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Amanda S
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  • Milton Keynes
  • United Kingdom
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Amanda S's Discussions

Which is the best sleep apnoea test?
10 Replies

This is my first post and I am very grateful to have found this forum.My husband was tested for sleep apnoea  using a home test on the NHS in Dec 17. At the interview afterwards they told him he had…Continue

Started this discussion. Last reply by Kath Hope Sep 2, 2020.

 

Amanda S's Page

Latest Activity

Kath Hope replied to Amanda S's discussion Which is the best sleep apnoea test?
"Yes, that would be find Amanda and I know Joseph who runs the clinic and am sure he'll be very helpful too."
Sep 2, 2020
Amanda S replied to Amanda S's discussion Which is the best sleep apnoea test?
"Hi Kath, Thanks for the advice. I now have the go ahead from my husband to do another test. I think it will take too long via the doctors and would like to do a test straight away. I am thinking of going for the sleep disorder clinic as they do…"
Sep 2, 2020
Kath Hope replied to Amanda S's discussion Which is the best sleep apnoea test?
"Hi Amanda You don't need to start a new discussion as we're following this one fine :)  It would be worth getting your GP to refer you to Oxford as the waiting list will no doubt be long due to this pandemic so at least he'll be…"
Aug 18, 2020
Amanda S replied to Amanda S's discussion Which is the best sleep apnoea test?
"Hi Kath, not used to the way the posting works on this forum . It feels as if I am collecting to much text. Should I start new topic? Have rung the clinic in Oxford and they said D has to be referred through the GP. I have found his Diagnosis from…"
Aug 18, 2020
Sleep2snore replied to Amanda S's discussion Which is the best sleep apnoea test?
"He really needs the attitude that if he is given a machine or a trial "This is going to work for came hell or high water!"  though it is not easy getting started or used to a CPAP machine.  Sometimes you just need to keep…"
Aug 17, 2020
Kath Hope replied to Amanda S's discussion Which is the best sleep apnoea test?
"You're welcome Amanda and ask the sleep clinic what your husband's AHI was on the sleep study.  If people are symptomatic for sleep apnoea, even in the mild criteria which is an AHI of 5-15 then they should be given a CPAP…"
Aug 15, 2020
Amanda S replied to Amanda S's discussion Which is the best sleep apnoea test?
"Hi sleep to snore, thank you for your support. It really encouraging to hear of other people's  battles to get treatment. My  husband was offered the overnight test but we chose the home one which looking back might have been a…"
Aug 15, 2020
Amanda S replied to Amanda S's discussion Which is the best sleep apnoea test?
"Thanks Kath for your reply. My husband has agreed to contact the clinic which we hope to do on Monday. Everything takes a long time with us as we both have health issues and I have brain fog and memory problems due to thyroid issues. Thanks again…"
Aug 15, 2020
Sleep2snore replied to Amanda S's discussion Which is the best sleep apnoea test?
"The best test is one you need help to get all connected up to, it can be done at home but is very expensive to hire the machine.  Best to do a study over two nights, though it costs to do this.  Kath I think does sleep studies, but then…"
Aug 13, 2020
Kath Hope replied to Amanda S's discussion Which is the best sleep apnoea test?
"Welcome Amanda and sorry to hear of your husband's struggles.  It sounds like he either went to a clinic that don't treat people with an AHI of less than 15 from the sleep study results, or he could have had a pulse oximetry sleep…"
Aug 4, 2020
Amanda S posted a discussion

Which is the best sleep apnoea test?

This is my first post and I am very grateful to have found this forum.My husband was tested for sleep apnoea  using a home test on the NHS in Dec 17. At the interview afterwards they told him he had sleep  apnoea  but not bad enough to be given a CPAP. They offered no other treatment. Since then he continues to have disrupted sleep and in fact sleeps mostly in a chair downstairs as this is better for quality sleep. I would like to get a private test for him as he is getting more tired and…See More
Aug 4, 2020
Amanda S is now a member of Hope2SleepGuide
Aug 3, 2020

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Latest Activity

Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"A very helpful reply Jonathan. I found the pressure setting for the full face mask to be too high when I changed to a nasal mask, but perhaps I should have persisted? I'll try again and I'll also discuss with the clinic whether an APAP…"
Wednesday
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Ramble alert!  My history is that I spent part of each week at a different location, so bought a second machine identical to my fixed pressure NHS machine and set it up to match using the clinician menu.  This was a very long time…"
Mar 12
Frances Knight replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"Thanks Jonathan - I had seen the YouTube video. My question is really about the experience of people who have control of their pressure settings, for example those people who have bought their machines directly and not obtained them through an NHS…"
Mar 12
Jonathan replied to Frances Knight's discussion Air Sense 10 - changing pressure settings
"This is NOT a recommendation http://www.youtube.com/watch?v=VNUWhd2UgQM"
Mar 11
Frances Knight posted a discussion

Air Sense 10 - changing pressure settings

I have been successfully using my air sense 10 since OSA diagnosis, and my AHI is now under 2. I had an appointment with my clinic this week and have been told there is no need for further appointments and just to contact them if I need supplies or…See More
Mar 11
Swen Greve is now a member of Hope2SleepGuide
Mar 4
Jonathan replied to Sue Reeves's discussion A few questions..
"If you have a helpful GP, I would ask them to re-refer you to the sleep clinic."
Mar 3
Sue Reeves posted a discussion

A few questions..

A quick bit of backgroundDiagnosed with OSA about 7/8 years ago by my local sleep clinic and given a F &P Icon CPAP.  After a couple of follow-up appts to sort out any issues, I was sent on my merry way. I have had no further face to face…See More
Mar 3
Jonathan replied to John's discussion Airsense 10 -humidifier runs dry
"I previously had a DeVilbiss Sleepcube and the dehumidifier did sometimes run dry.  On the other hand I now have an AirSense 10 and it never runs dry, and I've had the humidity turned up high."
Feb 26
John posted a discussion

Airsense 10 -humidifier runs dry

Hi. I'm finding the Airsense 10 the hospital gave me, the humidifier chamber runs dry. It's not even on max settings, which I'm guessing would empty it a lot quicker. Seems like a big design oversight to me. Does anyone else have this trouble? The…See More
Feb 26
David Hudson posted a discussion

Decline in hearing

HiI have regular, well yearly check ups at work. One being a hearing test. Since having my cpap machine my hearing has declined rapidly in 1 ear.....could this be as a result of pressure? I believe I'm on 15cm p max h2o. I just use a nasal…See More
Feb 26
Profile Icontim richards, mark & les, Lesley Parks and 1 more joined Hope2SleepGuide
Feb 13
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"I've got lucky! I can collect a new machine next week. It's been really helpful to 'speak' to people here and to Kath. It alerted me to the fact that I'd slipped through the net. The clinic were very apologetic and now all…"
Feb 8
Ejog1 replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"Thanks. Good news for me today, my clinic did finally reply to me and they’re giving me a new machine. The person I spoke to was super helpful. The NHS clinics are great when you’re able to speak to them, but they seem to be…"
Feb 7
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"Yes, my machine is affected. Seems I slipped through the net. I'm now on the sleep clinic's radar again and am hopeful that this will be sorted soon. Thanks for your reply and stay well."
Feb 7
Jenny Wren replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"I'm sorry to hear that. I emailed Kath about this and she was very helpful. She advised me to get in touch with my sleep clinic and I have had a reply from them. I so hope that you get a response soon."
Feb 7
Jonathan replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"Hello It seems you can check with Philips Respironics whether your machine is affected by the recall https://www.philipssrcupdate.expertinquiry.com/?ulang=en Hopefully it's not one of the problem machines, and at least you will know that your…"
Feb 5
Jonathan replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hello, I was diagnosed about the same time as you, and also found CPAP therapy live-changing.  My original machine was an NHS issue Respironics, with no reporting or logging of data.  After a throat infection which wouldn't go away, I…"
Feb 5
Ejog1 replied to Jenny Wren's discussion Feeling Abandoned by the Sleep Clinic
"I can’t offer any advice but I sympathise with the feeling of being abandoned. I got given my current Resmed machine about 8 or 9 years ago by my clinic, and I think it’s overdue replacement, but I can’t get a reply from my clinic,…"
Feb 5
Ejog1 replied to The SleepGuide Crew's discussion Welcome to our Forum - Feel Free to Introduce Yourself Here.
"Hi,  thanks for approving my application to the forum. I was first diagnosed in 2007 although for many years I had been suffering from extreme tiredness, and my snoring and stunted breathing at night was often joked about amongst friends and…"
Feb 5

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