Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

I have recently had a small operation for the above.

It involves a small camera going up the nose and then you are sent to sleep.

When you have an Apnea the camera picks up what is causing it.

I returned this week as an out patient and was told that my tounge, soft palate and fat in the throat was the cause.

The consultant said that he operates on a very few patients that he feels sure would benefit but I am not one of them.

  He was very fair and said by operating it could help me but I would still need to use a c/pap

and therefore he would not operate.

He also said he felt the throat would be halped by me loosing weight and I said I have tried so hard but find it very difficult.

He said people with osa find it 5 times harder to loose weight.

I asked as my ahi was good and I always use my c/pap would that not reverse that.and he said something about the taste recepter in the throat could have been damaged by the osa and that would stop me loosing weight.

He said I go to many top meeting on this and nobody knows the reason for certain.

I am now on a very very strict diet and going to the gym 6 days per week.

I will not be beat I will get rid on the c/pap!!

Regards Joe

Views: 190

Reply to This

Replies to This Discussion

Hi  Joe - let me reply to a few points, I've been using CPAP for nearly two years...

I do not like waking up and having to fumble around looking for buttons to turn the m/c off.

One of my machines has auto start and stop, the other doesn't but drops the airflow very quickly if it detects the mask is removed. You may want to try a different machine if you can.

I do not like sleeping in separate beds and i feel i need to as I would not subject my wife to having air blown in her face all night even though she says that she would tolerate it for me.


Mine prefers me to have the machine than not. I sleep quieter, my health and attitude is better, no snoring, no sudden awakening and panic attacks. For a while she didn't like the look, now she's fully sold on the idea.

Sleepweaver, and many other masks, diffuse the air very well,stopping the problem.

I do not like fiddling around putting masks etc back after I take them off to get a

drink of water in the night.

That is a bit of a pain, but I can switch off the machine, grab the glass, drink the water and get it back on without removing the sleepweaver, a full face mask is not so easy though...

I do  like nodding off in the garden or in my arm chair but if I do an apnea wakes me.

I'm don't seem to suffer as much if I'm sat up, but also seldom nod off in the day now anyway!

I do not like all the trouble unplugging, packing it, carrying it on a plane and replugging in the hotel.

Again,  a bit of a pain (and I'm not avoiding a usual trip of mine as there's no guaranteed power and the hotel rooms are never secure) but necessary, and airlines seem fine with it.


Hi Joe - let me reply to a few points, I've been using CPAP for nearly two years...

I have been using my a/pap for 3 years

I do not like waking up and having to fumble around looking for buttons to turn the m/c off.

One of my machines has auto start and stop, the other doesn't but drops the airflow very quickly if it detects the mask is removed. You may want to try a different machine if you can.

To stop it I have to hit the button which is easy when you are fully awake, when you laying on your side and just woken it is something I could do without.
I could just take the mask of and after several minutes it would stop but I would not want to wake my wife in the night with the loud blowing noise it would create.
The a/pap is supplied and maintained by my hospital and do not see any reason to change this.

I do not like sleeping in separate beds and i feel i need to as I would not subject my wife to having air blown in her face all night even though she says that she would tolerate it for me.
Mine prefers me to have the machine than not. I sleep quieter, my health and attitude is better, no snoring, no sudden awakening and panic attacks. For a while she didn't like the look, now she's fully sold on the idea.
So does mine and it does not worry her in the slightest.
What I said was the blowing is not a very nice thing to subject anyone to let alone someone that i love so I sleep in separate beds
Sleepweaver, and many other masks, diffuse the air very well,stopping the problem.
I change my mask 4 times a year f o c and so will stay with the resmed full face mask.

I do not like fiddling around putting masks etc back after I take them off to get a
drink of water in the night.

That is a bit of a pain, but I can switch off the machine, grab the glass, drink the water and get it back on without removing the sleepweaver, a full face mask is not so easy though...

I do like nodding off in the garden or in my arm chair but if I do an apnea wakes me.

I'm don't seem to suffer as much if I'm sat up, but also seldom nod off in the day now anyway!
I do not like all the trouble unplugging, packing it, carrying it on a plane and replugging in the hotel.

Again, a bit of a pain (and I'm not avoiding a usual trip of mine as there's no guaranteed power and the hotel rooms are never secure) but necessary, and airlines seem fine with

To summarize. We both like enjoy all the benefits from using an a/pap but do not enjoy the downsides as previously mentioned.

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"Yes, it does the job. I use a Powapacs Atom for portable power "
Wednesday
John replied to John's discussion Are every small CPAP machines any good?
"Hi Nick thanks. Does it do the job and could you camp with it?"
Wednesday
Nick Daniel posted a discussion

CPAP Total Face Mask

I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
Tuesday
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
Tuesday
Greg Lloyd is now a member of Hope2SleepGuide
Dec 6
Jonathan replied to David Hudson's discussion Pressure waking me up. Belching and wind
"Hi It sounds like you need to have more conversations with your sleep clinic.  There's little point in having a high pressure if it means you cannot tolerate the machine.  There's an interesting video here…"
Dec 1
David Hudson posted a discussion

Pressure waking me up. Belching and wind

HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
Nov 28
Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3
Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
Nov 2
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Nov 2
Collette rose is now a member of Hope2SleepGuide
Oct 31
John posted a discussion
Oct 30
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Oct 29
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep.  Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
Oct 24
Jonathan replied to John's discussion evil mask noise
"Good to know you found a solution!"
Oct 24
John replied to John's discussion Has anyone been told root cause of their OSA?
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
Oct 21
John replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Can't say I know about this."
Oct 20
John replied to John's discussion evil mask noise
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
Oct 19

© 2024   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service