Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

Hello my name is Julie and I have just joined the forum.
My son (16) has been using a Resmed full face mask for over 6 months and the straps are causing severe bald patches to the back of his head due to friction and having to be adjusted tight to avoid leaks. His respiratory doctors have no solution to the problem and insist that he continue using the head gear. He requires bipap ventilation and no alternative is possible.
He tried using a thin cotton cap under the straps but this hasn't appeared to help(his own idea).
Has anyone else experienced this problem? Does anyone have any ideas or suggestions to help stop the hair being continually rubbed away? I'd be so grateful to hear from you..
I'm so frustrated and concerned about the lack of interest the doctors show when it comes to problems like this. Makes me angry!!!!!!!!!!

Best wishes
Julie

Views: 2954

Reply to This

Replies to This Discussion

Welcome Julie, I use a Resmed and don't find that problem and luckily because I need to keep all the hair I can, I'm really surprise it is doing it, which model mask is it?

I would suggest a few things for him they may help him loosen the straps a bit more, get him to try mask liners, they save his face touch the silicone and help with leaks, you can get them over the net or tell you how to make then yourself fairly cheaply, I think Kath makes her own leopard skin ones

Also have the hose coming from above is head either over a bedhead or you can buy a product called a hose lift or make one fairly cheaply, that way the mask pulls up instead of down and helps with leaks as well and saves getting tangled.

Just a couple of suggestions, good luck.

I think you will need to ask the respiratory doctor to supply a different make of mask.

The headgear on the F&P Simplus,  for example, is over 50mm wide at the back,

Other makes of full face masks will have different straps.as well.,

If you are not able to get another mask then it could be worth contacting Resmed for advice, I have found them to be very helpful in the past.

Just to say that I've been speaking with Julie and seen the pictures of her poor son's head and bald patches.  He's ill at the moment so she's visiting him in hospital, but it was more the straps near the top of his head and we're trying him with a SoftCap Headgear to see if that helps his problem.  I'm actually using one myself with the FitLife and it's a lot more comfy.

Hi

How is this young man and has the softcap helped with his hair loss.

Dee

Thanks for asking Dee.  We're working to sort the problem with the softcap, but it's not easy as he's currently in hospital and nobody tries as hard as a child's own parent!

Has there been any more news on this subject?  I am experiencing hair loss too.

Thank you.

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Kath Hope replied to Chris Vesey's discussion Cure for wind
"This is a common problem Sally, and especially when new to CPAP, irrespective of whatever machines people use.  It's definitely not just an Airsense 10 problem. If you've not clicked on the link I posted above in my reply to Chris…"
yesterday
Sally Gray replied to Chris Vesey's discussion Cure for wind
"Hi, it’s interesting to read Chris’s comment that the AirSense 10 has given him flatulence whereas his previous CPAP wasn’t a problem.  I’m new to using a CPAP and have been provided with an AirSense 10 which I’m…"
yesterday
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"I'm not aware of finance, and we at the Hope2Sleep Charity certainly couldn't offer this unfortunately.  However, if you have a Paypal account then you can apply for Paypal Credit which is offered for products over £150 I…"
Sunday
Kyla Davies replied to Bob Blair's discussion So Clean sanitiser
"Hi Kath In relation to the Soclean do you know if any finance is available to purchase one of these machines? I do not mind spending that amount on one but would be very helpful especially this time of year to purchase one on a finance…"
Sunday
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"Great to hear this Andy Just as importantly they will help prevent gum disease from dry mouth (plus less dental bills)."
Friday
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Tried one Xylimelts last night. Best sleep in ages. No waking up with a terrible dry mouth. Very pleased thank you"
Friday
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"Thanks for supporting our charity with your order Andy, and they'll be sent out tomorrow.  I love the Beaumont Citrus Wipes and have tried all the others, and these are definitely the best.  I use them everyday. Hope you find the…"
Sep 11
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Have just placed an order for some mask wipes and the mouth discs. Thanks for the recommendation of the discs, fingers crossed."
Sep 11
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"The SoClean will never be supplied by the NHS as they can't afford to give out products like this.  We have the SoClean at the charity at the price we've been told it has to be sold for…"
Sep 11
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Thank you for quick reply. The advert was on TV again this afternoon with a web address that links to an Amazon site. After a bit of research I have found a UK seller for £245 with 30 day return. Still not convinced so called my Respiratory…"
Sep 11
Sleep2snore replied to Edam's discussion Double inhaling
"I am sure they are not, but a lt of people tend to tighten their masks up to tightly. A lot more than they need to to stop leaks, I was no exception at the start, if it leaked, tighten it more, but this was not the answer.  New mask the correct…"
Sep 11
Kath Hope replied to Bob Blair's discussion So Clean sanitiser
"I still haven't seen the advert Andy, but lots of people are contacting us about purchasing.  First and foremost, whether with the SoClean or not, it is important to keep our equipment cleaned.  You're doing the right thing…"
Sep 10
Andy Dykes updated their profile
Sep 10
Andy Dykes replied to Bob Blair's discussion So Clean sanitiser
"Oh dear. Looks like I'm in trouble! I have used a CPAP machine for more than 10 years (not the same one) and currently have a Remstar System One SE. Have just seen an advert on TV for the SoClean which got me wondering how often are you…"
Sep 10
Andy Dykes is now a member of Hope2SleepGuide
Sep 10
Edam replied to Edam's discussion Double inhaling
"The only trouble is that both the Amara View and the Dreamwear are too painful to wear. The part of the cushion separating the mouth area from the nose cuts in!! to the base of my nose and partly into my nostrils."
Sep 9
Sleep2snore replied to Edam's discussion Double inhaling
"Good detective work."
Sep 8
Sleep2snore replied to ged's discussion no EPR setting REsmed S8 spirit 2 autoset
Sep 8
Sleep2snore replied to ged's discussion no EPR setting REsmed S8 spirit 2 autoset
"I can't see why they would have it on CPAP and not on AUTO, I suspect it has been locked out by sleep clinic, resetting will not help. It might be right that earlier models might not have EPR as I do remember seeing something about that, but…"
Sep 8
Sleep2snore replied to Helen McIntyre's discussion Pressure under eyes
"ResMed also do Hybrid masks, but they are more like Nasal Pillows stuck on top of a mouth mask. These all look as if they are made by the same manufacturer to me, but they are an alternitive, however the Dreamwear looks better.  Make sure you…"
Sep 6

© 2018   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service