Hope2SleepGuide

Sleep Apnoea Forum Bringing Help + Support to the Patient

I have had my CPAP machine for 1 year 5 months and have felt a lot better whilst using it. One of my symptoms was incredible pain in my hands and arms during the night. The first night I used an APAP machine for pressure testing, I had absolutely no pain during the night. I have been able to stop taking Tramadol to get me through the night. No more daytime sleepiness etc. Life has been great.

About a month ago I noticed the pain disturbing me during the night and was frequently falling asleep in the car. I was also waking a few times a night really gasping for breath despite using my CPAP machine. I use a hose lift and mask liners.

At Kath's suggestion I phoned the clinic who orgnaised an appointment for me. Last week I was given an APAP? machine to monitor my breathing and a new mask.  I had noticed a piece of my old mask was missing. It was a cover for a breath testing tube and so my mask was leaking from the tube but I was given a replacement mask as mine was a year old.

I used the new mask and machine for the full seven days and went back yesterday for the results. I felt a bit better when using the APAP machine, less sleepy, no pain durig the night

The results were nothing I expected. I was told that my apnoeas were average ( 3.5 per hour, was 20-25) and that the greatest concern was mask leakage. It had leaked a lot more than expected. I remember her saying 2. something, don't really know what it means. I was given a new, different mask. She said that I could continue on CPAP as it helped my symptoms despite having leakage and few apnoeas

Last night I tried the new mask and was awake dozens of times with it moving off my face and constantly leaking. I have had palpitations all day, which was common before I started to use CPAP.  What I don't understand is how the apnoeas have gone down so much. My weight hasn't gone down.

I also think I may need more help on how to keep a mask on without leakage. After this length of time I should have got it right. I was allowed to keep the replacement Hans Rodulf mask I was given last week as well as the old one and I also now have the new mask which is an Almara full face. As I didn't have any liners for the Almara I used it without last night and suffered raspberry blowing noises on my face constantly. 

Basically, I am confused, and looking for more ideas on how to keep my mask in place please. I clean it carefully, used mask wipes, clean my face very carefully, use a liner and hose lift. I tend to sleep on my side and have a special pillow.

Just remembered that she decided to leave my pressure as it was but has said she will refer it to the senior nurse practitioner for more advice.

Views: 85

Reply to This

Replies to This Discussion

Judith-Ann, which APAP did you get, your apnea's numbers look good at 3.5 and may come down even more. The APAP's can be set to have a low and high pressure, you may want to ask whether they have set yours at a low and high pressure or whether it's constant. The APAP's do a lot of the work for you and I find are more comfortable to use. You can get free software to read your own results daily if you want so you can monitor your own progress. On the mask, you seem to be doing the right things, I don't use those masks but do fingd liners help and having the hose coming from above my head. Can you get a new cushion for the old mask, I assume that it worked for you if you have been using it for a year and a half.

i think it is not apnea that is causing the pain although the cpap does take pressure off of your heart

you should make a doctors appointment

correct way to put the mask on is to start the machine before you fit it onto your face

Judith, I would push for feedback from the senior practitioner, as you're no better off by the sounds of it and seems like the APAP was treating you better.  This may be due to higher pressures being reached on the APAP above which your CPAP is set on.  Did she mention whether the pressures went higher when you were on CPAP?

Reply to Discussion

RSS

Sleep Apnoea Forum

New to the Sleep Apnoea Forum? 

1. Stop by our Sleep Apnoea Welcome Center to introduce yourself to the SleepGuide community.
2. Start a New Topic of Conversation.
3. Post your photos - of yourself, your old CPAP machine, your new CPAP machine, your pet, something about you!

Interested in advertising, have a problem or need to contact us? Click the Report an Issue page.

 

Latest Activity

Kev Behr replied to Kev Behr's discussion !2v to 24v adaptor for caravan use
"There is a guy on YouTube who would suss it out, but you'd need to send him one to test, Bigclive.com he doesn't like stupid electric systems regardless of voltage. https://www.youtube.com/user/bigclivedotcom"
14 hours ago
John Crone added a discussion to the group Buy-Sell-Swap
Thumbnail

For Sale - ResMed Mirage Liberty Full Face Mask (Hybrid) - New and Sealed/Large

Mask and all component parts i.e. cushions, headgear etc. All sealed in original packaging, purchased in the wrong size. Looking for a sensible offer and will post free of charge. Many thanksSee More
16 hours ago
John Crone joined The SleepGuide Crew's group
16 hours ago
Sleep2snore replied to Kev Behr's discussion !2v to 24v adaptor for caravan use
"It is the specially made plugs that beats us from making a power supply with all the protection built in. Where do you get a plug that looks like that.  If it is a NHS machine you dare not change anything, and if it is one you bought you have…"
yesterday
Kev Behr replied to Kev Behr's discussion !2v to 24v adaptor for caravan use
"It needs to be either a lot cheaper than that Kath or we're better of using theirs, it is a quite simple bit of kit,, certainly no more complicated than what you would need to power a TV etc, they are just profiteering off gullible people, who…"
yesterday
Kev Behr replied to Kev Behr's discussion !2v to 24v adaptor for caravan use
"If DC paower = no humidifier, as it only blows through it, I'd get a bowl in front of the intake and let it suck through it, seemples, just don't let it suck the actual water into it of course."
yesterday
Kath Hope replied to Kev Behr's discussion !2v to 24v adaptor for caravan use
"I'm no expert or power solutions, but do have a motorhome and we had a socket installed next to the bed and just use the hook up.  If you want to go off-course which we haven't done yet as still new to the motorhome, check out the…"
yesterday
Sleep2snore replied to Kev Behr's discussion !2v to 24v adaptor for caravan use
"I am the same, do you convert power twice at a cost to power, or do you get the dc/dc adapter and save on power.  The power adapter can protect against reversed polarity and cut off the power if the voltage in the battery gets to low.  It…"
yesterday
Kev Behr replied to Kev Behr's discussion !2v to 24v adaptor for caravan use
"I was wondering if the central pin was a dummy, not a electronics wizard, so not sure how a + & - would work anyway. I think it has to be a inverter or bite the damned bullet and get the insanely priced adaptor, and as I'm from Yorkshire…"
yesterday
Sleep2snore replied to Kev Behr's discussion !2v to 24v adaptor for caravan use
"No, the meter is in the shed built in for now. It is an odd plug, otherwise you could build your own power supply. I think this is a special made plug just for ResMed machines. I have never seen one before anyway!"
Friday
Profile IconTim shilbach and Fiona O Connell joined Hope2SleepGuide
Thursday
Kev Behr replied to Kev Behr's discussion !2v to 24v adaptor for caravan use
"This 3 part plug, have you put a meter on it to see what if anything the three contacts produce yet when plugged into the mains, I just tried with my meter, and the damned battery is flat, forgot to turn it off."
Wednesday
Kev Behr replied to Kev Behr's discussion !2v to 24v adaptor for caravan use
"Thanks, the last twice I've been away, I left the machine at home, I felt fine, I don't think I have as many incidents as some. I recently bought a blood oxygen meter to try monitoring while on the CPAP, and also when not to see if there…"
Wednesday
Sleep2snore replied to Kev Behr's discussion !2v to 24v adaptor for caravan use
"Yes, made in China, what isn't these days, however, it is fine if made for a company like that to a standard.  However, there is no guarantee that one made and sold on Ebay or Amazon will be made to anything like the same standards. …"
Wednesday
Kev Behr replied to Kev Behr's discussion !2v to 24v adaptor for caravan use
"The data label on my Resmed Autosense 10, which you might notice is made in China. And I thought perhaps this inverter,…"
Tuesday
David thompson replied to David thompson's discussion SELLING cpap airsense10 elite machine with travel bag and accessories in the group Buy-Sell-Swap
"Are you getting my replies? Yes i am still selling my machine"
Monday
David thompson replied to David thompson's discussion SELLING cpap airsense10 elite machine with travel bag and accessories in the group Buy-Sell-Swap
"I found it hard to reply to you and sent your message back to you yes the machine is still for sale are you intrested"
Monday
David thompson replied to David thompson's discussion SELLING cpap airsense10 elite machine with travel bag and accessories in the group Buy-Sell-Swap
"Yes i still have machine"
Monday
David thompson replied to David thompson's discussion SELLING cpap airsense10 elite machine with travel bag and accessories in the group Buy-Sell-Swap
"Yes i still have machine here"
Monday
David thompson replied to David thompson's discussion SELLING cpap airsense10 elite machine with travel bag and accessories in the group Buy-Sell-Swap
Monday

© 2017   Created by The SleepGuide Crew.   Powered by

Badges  |  Report an Issue  |  Terms of Service