"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
I've 'hit a wall' can any body help me?
I was diagnosed with severe OSA in November and I have been using a Philips Respironics CPAP machine and full face mask from early December up to now (about 5 months). My HPI's went down from 44 to about 14 in about 10 weeks and I was feeling much less physically and mentally tired. At my last visit to the Sleep Clinic, about 3 weeks ago, my max pressure was reduced from 20cm to 16cm as this was the average highest pressure recorded on my data. This also reduced the instances of my mask blowing off. However, for the last few weeks my physical fatigue and mental fogginess have returned. I feel absolutely exhausted and at the end of my tether. Has anyone else experienced this?
I know it takes time to feel the full advantages of cpap therapy but I am going backwards. I am trying to get an appointment with my sleep clinic to see if reducing the max pressure of my machine has caused this downward turn. I think I could still be apnoeating at 16cm pressure. I am also waking up with rapid heat beating which had virtually disappeared once I started treatment
Views: 234
Replies to This Discussion
-
Permalink Reply by Sleep2snore on
-
They have reduced it to far. The max was 16, they should have left the machine at 18 if it is an APAP (automatic pressure) if it is a CPAP you have now same applies. However, it might not be quite that straight forward as that as the pressure you are now at could be causing other types of Apnoea.
If you know how I would be tempted to put the pressure up slightly, maybe .5 or 1 and see what a week brings.
If you don't want to mess around and it is an NHS machine, contact your clinic and tell them you are feeling tired again.
They should look at your data if the machine has a data card and adjust the machine to suit your needs better.
Sometimes at the start of treatment people can have Central Apnoeas but these usually clear up after a while.
Also, if you have EPR on, try reducing it a bit, the lower the number you can tolerate the better.
Let us know how you get on.
-
Permalink Reply by Kath Hope on
-
Sorry to hear after a good start you've taken a step backwards, and it could well be due to the reduction in pressure. Our charity don't recommend adjusting pressures or given medical advice, but you're right to contact your hospital who will probably re-adjust the pressure. Waking up with the fast heartbeat is a big clue that the current pressure isn't treating you as well as before. We can all have hiccups along the way and I'm sure you'll get this sorted soon. Good luck....
-
Permalink Reply by John Wilkinson on
-
Thanks for that Kath. I am due to see the sleep clinic next week. Hopefully they will re-adjust the pressure. I will keep you informed.
John
-
-
Thanks for your advice. I really appreciate your help.
I wasn't aware that there different types of apnoeas.
I will be seeing the sleep nurse next week. I will keep you informed.
John
Sleep2snore said:They have reduced it to far. The max was 16, they should have left the machine at 18 if it is an APAP (automatic pressure) if it is a CPAP you have now same applies. However, it might not be quite that straight forward as that as the pressure you are now at could be causing other types of Apnoea.
If you know how I would be tempted to put the pressure up slightly, maybe .5 or 1 and see what a week brings.
If you don't want to mess around and it is an NHS machine, contact your clinic and tell them you are feeling tired again.
They should look at your data if the machine has a data card and adjust the machine to suit your needs better.
Sometimes at the start of treatment people can have Central Apnoeas but these usually clear up after a while.
Also, if you have EPR on, try reducing it a bit, the lower the number you can tolerate the better.
Let us know how you get on.
About
Sleep Apnoea Forum
New to the Sleep Apnoea Forum?
1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!
Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.
Latest Activity
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
"Yes, it does the job. I use a Powapacs Atom for portable power "
"Hi Nick thanks. Does it do the job and could you camp with it?"
CPAP Total Face Mask
I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
"Hi
It sounds like you need to have more conversations with your sleep clinic. There's little point in having a high pressure if it means you cannot tolerate the machine. There's an interesting video here…"
Pressure waking me up. Belching and wind
HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
"Hi
My first thought is "don't panic"! We're all a bit different, and there are many things that can be tweaked. I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
1st time and I’ve failed the mask leak test
Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Are every small CPAP machines any good?
Travel sized, micro - any good?See More
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
© 2025 Created by The SleepGuide Crew.
Powered by
