Enlarged Tonsuls

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Permalink Reply by Kath Hope on December 30, 2012 at 11:45

Suzanne, get your friend to observe the sleep of her child with autism.  I'm reading more and more about the link between sleep apnea and autism (there's already a big link with OSA and ADHD) http://www.bowdiges.org/documents/files/Sleep_apnea_in_ASD.pdf   I'm also aware of several Mums who were undiagnosed OSA sufferers when pregnant and have autistic children.  There's not enough evidence yet, but I'd bet there'll be a link proven in time.

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Permalink Reply by suzanne erdbrink on December 30, 2012 at 11:55

Thanks Kath, i have copied this to my friend. do you have anymore info on the ADD link, ? My son has ADD although he is 21 years old now and is not on medication, just manages life as best he can. He doesn't have the hypoeractivity just unable to focus and concentrate. i

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Permalink Reply by Kath Hope on December 30, 2012 at 13:20

Am just travelling and using mobile device. Try doing a search here on the forum for ADHD as I'm sure I put a past link. If not, check the Facebook page. It's worth checking to see if your son has OSA too, bearing this in mind and the fact that OSA is herditary.

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Permalink Reply by Terry Vella on December 30, 2012 at 20:55

Suzanne, most are done in hospitals, they get a  bit more acurate result, they measure oxygen levels and monitor every movement and breathe you take. They alslo film and watch every move you make. If you are diagnsed with SA a second sleep study is done in hospital to work out what pressures your machine is to be set at as everyone is different and require different pressure depending on he serverity of the illness. For examle my machine is a auto CPAP which means it starts at a low pressure of 5 and automatically picks up when I stop breathing and can go up to 15 till I start breathing again then the pressure decreases again until the next apnea occurs. Some people have constant pressures and these are cheaper machines, their pressure may stay at around 10 all night. They all depends on the complexity of the illness, your friend in Sydney would have an auto machine and possibly with oxygen. 

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Permalink Reply by Terry Vella on December 30, 2012 at 21:14

Kath and Suzi, a slightly different subject but I have always wondered if the should research SA and SIDS or Cot Death more,

it may not be Obstructive SA but could be Central, I think I have told my story before but whe I was a baby in he 60's my parents used to have to drive me around in the car sitting u to get me to sleep the a soon as I would lay down the slightest noise would wake me up and around the block we would go again. No one knew of SA back then, I wish they did it would have save me 48 years of suffering until I found CPAP, just a thought.  

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Permalink Reply by suzanne erdbrink on December 31, 2012 at 1:39

ok, i understand now, so once i see my sleep specialist then i have a follow up in hospital.. thanks for explaining that.

Terry Vella said:

Suzanne, most are done in hospitals, they get a  bit more acurate result, they measure oxygen levels and monitor every movement and breathe you take. They alslo film and watch every move you make. If you are diagnsed with SA a second sleep study is done in hospital to work out what pressures your machine is to be set at as everyone is different and require different pressure depending on he serverity of the illness. For examle my machine is a auto CPAP which means it starts at a low pressure of 5 and automatically picks up when I stop breathing and can go up to 15 till I start breathing again then the pressure decreases again until the next apnea occurs. Some people have constant pressures and these are cheaper machines, their pressure may stay at around 10 all night. They all depends on the complexity of the illness, your friend in Sydney would have an auto machine and possibly with oxygen. 

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Permalink Reply by suzanne erdbrink on December 31, 2012 at 1:50

sure will, thanks Kath..

Kath Hope said:

Am just travelling and using mobile device. Try doing a search here on the forum for ADHD as I'm sure I put a past link. If not, check the Facebook page. It's worth checking to see if your son has OSA too, bearing this in mind and the fact that OSA is herditary.

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Permalink Reply by Terry Vella on December 31, 2012 at 4:46

The second sleep study is called titration, most do have to have it in a hospital where they increase and decrease the pressures during the night so they et it right, although my sister didn't I think because it was hereditary the sleep specialist went with my setting and will adjust them for her after 3 months. I had an 18 months check and sleep study a few months ago just to check that everything was going Ok and I can read my own data through software we can download over the net so suggested to my sleep specialist what my pressures should be and the sleep study proved me to be correct. When I went for the results mt sleep specialist said these are what your new pressures should be, he is a script to get them changed and I said I've already done it, he said I should have known you would have alrready done it.

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Permalink Reply by suzanne erdbrink on December 31, 2012 at 7:03

That is very clever, re the software and working our pressures. good to know all this. Happy New Year Terry.

Terry Vella said:

The second sleep study is called titration, most do have to have it in a hospital where they increase and decrease the pressures during the night so they et it right, although my sister didn't I think because it was hereditary the sleep specialist went with my setting and will adjust them for her after 3 months. I had an 18 months check and sleep study a few months ago just to check that everything was going Ok and I can read my own data through software we can download over the net so suggested to my sleep specialist what my pressures should be and the sleep study proved me to be correct. When I went for the results mt sleep specialist said these are what your new pressures should be, he is a script to get them changed and I said I've already done it, he said I should have known you would have alrready done it.

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Permalink Reply by Kath Hope on December 31, 2012 at 18:15

There are studies being done Terry, and also more on the effects of an unborn baby in a mother with undiagnosed sleep apnoea.  There was a small study I came across about a year ago (which I can't find now as I looked for it last month) and it was about babies that had a near-miss cot death.  They observed these children who thankfully didn't die, and although the study was only done on small numbers (think it was between 40-80 children) a massively high percentage of them had all been diagnosed with obstructive sleep apnoea as adults.  If I remember correctly, the study wasn't particularly about sleep apnoea originally, so the results were surprising.  Not to me they weren't! 

Terry Vella said:

Kath and Suzi, a slightly different subject but I have always wondered if the should research SA and SIDS or Cot Death more,

it may not be Obstructive SA but could be Central, I think I have told my story before but whe I was a baby in he 60's my parents used to have to drive me around in the car sitting u to get me to sleep the a soon as I would lay down the slightest noise would wake me up and around the block we would go again. No one knew of SA back then, I wish they did it would have save me 48 years of suffering until I found CPAP, just a thought.  

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Permalink Reply by Terry Vella on December 31, 2012 at 20:57

Kath, the world is changing slowly

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