Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

I have recently had a small operation for the above.

It involves a small camera going up the nose and then you are sent to sleep.

When you have an Apnea the camera picks up what is causing it.

I returned this week as an out patient and was told that my tounge, soft palate and fat in the throat was the cause.

The consultant said that he operates on a very few patients that he feels sure would benefit but I am not one of them.

  He was very fair and said by operating it could help me but I would still need to use a c/pap

and therefore he would not operate.

He also said he felt the throat would be halped by me loosing weight and I said I have tried so hard but find it very difficult.

He said people with osa find it 5 times harder to loose weight.

I asked as my ahi was good and I always use my c/pap would that not reverse that.and he said something about the taste recepter in the throat could have been damaged by the osa and that would stop me loosing weight.

He said I go to many top meeting on this and nobody knows the reason for certain.

I am now on a very very strict diet and going to the gym 6 days per week.

I will not be beat I will get rid on the c/pap!!

Regards Joe

Views: 209

Reply to This

Replies to This Discussion

Hi  Joe - let me reply to a few points, I've been using CPAP for nearly two years...

I do not like waking up and having to fumble around looking for buttons to turn the m/c off.

One of my machines has auto start and stop, the other doesn't but drops the airflow very quickly if it detects the mask is removed. You may want to try a different machine if you can.

I do not like sleeping in separate beds and i feel i need to as I would not subject my wife to having air blown in her face all night even though she says that she would tolerate it for me.


Mine prefers me to have the machine than not. I sleep quieter, my health and attitude is better, no snoring, no sudden awakening and panic attacks. For a while she didn't like the look, now she's fully sold on the idea.

Sleepweaver, and many other masks, diffuse the air very well,stopping the problem.

I do not like fiddling around putting masks etc back after I take them off to get a

drink of water in the night.

That is a bit of a pain, but I can switch off the machine, grab the glass, drink the water and get it back on without removing the sleepweaver, a full face mask is not so easy though...

I do  like nodding off in the garden or in my arm chair but if I do an apnea wakes me.

I'm don't seem to suffer as much if I'm sat up, but also seldom nod off in the day now anyway!

I do not like all the trouble unplugging, packing it, carrying it on a plane and replugging in the hotel.

Again,  a bit of a pain (and I'm not avoiding a usual trip of mine as there's no guaranteed power and the hotel rooms are never secure) but necessary, and airlines seem fine with it.


Hi Joe - let me reply to a few points, I've been using CPAP for nearly two years...

I have been using my a/pap for 3 years

I do not like waking up and having to fumble around looking for buttons to turn the m/c off.

One of my machines has auto start and stop, the other doesn't but drops the airflow very quickly if it detects the mask is removed. You may want to try a different machine if you can.

To stop it I have to hit the button which is easy when you are fully awake, when you laying on your side and just woken it is something I could do without.
I could just take the mask of and after several minutes it would stop but I would not want to wake my wife in the night with the loud blowing noise it would create.
The a/pap is supplied and maintained by my hospital and do not see any reason to change this.

I do not like sleeping in separate beds and i feel i need to as I would not subject my wife to having air blown in her face all night even though she says that she would tolerate it for me.
Mine prefers me to have the machine than not. I sleep quieter, my health and attitude is better, no snoring, no sudden awakening and panic attacks. For a while she didn't like the look, now she's fully sold on the idea.
So does mine and it does not worry her in the slightest.
What I said was the blowing is not a very nice thing to subject anyone to let alone someone that i love so I sleep in separate beds
Sleepweaver, and many other masks, diffuse the air very well,stopping the problem.
I change my mask 4 times a year f o c and so will stay with the resmed full face mask.

I do not like fiddling around putting masks etc back after I take them off to get a
drink of water in the night.

That is a bit of a pain, but I can switch off the machine, grab the glass, drink the water and get it back on without removing the sleepweaver, a full face mask is not so easy though...

I do like nodding off in the garden or in my arm chair but if I do an apnea wakes me.

I'm don't seem to suffer as much if I'm sat up, but also seldom nod off in the day now anyway!
I do not like all the trouble unplugging, packing it, carrying it on a plane and replugging in the hotel.

Again, a bit of a pain (and I'm not avoiding a usual trip of mine as there's no guaranteed power and the hotel rooms are never secure) but necessary, and airlines seem fine with

To summarize. We both like enjoy all the benefits from using an a/pap but do not enjoy the downsides as previously mentioned.

Reply to Discussion

RSS

About

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers.  There was no remote monitoring and…"
Saturday
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
Friday
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi. I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs.  I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring. I am…"
Friday
John replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"Hi Jonathan, did you do that through PatientKnowsBest?"
Friday
Jonathan replied to John's discussion Wellu O2 Ring - is it accurate enough for the medics?
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic. On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276 Your machine may be under-reporting. Good…"
Friday
John posted a discussion

Wellu O2 Ring - is it accurate enough for the medics?

Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
Oct 21
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi, Just thought I'd give an update.  So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study.  My AHI is now 6, down from over 30, so I'm…"
Oct 15
John replied to Sally Gray's discussion Microplastics risks
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
Oct 7
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi My sleep clinic discharged me, saying they were happy I was self-managing.  Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled.  I expect remote monitoring with current generation Resmed…"
Sep 1
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks again for the info.  My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid.  I checked out the link you gave to access extra data and I think that’s going to be…"
Aug 31
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi I have the ResMed Airsense 10 Autoset (APAP).  It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings.  I don't know whether they are notified if I make changes, nor whether they…"
Aug 31
Richard Smith replied to Richard Smith's discussion air bubbles after weight loss
"Hi Jonathan, Thanks for the reply.  I'd say that I'm fairly technical.  I have the ResMed Airsense 10 Elite machine.  I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
Aug 30
Jonathan replied to Richard Smith's discussion air bubbles after weight loss
"Hi You don't say how technical you are, or what sort of machine you use.  However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
Aug 29
Richard Smith posted a discussion

air bubbles after weight loss

Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck.  I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Aug 28
Sally Gray posted a discussion

Micro plastics risks

I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
Aug 3
Alison Mitchell is now a member of Hope2SleepGuide
Jul 2
John posted a discussion

job with the charity

Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
Jun 27
Tracey Tilley updated their profile
May 22
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14

© 2025   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service