"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
Sleep Apnoea Forum Bringing Help + Support to the Patient
Forum Discussions (864)
| Discussions | Replies | Latest Activity |
|---|---|---|
what do you think of this? (Inspire Sleep Apnoea Implant)have a look at this:- http://www.sctimes.com/article/20110611/NEWS01/106110015/A-new-way-breathe-easy Joe Started by Joe barnes in Sleep Apnoea |
3 |
Jun 12, 2011 Reply by Kath Hope |
DID YOU BUY YOUR OWN CPAP OR IS IT FROM THE NHS?Thought I'd start off a new topic about our CPAP Machines - as to how many of us have bought our own machines or how many were provided the… Started by Kath Hope in Sleep Apnoea |
13 |
Jun 12, 2011 Reply by Tigers Fan |
BRITISH LUNG FOUNDATION + PHILIPS RESPIRONICS SLEEP APNOEA CAMPAIGN'BLF Breathe Easy Week' 13th - 19th June is dedicated to raising awareness of Sleep Apnoea, and is supported by Philips Respironics. An i… Started by Kath Hope in Sleep Apnoea |
0 | Jun 10, 2011 |
SHOULD CPAP BE USED FOR DAYTIME NAPS?This is a question I'm asked a lot, and I did lots of digging in the past and came to the conclusion that the answer is "Yes, Yes, Yes!!" … Started by Kath Hope in Sleep Apnoea |
25 |
Jun 3, 2011 Reply by Joe barnes |
HI indexI unplugged emils machine this mornin as I was moving his cot around I never unplug it but when I plugged it back in it sed the HI index wa… Started by Rachel Dickinson in Sleep Apnoea |
15 |
Jun 2, 2011 Reply by RockRpsgt |
hope this worksjust want to add these vids of emil the first one is after two failed supraglottoplastys the second after a third attempt at supraglottopla… Started by Rachel Dickinson in Sleep Apnoea |
1 |
May 30, 2011 Reply by Kath Hope |
this new Fit Life face maskdoes anyone use the total face mask? emil has got this respironics fitlife total face mask, i have put a pic on, its great he is so calm no… Started by Rachel Dickinson in Sleep Apnoea |
14 |
May 29, 2011 Reply by Kath Hope |
HOW SLEEP APNOEA AFFECTS CHILDREN + TREATMENTSHere's a link to a very good video seminar from John Hopkins Medicine about how Sleep Apnoea can affect children and what treatments are av… Started by Kath Hope in Sleep Apnoea |
0 | May 27, 2011 |
SO TIRED WITH NO ENERGY (When Things Go Wrong)Having deja vu today...... I decided I'd read in bed before putting on the mask last night, only I fell asleep with the book still in my ha… Started by Kath Hope in Sleep Apnoea |
0 | May 26, 2011 |
Sleep Clinic Appointmentshow often do you go to the clinic? i go to oxford and just phone up for spares. i havnt been for 6 years to an appointment. mind you i… Started by diane lester in Sleep Apnoea |
15 |
May 25, 2011 Reply by Kath Hope |
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Latest Activity
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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