Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

I have not been on here for a while. I hope you are all doing well. I am having real trouble. I have been on a bi pap machine for about 12 months. I have been having trouble keeping to above 4 hours, usually around 2.5 hours.. I have only been doing around 2,5 hours a night.I didn't used to go to bed untill  around 2 am. However I have changed my sleep pattern and I go to bed around 11.30 pm. I am now doing above 5 hours a night, for the past week, but my ahi is still 39.0. I see consultant in a few weeks. Has anyone got any ideas what else I could be offered for treatment.

Views: 113

Reply to This

Replies to This Discussion

what is your diet like

a long shot is to try alkali foods or even bicarbonate of soda three times a day

Carolyn, if your AHI is 39 you have a problem. Either your pressures are incorrect or you are getting too many leaks. Your consultant definetly needs to look at your data.

When you go back to the hospital I would take a print-out of your AHI results so the dr is aware that you know what is going on as the AHI of 39 needs sorting, and not surprising you are tired.  Sounds like the least thing that needs doing is an adjustment to the settings on the machine.  Let us know what he says.

Hello.. Thanks for replies. I called resp nurses and they said to take my machine up to them so they could see what is going on. I must admit I have not been able to do more than three hours on my machine. However I have changed my sleep pattern, as I have not been going to bed before 2am and hubby gets up for work at 5am and I couldn't settle with it after then. Now I try to be in bed by 11.30pm and my ahi's have been lower, exept last night the mask kept unsealing, and making very rude noises, I hope hubby didn't think it was me haha.Last night ahi was 41. See what tonight brings. The resp nurses were very surprised that I could get readings from the machine, they seemed a bit snooty about it. But there you go nursey I can now see what is going on myself.

Carolyn, let us know what they say and what they recommend, as long as we have data capable machines, we can take the therapy into our own hands and some don't like that.

Are you using either Sleepyhead or ResScan software?

I only have a Autoset, so don't like giving advice on pressures for a BiPap.

Hello Terry. I am using the sleepyhead data and the nurses couldn't understand how I got it. One even said how did this man get your data ddduuurrrrrr. I said he hadn't and that I downloaded the programe myself. I'll keep you up to date on how things go.

The UK is very different to Australia in regards to software or my Sleep Specialist is anyway, I have a yearly visit and he says I don't know why you bother coming to see me, you know as much about sleep apnea as I do and you know how to read your data as much as I do. I say I like coming and talking to you and learning new things about sleep apnea, but I don't like parting with the $150 for the visit lol.

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Jonathan replied to Iain Noble's discussion Resmed Airfit F20 Woes
"Hi.  No first hand experience, but you can see reviews here, which are mixed: https://www.cpap.com/productpage/resmed-airfit-f40-full-face-cpap-mask I notice cpap.com still appear to be selling the Quattro FX.  I have imported stuff from…"
Sunday
Iain Noble posted a discussion

Resmed Airfit F20 Woes

Dear FolksI have been using the Resmed Quattro FX mask ever since I was diagnosed over 7 years ago.…See More
Saturday
Iain Noble replied to Becky Murkin's discussion F20 AirFit small marking bridge of nose
"Hi All I can say is I feel your pain! I got the F20 as a replacement this year and it is very uncomfortable. I have just ordered the new Resmed F40 which is very small and light and so far it has been a lot easier to use for a mouth breather that…"
Saturday
Sarah Martin is now a member of Hope2SleepGuide
Saturday
jjimjam updated their profile
Apr 17
Kath Hope replied to Becky Murkin's discussion noisy humidifier normal?
"It sounds like you're getting rainout issues (condensation) so here's an article to help with this. www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout"
Apr 16
Becky Murkin posted a discussion

noisy humidifier normal?

Hello,I have an air sense 10 auto.When I have the humidifier and the heated tube plugged in it makes a sort of drumming noise. Like that at the gallows in films.Is this normal? It wakes me up  and I have to give up and switch off  for the night.See More
Apr 16
John posted a discussion

Dentists in Hull that know about Mewing ?

I was wondering if there are any dentists in Hull who know about John & Mike Mew, and changing jaw shape over time?I could add that I saw an ENT consultant recently and she said jaw shape, malocclusion, is genetic, which has become a debatable…See More
Apr 9
Profile IconKaren Mcleod, Fiona Watson, Teresa Hobbs and 5 more joined Hope2SleepGuide
Apr 3
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"I did replace the tank in my SleepCube, and had to regularly take the silicone sealing gasket out and give it a goof clean, but not infrequently found it standing in a pool of water in the morning.  The machine sat on a tray because of…"
Mar 26
John posted a discussion

Nasal valve collapse

Does anyone have any experience of nasal valve collapse?Wondering if I have this but I don't know what the norm is.Been trying widgets that hold the nose open and it's like night and day.See More
Mar 24
John replied to John's discussion Airsense 10 -humidifier runs dry
"Wow it's the other way round for me.I found with the Sleepcube I'd often have a good bit of water still there in the morning. Today I woke up with a dry tank on the Resmed again and it's not on full heat or flow. I got it on 6…"
Mar 24
Becky Murkin posted a discussion

F20 AirFit small marking bridge of nose

Please help or give advice all wise people on here.I have had the Resmed F20 AirFit small mask for over a month. Seals yet…See More
Mar 19
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"A very helpful reply Jonathan. I found the pressure setting for the full face mask to be too high when I changed to a nasal mask, but perhaps I should have persisted? I'll try again and I'll also discuss with the clinic whether an APAP…"
Mar 13
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Ramble alert!  My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu.  This was a very long time…"
Mar 12
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Thanks Jonathan - I had seen the YouTube video. My question is really about the experience of people who have control of their pressure settings, for example those people who have bought their machines directly and not obtained them through an NHS…"
Mar 12
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"This is NOT a recommendation http://www.youtube.com/watch?v=VNUWhd2UgQM"
Mar 11
Frances Knight posted a discussion

Air Sense 10 - changing pressure settings

I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this week and have been told there is no need for further appointments and just to contact them if I need supplies or…See More
Mar 11
Swen Greve is now a member of Hope2SleepGuide
Mar 4
Jonathan replied to Sue Reeves's discussion A few questions..
"If you have a helpful GP, I would ask them to re-refer you to the sleep clinic."
Mar 3

© 2024   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service