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Hello,have just found out my 3 yr old son has SA :((
Hello all.
My son is 3 and has always been a poor sleeper from birth. He has had numeouros health problems,from bronclitis to asthma.
We recently got referred to ent bcus he had glue ear.
I mentioned his sleepin how poor it was,and that he sleep talks. Alway tired,and behaoiur is hard work in the daytime.
So arranged a sleep study.
Results was sleep apnea.
Least seconds stop breathing was 15 most being 90!! Numerous times.
They are goin to take his adenoid and tonsils out in the next 6 weeks.
I'm bloody petrifed tho,now set up camp in his room to watch him.
Is there anythin i can do??
Also anyone out there with kids simalir age? Can u offer any advice,exp etc.
Thankyou.
T x
Views: 1033
Replies to This Discussion
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Permalink Reply by tracey clark on
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Thankyu guys once again,so helpful and supportive . I think you're right terry i will c whatis said. Thanks kath i don't obv myself no yet what acceptable is,so would be very intrestin. So over 5 i'm lookn for ? if under 4 i've no need worry? I will b askin about these ahi wen i go. If i didn't have the knowledge tha u have all give me,i wouldn't have been able ask these questions. Thank again,i'll keep lookin on se if anything new from the sleep tech. :)) T xx
Also do u think bedwetting is something ? As most morning he is drenched ..and he has been dry ages.
Also last nighthe woke in a state and he was shakin with fear was awful....
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Permalink Reply by Kath Hope on
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Nocturnal enuresis (bedwetting) has a big link with sleep apnoea Tracey + some adults are affected by it too. Here's just one link of many http://sleepdoctor.blogspot.co.uk/2006/01/bedwetting-and-obstructiv...
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Permalink Reply by Terry Vella on
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Tracey, I was going to say the same thing as Kath, sleep walking is also a common thing with sleep apnea, when I was a child I used to bed wet and sleep walk and in the 60's and 70's no one knew about SA, I wish they did. It's basically to do with whats called the fight or flight response, when we stop breathing our brains kick in and panic sets in, blood goes to our hearts and brains, the bed wetting is just a response to the lack of oxygen to our brains. Unless he has another sleep disorder the shaking with fear as you described it is probably again not being able to breathe properly and waking ups gasping for breaths. I know you have the appointment and you need to write these thing down so you can take them up with the Dr. The positive of all this is you are aware of what is going on and he shouldn't need to live with this the whole of his life like a lot of us in the past.
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i have no knowledge of another sleep disorder just what i'm witnessing..i used to wet the bed till i was 10. Back then my parents were relli harsh,they told me the eletric blanket i had would set on fire if i weed the bed,i had the charts al that crap. I don;t have sleep apnea btw but what i'm tryin say is if i ddnt know better id just be thinkin he a bed wetter like i was. But now it all links in? We have a stair gate on his door thankfull he can't open it.Have said all along if it wasn't on his room god knows what he b upto in night,scary to imagine,adults well i've hrd all sorts goin down makin food etc,driving there cars an stuff i mean it's just terrible what it can do. Scary thing of all it can cause death,weather ppl think its an over reactive or not! It true. I admire kath for all her work on this and the awarness bieng raised,as i for one never knew anythin of it before i had my son. t xx
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Tracey, not everyone that bed wets has sleep apnea, it is just a response by our brains that something is wrong. I used to go and cook food and there would be nothing in the pot, one night my parents caught me as I was walking out our front door and I never remembered it. I know this is scary for you and duanting in some ways, you do have to try not too get too stressed and try to relax a bit otherwise you won't be able to help your son if you are over stressed and then not well. Something will evenually be found and he will get a treatment, have you seen the story of little Emill that Kath updates regulary. Like I said the good thing is now things can be diagnosed and treatments are available, that will be the next step.
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good luck for Tuesday will check for your update
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gosh did u,it's crazy stuff. I know i'm tryin not to as i do make myself ill so been tryin stay calm lol. Will c what tom brings nyhw. I havent heard about emill no? I'll have a look. t x
Thaks carol x
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Sorry for the late answer Tracey + hope you see this before your appointment. Make sure you ask his AHI + what his oxygen levels were during the study. Take the video + show them + don't be afraid to show your emotions, to let them know how worried you are, and that this cannot carry on, and if they haven't a plan then you need to get a 2nd opinion!! Good luck honey...... rooting for you tomorrow (Tues)
+ look forward to your update, with hopefully good news.....
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Hi Kath,and thanks. Only just seen this. I looked at the report + it made no sense to me, but i did ask about the oxygen levels etc. They were 97 per cent :) So good news is that it seems the op has worked, but bad news is they think he has nocturnal seizures?
Was there 3 hours today and they were great. Listened to me for an hour and read my notes etc. Got a second opinion and organised lots of tests. He had bloods taken today - not nice but he's had a lot worse, bearing in mind he's only 3! They're arranging an EEG + ,said if it comes back positive we go from there, if it comes back normal it doesn't mean it is. So then he will have to go into hospital for an overnight study where they observe him etc.
They said what I've told them and what they think does not link in with sleep apnoea now. It's hard as sleep apnea can mimic other sleep disorders and vice versa. So although good news I still don't have the closure or the end to his sleeping problems. Hopefully we will get to the bottom of it and get him sorted very soon. Even tho it seems sleep apnea cured I probably shouldn't be on here anymore, but because you have all been on this with me all the way, I'd still like to update you with his progress. Thank you all very much, especially you Kath for all the support you have given. xxx Tracey xx
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i'm so sorry fr ll the speelin it isn't me it the computer,hope u understand the previous haha
t xx
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Don't worry about the spelling Tracey - I've just edited it for you, so that others can read it thoroughly. I've not changed anything of what you've said - just the typos
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tracey clark said:i'm so sorry fr ll the speelin it isn't me it the computer,hope u understand the previous haha
t xx
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Now for my proper reply...... I'm away at the moment in London, but wanted to check on here to see how you got on Tracey, as have been thinking of you. I know you still have a fair way to go to get your son on the treatment he desperately needs, but I think this is all very positive and you must feel relieved that the hospital are aware there is a problem that needs getting to the bottom of.
I'm no expert in this type of thing, but it's good to read that the operation appears to have cured the sleep apnoea. If this is the case, do bear in mind what we've talked about before, and always be on alert in case it returns later on in life, which it sometimes does. However, at the moment you have other issues to deal with, and I'm pleased you're keeping us updated.
Although this is primarily a sleep apnoea forum, this is not restricted to just sleep apnoea as there are often overlaps with other sleep conditions. I do hope you'll stay on here - at least until you get your son sorted, but you are welcome for however long you'd like to!
It may be that he will still need to use some form of machine to help him sleep, and we can certainly help you with that if it involves a mask. We also have other people on here with different sleep conditions - scoliosis is just one of them!
Also, other people who come across our forum may have other sleep conditions, so reading this will help them more than you'll ever know! Also take a look at this discussion going on with another of our members, as she's being investigated for nocturnal epilepsy as well as sleep apnoea..... Nocturnal Epilepsy Discussion (in fact I've just seen that Paula was due back for checks on the 1st Oct, and I was thinking it was Nov, so I must ask how she's getting on).
You take care Tracey and know that we will continue to support you for as long as necessary, and we're very keen to get regular updates from you please
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