"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Sleep Apnoea Forum Bringing Help + Support to the Patient
Hospital admissions?
Emil is back in the children's hospital next week for a gastrostomy and fundoplucation, the admission is horrendous! We knew he wouldn't be admitted to our local hospital anymore as they
have no training and are not willing to for him. He was diagnosed had surgery and Titrated etc at the children's hospital. They do this in the critical care unit. Anyway he has to go bk to critical care as no other wards in the children's take kids using breathing support regardless of why. My worry is emil does still desaturate, albeit not to 50 anymore but he does sedat to low 80's and they couldn't get him off oxygen last time he was took off by the resp as she said he would be ok desatting to that as long as it was for less than 5 minutes and no mire than 5 in a 60 minute period the worry is while in critical care he will b under the care of critical care team and general surgery so they will ave a say it's sooo worrying thinking he's gunna b kept there fir a prolonged period and puck up bugs, emil has chronic lung disease too and picks everything up. Last time he picked up rsv and we were bk on the vent at 60 breaths per min and 100% 02. I'm just aving a moan here but does anyone else have trouble with wards in hospitals or is cos he's a child?
Rachel
have no training and are not willing to for him. He was diagnosed had surgery and Titrated etc at the children's hospital. They do this in the critical care unit. Anyway he has to go bk to critical care as no other wards in the children's take kids using breathing support regardless of why. My worry is emil does still desaturate, albeit not to 50 anymore but he does sedat to low 80's and they couldn't get him off oxygen last time he was took off by the resp as she said he would be ok desatting to that as long as it was for less than 5 minutes and no mire than 5 in a 60 minute period the worry is while in critical care he will b under the care of critical care team and general surgery so they will ave a say it's sooo worrying thinking he's gunna b kept there fir a prolonged period and puck up bugs, emil has chronic lung disease too and picks everything up. Last time he picked up rsv and we were bk on the vent at 60 breaths per min and 100% 02. I'm just aving a moan here but does anyone else have trouble with wards in hospitals or is cos he's a child?
Rachel
Views: 63
Replies to This Discussion
-
Permalink Reply by Kath Hope on
-
Rachel, you have every right to have a moan on here - no better place to :D You do go through so much with your children. I was reading about your daughter's recent hospital visit on Facebook. Those kids are so lucky to have you with your endless patience and love for them. Just so we all know, what exactly are those procedures Emil's having?
-
Permalink Reply by Rachel Dickinson on
-
Niamh is havin a rough time bless her.
Emil is having a surgical feeding tube inserted straight into his stomach rather than the one that goes down his nose and back of throat. It's a more permanent one. The fundo is to stop him vomiting he won't be able to vomit once he's had this done.
Kath Hope said:Rachel, you have every right to have a moan on here - no better place to :D You do go through so much with your children. I was reading about your daughter's recent hospital visit on Facebook. Those kids are so lucky to have you with your endless patience and love for them. Just so we all know, what exactly are those procedures Emil's having?
-
-
Aw, poor Emil. Hope it goes well + keep us posted. Hope Niamh recovers soon as well.
Rachel Dickinson said:
Niamh is havin a rough time bless her.
Emil is having a surgical feeding tube inserted straight into his stomach rather than the one that goes down his nose and back of throat. It's a more permanent one. The fundo is to stop him vomiting he won't be able to vomit once he's had this done.
Kath Hope said:Rachel, you have every right to have a moan on here - no better place to :D You do go through so much with your children. I was reading about your daughter's recent hospital visit on Facebook. Those kids are so lucky to have you with your endless patience and love for them. Just so we all know, what exactly are those procedures Emil's having?
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep. Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
"Can't say I know about this."
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
"Hi Jonathan, well see my nose is blocked a lot, so I mouth breath which really sucks a lot more moisture and makes my mouth dry. So I put humidity on maximum, which makes for condensation at the mask end, which becomes a demonic reed instrument.Now…"
ResMed AirSense 10 getting noisy
HelloI have an NHS issued ResMed AirSense 10 with heated humidifier. In the last couple of weeks, it's developed an annoying noise, when I inhale. It bothers me a little and my partner a lot! I sometimes get problems if the water container in the…See More
"Hi
My first question is why is condensation forming? I very occasionally get some condensation, may be once a month, but I can quickly run a finger around the inside of the mask, and wipe it away. I use a nasal mask, with the humidifier…"
"11K+? Ok that's probably where I should look then :-)"
"Hi John. Thanks for the compliment as I do my best popping on here, but it's difficult due to us now supporting 25k+ patients at the charity. To be honest, the forum is quiet because most people seem to prefer Facebook and forums aren't as…"
"There's some information here, but generally it's very common and likely due to our anatomy."
© 2024 Created by The SleepGuide Crew.
Powered by
