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John Wilkinson
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  • Wakefield
  • United Kingdom
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John Wilkinson's Discussions

I've 'hit a wall' can any body help me?
4 Replies

I was diagnosed with severe OSA in November and I have been using a Philips Respironics CPAP machine and full face mask from early December up to now (about 5 months). My HPI's went down from 44…Continue

Started this discussion. Last reply by John Wilkinson May 17.

DVLA and Medical Review Driving Licences
3 Replies

Hi,I have recently started treatment for severe OSA and use a CPAP machine. After 3 weeks treatment my AHI went down from 42(severe) to 20 (moderate). I am due to visit my sleep clinic next week for…Continue

Started this discussion. Last reply by John Wilkinson Jan 31.

Dreamstation humidifier heated hose and simplus 'mask type' settings
7 Replies

Hi Everyone,I have recently purchased and started to use a heated hose with my dream station humidifier as my unheated hose used to 'bubble and gurgle' with condensation and also wet my face, even on…Continue

Started this discussion. Last reply by N Feb 18.

My first review
5 Replies

After only 15 days on my cpap machine I have recently had my first review. I was diagnosed with severe OSA, I had an AHI of 42. My partner timed some of my apnoeas at 28. seconds.My AHI is now down…Continue

Started this discussion. Last reply by Sleep2snore Jan 21.

 

John Wilkinson's Page

Latest Activity

John Wilkinson replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi Sharon, I have been using a Cpap machine for 7 months. I too struggled with a full face mask (Simplus as issued by sleep clinic) but I changed from a large to medium size mask and it is a lot more comfortable and, because it fits better, I…"
Jul 9
John Wilkinson replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Thanks for your advice. I really appreciate your help. I wasn't aware that there different types of apnoeas. I will be seeing the sleep nurse next week. I will keep you informed. John "
May 17
John Wilkinson replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Thanks for that Kath. I am due to see the sleep clinic next week. Hopefully they will re-adjust the pressure. I will keep you informed. John"
May 17
Kath Hope replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"Sorry to hear after a good start you've taken a step backwards, and it could well be due to the reduction in pressure.  We don't recommend adjusting pressures but you're right to contact your hospital who will probably re-adjust…"
May 17
Sleep2snore replied to John Wilkinson's discussion I've 'hit a wall' can any body help me?
"They have reduced it to far.  The max was 16, they should have left the machine at 18 if it is an APAP (automatic pressure) if it is a CPAP you have now same applies.  However, it might not be quite that straight forward as that as the…"
May 16
John Wilkinson posted a discussion

I've 'hit a wall' can any body help me?

I was diagnosed with severe OSA in November and I have been using a Philips Respironics CPAP machine and full face mask from early December up to now (about 5 months). My HPI's went down from 44 to about  14 in about 10 weeks and I was feeling much less physically and mentally tired. At my last visit to the Sleep Clinic, about 3 weeks ago, my max pressure was reduced from 20cm to 16cm as this was the average highest pressure recorded on my data. This also reduced the instances of my mask…See More
May 16
N replied to John Wilkinson's discussion Dreamstation humidifier heated hose and simplus 'mask type' settings
"Hi John, I had the same problem until I disvovered that the setting for the heating was “adaptive” (works following a piece of software that switches the humidifier on/off during the night), as opposed to “fixed”. I changed…"
Feb 18
grumpycamel replied to John Wilkinson's discussion Dreamstation humidifier heated hose and simplus 'mask type' settings
"Hi John, It may help if you switch on the preheat function on the DreamStation main menu before you go to bed. It warms up the humidifier for 30 minutes and switches itself off to get things warmed up. I tend to have the hose and humidifier on 5…"
Feb 13
John Wilkinson replied to John Wilkinson's discussion DVLA and Medical Review Driving Licences
"Thank you for your advice. I contacted my insurance company (LV), with trepidation, and informed them that I now held a 3 year medical review licence and that I had moderate OSA and they were ok with that. They said if the DVLA said I was fit…"
Jan 31
John Wilkinson replied to John Wilkinson's discussion DVLA and Medical Review Driving Licences
Jan 31
Sleep2snore replied to John Wilkinson's discussion Dreamstation humidifier heated hose and simplus 'mask type' settings
"It is very much a setting of your own choice, I also found the lower settings did very littel. You just have to play around and adjust things slowly until you find a sweet spot. I am not going to comment where my mind has wondered to now…"
Jan 26
Sleep2snore replied to John Wilkinson's discussion DVLA and Medical Review Driving Licences
"You need to get at least 5 hours under your belt every night, plus you really need to get it down to 5 or less events per night. It is not easy to get it down right away for some people, but keep working at it and if you are struggling contact your…"
Jan 25
John Wilkinson posted a discussion

DVLA and Medical Review Driving Licences

Hi,I have recently started treatment for severe OSA and use a CPAP machine. After 3 weeks treatment my AHI went down from 42(severe) to 20 (moderate). I am due to visit my sleep clinic next week for my second review.  On the advice of my sleep clinic I submitted the S1 form to the DVLA and after they referred to my consultant I now have to submit my current licence and have it replaced with a medical review licence.Obviously I am going to refer this to my insurance company. Does anyone know if…See More
Jan 25
John Wilkinson replied to George's discussion Sleep Apnea and DVLA
"Hi, I have recently started treatment for severe OSA and use a CPAP machine. After 3 weeks treatment my AHI went down from 42(severe) to 20 (moderate). I am due to visit my sleep clinic next week for my second review. Personally I feel to have…"
Jan 25
John Wilkinson replied to John Wilkinson's discussion Dreamstation humidifier heated hose and simplus 'mask type' settings
"Hi Sleep to snore, Thanks once again for your support. I have turned the adaptive setting off and defaulted to fixed. The sleep clinic also recommended this. I went to sleep with the hose on 2 and humidifier on 3. When I woke up about 4 hours later…"
Jan 23
Sleep2snore replied to John Wilkinson's discussion My first review
"Hi John, I have had over 20 yrs of it so far, it just takes a while for your brain to accept that it needs to use a machine. We are not used to air at pressure being blown into us, so stick with it and in no time you will not be able to sleep…"
Jan 21

Profile Information

My Interest in Sleep Apnoea
I have Sleep Apnoea
Treatment Being Used, If Any
CPAP
If Machine Being Used, What Make? (e.g., Respironics M Series with A-Flex Auto-Adjusting CPAP)
Philips DreamStation
If Mask Being Used, What Type? (e.g., ResMed Activa Nasal Mask)
F&P simplus nose and mouth mask

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Latest Activity

Kath Hope replied to Chris Vesey's discussion Cure for wind
"This is a common problem Sally, and especially when new to CPAP, irrespective of whatever machines people use.  It's definitely not just an Airsense 10 problem. If you've not clicked on the link I posted above in my reply to Chris…"
yesterday
Sally Gray replied to Chris Vesey's discussion Cure for wind
"Hi, it’s interesting to read Chris’s comment that the AirSense 10 has given him flatulence whereas his previous CPAP wasn’t a problem.  I’m new to using a CPAP and have been provided with an AirSense 10 which I’m…"
yesterday
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"I'm not aware of finance, and we at the Hope2Sleep Charity certainly couldn't offer this unfortunately.  However, if you have a Paypal account then you can apply for Paypal Credit which is offered for products over £150 I…"
Sunday
Kyla Davies replied to Bob Blair's discussion So Clean sanitiser
"Hi Kath In relation to the Soclean do you know if any finance is available to purchase one of these machines? I do not mind spending that amount on one but would be very helpful especially this time of year to purchase one on a finance…"
Sunday
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"Great to hear this Andy Just as importantly they will help prevent gum disease from dry mouth (plus less dental bills)."
Friday
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Tried one Xylimelts last night. Best sleep in ages. No waking up with a terrible dry mouth. Very pleased thank you"
Friday
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"Thanks for supporting our charity with your order Andy, and they'll be sent out tomorrow.  I love the Beaumont Citrus Wipes and have tried all the others, and these are definitely the best.  I use them everyday. Hope you find the…"
Sep 11
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Have just placed an order for some mask wipes and the mouth discs. Thanks for the recommendation of the discs, fingers crossed."
Sep 11
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"The SoClean will never be supplied by the NHS as they can't afford to give out products like this.  We have the SoClean at the charity at the price we've been told it has to be sold for…"
Sep 11
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Thank you for quick reply. The advert was on TV again this afternoon with a web address that links to an Amazon site. After a bit of research I have found a UK seller for £245 with 30 day return. Still not convinced so called my Respiratory…"
Sep 11
Sleep2snore replied to Edam's discussion Double inhaling
"I am sure they are not, but a lt of people tend to tighten their masks up to tightly. A lot more than they need to to stop leaks, I was no exception at the start, if it leaked, tighten it more, but this was not the answer.  New mask the correct…"
Sep 11
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"I still haven't seen the advert Andy, but lots of people are contacting us about purchasing.  First and foremost, whether with the SoClean or not, it is important to keep our equipment cleaned.  You're doing the right thing…"
Sep 10
Andy Dykes updated their profile
Sep 10
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Oh dear. Looks like I'm in trouble! I have used a CPAP machine for more than 10 years (not the same one) and currently have a Remstar System One SE. Have just seen an advert on TV for the SoClean which got me wondering how often are you…"
Sep 10
Andy Dykes is now a member of Hope2SleepGuide
Sep 10
Edam replied to Edam's discussion Double inhaling
"The only trouble is that both the Amara View and the Dreamwear are too painful to wear. The part of the cushion separating the mouth area from the nose cuts in!! to the base of my nose and partly into my nostrils."
Sep 9
Sleep2snore replied to Edam's discussion Double inhaling
"Good detective work."
Sep 8
Sleep2snore replied to ged's discussion no EPR setting REsmed S8 spirit 2 autoset
Sep 8
Sleep2snore replied to ged's discussion no EPR setting REsmed S8 spirit 2 autoset
"I can't see why they would have it on CPAP and not on AUTO, I suspect it has been locked out by sleep clinic, resetting will not help. It might be right that earlier models might not have EPR as I do remember seeing something about that, but…"
Sep 8
Sleep2snore replied to Helen McIntyre's discussion Pressure under eyes
"ResMed also do Hybrid masks, but they are more like Nasal Pillows stuck on top of a mouth mask. These all look as if they are made by the same manufacturer to me, but they are an alternitive, however the Dreamwear looks better.  Make sure you…"
Sep 6

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