Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Hello my name is Julie and I have just joined the forum.
My son (16) has been using a Resmed full face mask for over 6 months and the straps are causing severe bald patches to the back of his head due to friction and having to be adjusted tight to avoid leaks. His respiratory doctors have no solution to the problem and insist that he continue using the head gear. He requires bipap ventilation and no alternative is possible.
He tried using a thin cotton cap under the straps but this hasn't appeared to help(his own idea).
Has anyone else experienced this problem? Does anyone have any ideas or suggestions to help stop the hair being continually rubbed away? I'd be so grateful to hear from you..
I'm so frustrated and concerned about the lack of interest the doctors show when it comes to problems like this. Makes me angry!!!!!!!!!!

Best wishes
Julie

Views: 5573

Reply to This

Replies to This Discussion

Welcome Julie, I use a Resmed and don't find that problem and luckily because I need to keep all the hair I can, I'm really surprise it is doing it, which model mask is it?

I would suggest a few things for him they may help him loosen the straps a bit more, get him to try mask liners, they save his face touch the silicone and help with leaks, you can get them over the net or tell you how to make then yourself fairly cheaply, I think Kath makes her own leopard skin ones

Also have the hose coming from above is head either over a bedhead or you can buy a product called a hose lift or make one fairly cheaply, that way the mask pulls up instead of down and helps with leaks as well and saves getting tangled.

Just a couple of suggestions, good luck.

I think you will need to ask the respiratory doctor to supply a different make of mask.

The headgear on the F&P Simplus,  for example, is over 50mm wide at the back,

Other makes of full face masks will have different straps.as well.,

If you are not able to get another mask then it could be worth contacting Resmed for advice, I have found them to be very helpful in the past.

Just to say that I've been speaking with Julie and seen the pictures of her poor son's head and bald patches.  He's ill at the moment so she's visiting him in hospital, but it was more the straps near the top of his head and we're trying him with a SoftCap Headgear to see if that helps his problem.  I'm actually using one myself with the FitLife and it's a lot more comfy.

Hi

How is this young man and has the softcap helped with his hair loss.

Dee

Thanks for asking Dee.  We're working to sort the problem with the softcap, but it's not easy as he's currently in hospital and nobody tries as hard as a child's own parent!

Has there been any more news on this subject?  I am experiencing hair loss too.

Thank you.

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"Yes, it does the job. I use a Powapacs Atom for portable power "
Wednesday
John replied to John's discussion Are every small CPAP machines any good?
"Hi Nick thanks. Does it do the job and could you camp with it?"
Wednesday
Nick Daniel posted a discussion

CPAP Total Face Mask

I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
Dec 17
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
Dec 17
Greg Lloyd is now a member of Hope2SleepGuide
Dec 6
Jonathan replied to David Hudson's discussion Pressure waking me up. Belching and wind
"Hi It sounds like you need to have more conversations with your sleep clinic.  There's little point in having a high pressure if it means you cannot tolerate the machine.  There's an interesting video here…"
Dec 1
David Hudson posted a discussion

Pressure waking me up. Belching and wind

HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
Nov 28
Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3
Jonathan replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"Hi My first thought is "don't panic"!  We're all a bit different, and there are many things that can be tweaked.  I took to CPAP therapy like a duck to water, but I've had friends who say they can't cope, but…"
Nov 2
Collette rose posted a discussion

1st time and I’ve failed the mask leak test

Hi everyone, today I received my rental kit - prisma smart max, plus a Philips dreamwear mask which I’ve been wearing unconnected to try and get used to it. I just did a mask fit test using a medium mask and got a constant red/orange leak warning…See More
Nov 2
Collette rose is now a member of Hope2SleepGuide
Oct 31
John posted a discussion
Oct 30
Profile IconBill Wright, Nicole Watson, TJ Bennett and 2 more joined Hope2SleepGuide
Oct 29
John replied to John's discussion evil mask noise
"Ha well it lasted a couple of days but started howling again. But it's a step in the right direction, just needs a bit more work."
Oct 24
Jonathan replied to John's discussion Has anyone been told root cause of their OSA?
"Nope, I just accept that some people's throats tend to close when they sleep, due to a loss of muscle tone during deeper sleep.  Back when I was diagnosed, the sleep lab just filmed you whilst you slept, stuck an O2 meter on your finger,…"
Oct 24
Jonathan replied to John's discussion evil mask noise
"Good to know you found a solution!"
Oct 24
John replied to John's discussion Has anyone been told root cause of their OSA?
"Did anyone tell you exactly what the anatomical issue is, Jonathan?"
Oct 21
John replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Can't say I know about this."
Oct 20
John replied to John's discussion evil mask noise
"So I tore some fabric from one of the filters and glued it over the holes - and it worked!It was dead quiet, and the air was still flowing freely.It was quiet all night then after a few hours a bit of whistling until I gave it a wipe.Vast…"
Oct 19

© 2024   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service