Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Being a newbie, I just wanted to post my early experiences with sleep as I think I may have the mask leaks issues beat and am proud that last night I broke my record and recorded a .9 AHI over 7.1 hours.
I put it down to not only getting used to CPAP and
apart from the normal sleep hygiene routines I now:
1.Have one cup of Lavender, Peppermint and Lemon tea after dinner, I not longer drink caffine at all.
2.I use a Lavender infuser in my lounge room for a couple of hours before bed.
3.Have Lavender flowers in my room.
4.Take a Night Multi vitamin called Rest and Restore which has a calming effect and works on my central nervous system during the night and gives me an energy boost the next day.
5.I take one Valarian Forte 30 mins before bed, prior to and at the start of CPAP, I was on perscription medication which didn't work and probably made me worse. I now only use herbal.
6.Put a drop of Vick's Vapour Rub under my nose (I wear a FFM)rather than using a nasal spray.
7.I make my own mask liners.
8.I dampen the cloth on the plastic head rest a couple of hours before going to bed (I have oily skin) the head rest was moving and causing me leaks this doesn't seem to happen anymore.
9.I have found a very small, hard pillow which goes under my normal pillow, I find this is similar to a CPAP Pillow and my mask doesn't move when I turn on my side.
10.I put a pillow either side of my body to keep me in place.

Sorry for the long list my sleep tech was interest as she had never heard of some of the things I do to get a good nights sleep.

Hope some of these tips may help others to get a good nights sleep.

Views: 1037

Reply to This

Replies to This Discussion

This is great news Terry and amazing to think you've got your AHI down to 0.9 already!  Your nightly routines are a prime example to us all in how we can't just put on our masks and trust the CPAP to fix everything - we have to work to find out what helps us even further.  One of the most important things we can do, which you've addressed (and Dr Parks talks constantly about), is to ensure we can breathe through our nostrils.  I use Breathe Right strips and no longer need the prescription nasal spray.

 

What do you make your mask liner out of?  I use the Respironics Fitlife mask which doesn't need a liner, but on the odd occasions when I have a change and use one of my other masks, I resort to a homemade liner too, which I made out of an old t-shirt and is far cheaper than using the RemZzzs......plus it's washable!

 

I told you it wouldn't be long before you were an 'expert' and thanks for posting this, which will help other members and people who visit our forum!

Kath,I bught a 6 pack of Remzzz's and used them as a template then first used an old t-shirt which does the job. I then went to a fabric store and bought some material I think it was 50% Cotton and 50% Polyester. You can use 100% cotton it just depends on your preference and how they feel on your face.
I believe you can buy Microfibe from fabric stores which is what the Remzzz's are made of.
I bought a square metre (3 ft) for $4.00 and have only used about half of that in two months.
I wash them every second day and throw them away after 4 - 6 uses.
I also use the material for the head rest and wrap a piece on each side of my chin strap to stop marking.
Same here Terry.  I used to sell Remzzzs on my website until another UK supplier got sole UK rights which stopped me selling them, but if people only knew how easy it was to make them they could save loads of money ;)  It's a pity Remzzzs don't make them so people can re-use them, but I suppose that's clever marketing! 

Terry Vella said:
Kath,I bught a 6 pack of Remzzz's and used them as a template then first used an old t-shirt which does the job. I then went to a fabric store and bought some material I think it was 50% Cotton and 50% Polyester. You can use 100% cotton it just depends on your preference and how they feel on your face.
I believe you can buy Microfibe from fabric stores which is what the Remzzz's are made of.
I bought a square metre (3 ft) for $4.00 and have only used about half of that in two months.
I wash them every second day and throw them away after 4 - 6 uses.
I also use the material for the head rest and wrap a piece on each side of my chin strap to stop marking.

Here here to making our own liners! It's a bit like the way I like to re-fashion the headgear but I use the ones I have been given from my hospital to redisign things that work for me. They have been very supportive towards me about my doing this. I do lots of loose hand stitching so that the fabric can stretch as well as it is designed to and I use shop bought velcro to extend or alter the fixing points of the straps.

Some of this stuff we need to make the cpap more comfortable is just so expensive and things which have just one use are so expensive and therefore are impractical and unsustainable if your budget is restricted; however wonderful it is. I started making my own liners ages ago with cotton lawn (is that the spelling?) which I bought from a fabric supplier on ebay! I've got masses of fabric which will probably last for a couple of years!

I suppose there is a place for making stuff entirely independently of the big suppliers / shops, which saves loads of money. The adjusting of the headgear is actually more expensive than using them as they come of course - but that is to end up with a superior product to any I can buy as that makes a bespoke piece of equipment which means less leakage. (Hope that ramble makes sense!)  

Rosemary  


Same here Terry.  I used to sell Remzzzs on my website until another UK supplier got sole UK rights which stopped me selling them, but if people only knew how easy it was to make them they could save loads of money ;)  It's a pity Remzzzs don't make them so people can re-use them, but I suppose that's clever marketing! 

Terry Vella said:
Kath,I bught a 6 pack of Remzzz's and used them as a template then first used an old t-shirt which does the job. I then went to a fabric store and bought some material I think it was 50% Cotton and 50% Polyester. You can use 100% cotton it just depends on your preference and how they feel on your face.
I believe you can buy Microfibe from fabric stores which is what the Remzzz's are made of.
I bought a square metre (3 ft) for $4.00 and have only used about half of that in two months.
I wash them every second day and throw them away after 4 - 6 uses.
I also use the material for the head rest and wrap a piece on each side of my chin strap to stop marking.

Hi! 

 

Instead of vicks, I'll drop a couple of crystals of menthol in the humidifier, that helps really well with congestion and is mega cheap!

Now, that sounds like a good idea Symmit!

 

Rosemary

symmit said:

Hi! 

 

Instead of vicks, I'll drop a couple of crystals of menthol in the humidifier, that helps really well with congestion and is mega cheap!

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Jonathan replied to Iain Noble's discussion Resmed Airfit F20 Woes
"Hi.  No first hand experience, but you can see reviews here, which are mixed: https://www.cpap.com/productpage/resmed-airfit-f40-full-face-cpap-mask I notice cpap.com still appear to be selling the Quattro FX.  I have imported stuff from…"
Sunday
Iain Noble posted a discussion

Resmed Airfit F20 Woes

Dear FolksI have been using the Resmed Quattro FX mask ever since I was diagnosed over 7 years ago.…See More
Saturday
Iain Noble replied to Becky Murkin's discussion F20 AirFit small marking bridge of nose
"Hi All I can say is I feel your pain! I got the F20 as a replacement this year and it is very uncomfortable. I have just ordered the new Resmed F40 which is very small and light and so far it has been a lot easier to use for a mouth breather that…"
Saturday
Sarah Martin is now a member of Hope2SleepGuide
Saturday
jjimjam updated their profile
Apr 17
Kath Hope replied to Becky Murkin's discussion noisy humidifier normal?
"It sounds like you're getting rainout issues (condensation) so here's an article to help with this. www.hope2sleep.co.uk/water-in-the-mask-hose-known-as-rainout"
Apr 16
Becky Murkin posted a discussion

noisy humidifier normal?

Hello,I have an air sense 10 auto.When I have the humidifier and the heated tube plugged in it makes a sort of drumming noise. Like that at the gallows in films.Is this normal? It wakes me up  and I have to give up and switch off  for the night.See More
Apr 16
John posted a discussion

Dentists in Hull that know about Mewing ?

I was wondering if there are any dentists in Hull who know about John & Mike Mew, and changing jaw shape over time?I could add that I saw an ENT consultant recently and she said jaw shape, malocclusion, is genetic, which has become a debatable…See More
Apr 9
Profile IconKaren Mcleod, Fiona Watson, Teresa Hobbs and 5 more joined Hope2SleepGuide
Apr 3
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"I did replace the tank in my SleepCube, and had to regularly take the silicone sealing gasket out and give it a goof clean, but not infrequently found it standing in a pool of water in the morning.  The machine sat on a tray because of…"
Mar 26
John posted a discussion

Nasal valve collapse

Does anyone have any experience of nasal valve collapse?Wondering if I have this but I don't know what the norm is.Been trying widgets that hold the nose open and it's like night and day.See More
Mar 24
John replied to John's discussion Airsense 10 -humidifier runs dry
"Wow it's the other way round for me.I found with the Sleepcube I'd often have a good bit of water still there in the morning. Today I woke up with a dry tank on the Resmed again and it's not on full heat or flow. I got it on 6…"
Mar 24
Becky Murkin posted a discussion

F20 AirFit small marking bridge of nose

Please help or give advice all wise people on here.I have had the Resmed F20 AirFit small mask for over a month. Seals yet…See More
Mar 19
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"A very helpful reply Jonathan. I found the pressure setting for the full face mask to be too high when I changed to a nasal mask, but perhaps I should have persisted? I'll try again and I'll also discuss with the clinic whether an APAP…"
Mar 13
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Ramble alert!  My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu.  This was a very long time…"
Mar 12
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Thanks Jonathan - I had seen the YouTube video. My question is really about the experience of people who have control of their pressure settings, for example those people who have bought their machines directly and not obtained them through an NHS…"
Mar 12
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"This is NOT a recommendation http://www.youtube.com/watch?v=VNUWhd2UgQM"
Mar 11
Frances Knight posted a discussion

Air Sense 10 - changing pressure settings

I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this week and have been told there is no need for further appointments and just to contact them if I need supplies or…See More
Mar 11
Swen Greve is now a member of Hope2SleepGuide
Mar 4
Jonathan replied to Sue Reeves's discussion A few questions..
"If you have a helpful GP, I would ask them to re-refer you to the sleep clinic."
Mar 3

© 2024   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service