More
Mar 24
John replied to John's discussion Airsense 10 -humidifier runs dry
"Wow it's the other way round for me.I found with the Sleepcube I'd often have a good bit of water still there in the morning. Today I woke up with a dry tank on the Resmed again and it's not on full heat or flow. I got it on 6…"
Mar 24
Becky Murkin posted a discussion

F20 AirFit small marking bridge of nose

Please help or give advice all wise people on here.I have had the Resmed F20 AirFit small mask for over a month. Seals yet…See More
Mar 19
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"A very helpful reply Jonathan. I found the pressure setting for the full face mask to be too high when I changed to a nasal mask, but perhaps I should have persisted? I'll try again and I'll also discuss with the clinic whether an APAP…"
Mar 13
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Ramble alert!  My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu.  This was a very long time…"
Mar 12
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Thanks Jonathan - I had seen the YouTube video. My question is really about the experience of people who have control of their pressure settings, for example those people who have bought their machines directly and not obtained them through an NHS…"
Mar 12
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"This is NOT a recommendation http://www.youtube.com/watch?v=VNUWhd2UgQM"
Mar 11
Frances Knight posted a discussion

Air Sense 10 - changing pressure settings

I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this week and have been told there is no need for further appointments and just to contact them if I need supplies or…See More
Mar 11
Swen Greve is now a member of Hope2SleepGuide
Mar 4
Jonathan replied to Sue Reeves's discussion A few questions..
"If you have a helpful GP, I would ask them to re-refer you to the sleep clinic."
Mar 3
Sue Reeves posted a discussion

A few questions..

A quick bit of backgroundDiagnosed with OSA about 7/8 years ago by my local sleep clinic and given a F &P Icon CPAP.  After a couple of follow-up appts to sort out any issues, I was sent on my merry way. I have had no further face to face…See More
Mar 3
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"I previously had a DeVilbiss Sleepcube and the dehumidifier did sometimes run dry.  On the other hand I now have an AirSense 10 and it never runs dry, and I've had the humidity turned up high."
Feb 26
John posted a discussion

Airsense 10 -humidifier runs dry

Hi. I'm finding the Airsense 10 the hospital gave me, the humidifier chamber runs dry. It's not even on max settings, which I'm guessing would empty it a lot quicker. Seems like a big design oversight to me. Does anyone else have this trouble? The…See More
Feb 26
David Hudson posted a discussion

Decline in hearing

HiI have regular, well yearly check ups at work. One being a hearing test. Since having my cpap machine my hearing has declined rapidly in 1 ear.....could this be as a result of pressure? I believe I'm on 15cm p max h2o. I just use a nasal…See More
Feb 26

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