Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

I'v had a CPAP machine for nearly 2 and a half years, on the whole I'm feeling a lot better and sleep through most nights but am still feeling tired, especially mid afternoon when I start yawning  - it's difficult to stop and sometimes my eyes water. after an hour or so It seems to pass and feel better. I strongly suspect I have restless leg syndrome, I have in the past had tablets from the GP on advice from the clinic, but I felt they were making me into a zombie like creature,  I did find alternative natural supplement which seems to have helped with the pain/itching but was told at the clinic that even though  I am sleeping through the night the RLS will still stop me having a proper nights sleep and should ask my GP for the appropriate tablets.  I know this topic is not strictly to do with sleep apnoea but I believe that many sleep apnoea sufferers also tend to suffer from RLS, If anyone has experience of this, can you tell me if you found a solution, or point me in the direction of a website that could help me

Many thanks

Carys

Views: 191

Reply to This

Replies to This Discussion

Poor you Carys - having the two different sleep disorders must be a nightmare!  Bearing in mind that the RLS also disturbs the your sleep it must be difficult pinpointing exactly which one is causing the tiredness.  Regarding the sleep apnoea, have you had your pressures checked lately?

Mirapex is the drug I've heard of peoople with RLS taking, but unfortunately this can affect the sleep, ie cause insomnia or sudden bouts of sleepiness.  I'm sure you'll find out more about this on a google search.

Here's some info I have saved on my computer, but I can't remember where I got it.  However, it might help:-

Medications that can make restless legs syndrome (RLS) worse

  • Over-the-counter sleeping pills
  • Antihistamines (found in many cold and allergy pills such as Benadryl, NyQuil, and Dimetapp)
  • Anti-nausea medications (such as Antivert, Compazine, and Dramamine)
  • Calcium channel blockers (used for high blood pressure and heart problems)
  • Antidepressants (such as Prozac, Effexor, and Lexapro)
  • Antipsychotics (used for bipolar disorder and schizophrenia)

If a medical condition, such as an iron deficiency, diabetes, or nerve damage is triggering your restless legs syndrome, treating the underlying problem may relieve your RLS symptoms. But if there is no underlying condition and lifestyle changes don’t bring enough relief, you may need medication to reduce the restlessness in your legs.

Feeling tired in the afternoon is normal. Our bodies and rhythms have natural highs and lows throughout the day. Typicallly after lunch we have a low between 1 and 3pm. This pattern repeats itself at night when we have a high between 1-3am. This is why peple that sometimes stayer up later than usual soemtimes find an unusual 2nd wind.

 

The best way to beat the low is through some kind of activity. Mine are backwards due to my schedule. I try to do some kind of exercise once I get my patients down for the night. The key is to elevate your heartrate even if just a little.

 

Restless Leg Syndrom(RLS) would be leg movements while you are awake. Periodic Limb Movements(PLMS) would be leg movements while you are asleep. Do you know for sure which you have? Here in the states they typically only treat the small percentage of people that suffer from both leg movememnt disorders.

 

Leg movement disorders can be a sign of many things:

 

Iron, mineral, and vitamin defficiencies(especially in woman)

Kidney problems

Neurological issues

 

If I were to discover that I had a leg movement disorder the first thing I might push for would be blood work.

Thank you for the replies, I'm due for a blood test before long will ask if iron level can be checked,

Reply to Discussion

RSS

About

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Tracey Tilley updated their profile
23 hours ago
Sharon Sullivan posted a discussion

For Sale - Ventura Full Total Face CPAP Mask

I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners.  I bought it new from the Hope2Sleep shop, but it is not suitable for me.  Only used for about two weeks so I have washed it thoroughly.   Because of this, it is very much…See More
May 17
Tracey Tilley replied to Jim Scullion's discussion UK Attendance Allowance
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
May 14
Jonathan replied to Sally Gray's discussion ResMed AirMini for travel
"No personal experience, but CPAP.com review of AirMini The AirMini runs at about 30 decibels, which is about the same sound level as a whispered conversation. For comparison, full-sized CPAPs tend to run around 26-28 decibels. Due to their…"
May 5
Sally Gray posted a discussion

ResMed AirMini for travel

I am considering either buying or renting an AirMini for a forthcoming holiday this month where I will be sharing a twin room. I have read that they’re quite noisy and I don’t want to waste my money on either rental or purchase if the noise level…See More
May 3
Sally Gray replied to Nick Daniel's discussion CPAP Total Face Mask
"Hi, I use a ResMed F20 and had the same issue with the silicone full face mask causing red marks and soreness on my nose bridge. I switched over to the Airtouch memory foam full face masks which are expensive and not supplied by the NHS, but the…"
May 3
Kath Hope replied to Glassdaisy's discussion Soft Cap
"It's very much still relevant and we're getting closer to have them manufactured and has been no easy challenge. In fact we were speaking with the company working with us on this only yesterday. If you're not on our newsletter list…"
Mar 27
Glassdaisy posted a discussion

Soft Cap

some time ago I was told that Hope2Sleep was researching a replacement for the discontinued Soft Cap.. as I have seen nothing to indicate moving forward on this, would I be right in assuming you decided it is no longer relevant?See More
Mar 27
Glassdaisy replied to Nick Daniel's discussion CPAP Total Face Mask
"I expect others may have responded by now, but I use the Fitlife full face mask. I kept getting a hard lump on my nose when first starting out & it got so bad that I ended up buying my own masks as my clinic would only give the Fitlife to new…"
Mar 27
Wendy Anthony is now a member of Hope2SleepGuide
Mar 25
David McDade is now a member of Hope2SleepGuide
Jan 3
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"Yes, it does the job. I use a Powapacs Atom for portable power "
Dec 18, 2024
John replied to John's discussion Are every small CPAP machines any good?
"Hi Nick thanks. Does it do the job and could you camp with it?"
Dec 18, 2024
Nick Daniel posted a discussion

CPAP Total Face Mask

I was curious whether anyone has used the CPAP Total Face Masks and could pass on their observations? I've been using an Airfit F20 for years which is fine apart from the permanent red mark on the bridge of my nose, and have recently tried the…See More
Dec 17, 2024
Nick Daniel replied to John's discussion Are every small CPAP machines any good?
"I've been using the Resmed Airmini for about 5 years when travelling - overall lightweight and small and can be controlled by an App, but it does produce a loud whistling/wind sound for me which hasn't been reduced by an inline filter or…"
Dec 17, 2024
Greg Lloyd is now a member of Hope2SleepGuide
Dec 6, 2024
Jonathan replied to David Hudson's discussion Pressure waking me up. Belching and wind
"Hi It sounds like you need to have more conversations with your sleep clinic.  There's little point in having a high pressure if it means you cannot tolerate the machine.  There's an interesting video here…"
Dec 1, 2024
David Hudson posted a discussion

Pressure waking me up. Belching and wind

HiI'm using the prisma smart max machine. Initially I was just on a nasal mask, this changed as I was sleeping with my mouth open. I then went to face and nose mask and complained of bad wind and belching. Sometimes the pressure in the night was…See More
Nov 28, 2024
Jonathan replied to Jonathan's discussion ResMed AirSense 10 getting noisy
"Just to tidy this up, I finally had an in-person review by my sleep clinic yesterday, who agreed the ResMed AirSense 10 was "wheezy" and replaced the machine."
Nov 9, 2024
Collette rose replied to Collette rose's discussion 1st time and I’ve failed the mask leak test
"thank you jonathan,i did get the it pack so tried the small and still struggled but i was sat up in bed so will try lying down great suggestion "
Nov 3, 2024

© 2025   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service