"Yes, that would be find Amanda and I know Joseph who runs the clinic and am sure he'll be very helpful too."
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Amanda S
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Amanda S's Discussions
Which is the best sleep apnoea test?
10 Replies
This is my first post and I am very grateful to have found this forum.My husband was tested for sleep apnoea using a home test on the NHS in Dec 17. At the interview afterwards they told him he had…Continue
Started this discussion. Last reply by Kath Hope Sep 2, 2020.
Amanda S's Page
Latest Activity
"Hi Kath,
Thanks for the advice. I now have the go ahead from my husband to do another test. I think it will take too long via the doctors and would like to do a test straight away. I am thinking of going for the sleep disorder clinic as they do…"
"Hi Amanda
You don't need to start a new discussion as we're following this one fine :) It would be worth getting your GP to refer you to Oxford as the waiting list will no doubt be long due to this pandemic so at least he'll be…"
"Hi Kath, not used to the way the posting works on this forum . It feels as if I am collecting to much text. Should I start new topic? Have rung the clinic in Oxford and they said D has to be referred through the GP. I have found his Diagnosis from…"
"He really needs the attitude that if he is given a machine or a trial "This is going to work for came hell or high water!" though it is not easy getting started or used to a CPAP machine. Sometimes you just need to keep…"
"You're welcome Amanda and ask the sleep clinic what your husband's AHI was on the sleep study. If people are symptomatic for sleep apnoea, even in the mild criteria which is an AHI of 5-15 then they should be given a CPAP…"
"Hi sleep to snore, thank you for your support. It really encouraging to hear of other people's battles to get treatment. My husband was offered the overnight test but we chose the home one which looking back might have been a…"
"Thanks Kath for your reply. My husband has agreed to contact the clinic which we hope to do on Monday. Everything takes a long time with us as we both have health issues and I have brain fog and memory problems due to thyroid issues. Thanks again…"
"The best test is one you need help to get all connected up to, it can be done at home but is very expensive to hire the machine. Best to do a study over two nights, though it costs to do this. Kath I think does sleep studies, but then…"
"Welcome Amanda and sorry to hear of your husband's struggles. It sounds like he either went to a clinic that don't treat people with an AHI of less than 15 from the sleep study results, or he could have had a pulse oximetry sleep…"
Which is the best sleep apnoea test?
This is my first post and I am very grateful to have found this forum.My husband was tested for sleep apnoea using a home test on the NHS in Dec 17. At the interview afterwards they told him he had sleep apnoea but not bad enough to be given a CPAP. They offered no other treatment. Since then he continues to have disrupted sleep and in fact sleeps mostly in a chair downstairs as this is better for quality sleep. I would like to get a private test for him as he is getting more tired and…See More
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Latest Activity
"Hi
The SleepCube was a private purchase, as way back then my local sleep clinic assessed patients by filming them overnight, whilst wearing an oximeter, and only issued CPAP machines without humidifiers. There was no remote monitoring and…"
"Yeah I was wondering about email address. I thought probably if they wanted me to mail them they would have given out an address. I can imagine heart data is considered more acute than sleep data, so it would make more sense to have that…"
"Hi.
I didn't use PatientsKnowBest (ironic name), but I have an email address for my heart department for sending in ECGs. I was just saying that they may be able to review a PDF when then cannot review a data file from your O2 ring.
I am…"
"Hi Jonathan, did you do that through PatientKnowsBest?"
"On an unrelated topic, I've been able to send ECGs by PDF to my heart clinic.
On the subject of Resmed and apnoeas, take a look at https://youtu.be/ufOOAfyzZso?si=Tpdl4EEiCQBZR4iD&t=276
Your machine may be under-reporting.
Good…"
Wellu O2 Ring - is it accurate enough for the medics?
Moving some furniture my long lost O2 ring continuous oxygen saturation monitor turned up. So I've been wearing it and it tells me I have loads of saturation drops during the night even though my Airsense 10 says I have very few apneas.So I get two…See More
"Hi,
Just thought I'd give an update. So, I had my appointment with the NHS sleep clinic which was much quicker than I anticipated and I've now had the overnight sleep study. My AHI is now 6, down from over 30, so I'm…"
"Hi Sally from what I read the airsense doesn't suffer the same foam degredation issues as the infamous Phillips machine.I can conceive it's possible that microplastics may be shed from the flexible main tube.What worries me more about the…"
"Hi
My sleep clinic discharged me, saying they were happy I was self-managing. Roll on a decade and the cardiologists taking care of me were very unimpressed and I was re-enrolled. I expect remote monitoring with current generation Resmed…"
"Hi Jonathan,
Thanks again for the info. My cpap *should* be monitored by the NHS though I haven’t had any contact from them since pre-covid. I checked out the link you gave to access extra data and I think that’s going to be…"
"Hi
I have the ResMed Airsense 10 Autoset (APAP). It's monitored remotely by my NHS sleep clinic and I believe they can make changes to the settings. I don't know whether they are notified if I make changes, nor whether they…"
"Hi Jonathan,
Thanks for the reply. I'd say that I'm fairly technical. I have the ResMed Airsense 10 Elite machine. I've discovered that I can upload data wirelessly from my machine and having lowered the pressure by…"
"Hi
You don't say how technical you are, or what sort of machine you use. However https://www.sleephq.com/ has software which allows you to upload data from compatible machines, and analyse your sleep "score", including a…"
air bubbles after weight loss
Hi,I've been on Mounjaro for about 3 months now, not primarily for weight loss, but I have lost weight around my face and neck. I've noticed that I am increasingly getting air bubbles in my mouth which of course is disturbing my sleep (and my…See More
Micro plastics risks
I was reading an article in the I newspaper today written by a journalist who had her blood tested for micro plastics and was shocked by the results.…See More
job with the charity
Was wondering if there might be a job for me with Hope2Sleep?(I also just asked this of a group by mistake)See More
For Sale - Ventura Full Total Face CPAP Mask
I’m selling an Ventura Full Total Face CPAP Mask Large and two spare liners. I bought it new from the Hope2Sleep shop, but it is not suitable for me. Only used for about two weeks so I have washed it thoroughly. Because of this, it is very much…See More
"I put in a claim for PIP which was denied and now I am over 66 and on pension I tried for AA. Denied again.I have other health conditions ( Diverticular disease and Bile Acid Malabsorbtion ) which I consider hard to live with and they refused all of…"
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